ORCID Profile
0000-0003-4487-6429
Current Organisations
James Cook University
,
Southern Cross University
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Publisher: Informa UK Limited
Date: 11-01-2019
DOI: 10.1080/01612840.2018.1522400
Abstract: Person-first language is considered a central component to recovery oriented person-centred care however, there is a growing adoption of identify-first language among autistic advocates. Mental health nurses require awareness of critical autism issues given the high prevalence of comorbid psychopathology. This scoping review of literature from 2010 to 2018 regarding identifying language for people on the autism spectrum identified a paucity of research that systematically explored and considered antagonisms, representation, and potential consequences of either of the current modes of identifying language becoming dominant. Mental health nurses should appreciate the complexity within identifying language and adopt context dependent language.
Publisher: Elsevier BV
Date: 09-2020
Publisher: Informa UK Limited
Date: 11-2020
DOI: 10.1080/01612840.2019.1648617
Abstract: Person-first language, to refer to a person with autism, has been dominant within peer-reviewed literature however, there are autistic people who prefer identity-first language. This is a shift from the language ch ioned within mental health nursing therefore it is important to understand the meaning and actions within identifying language. This analysis of 29,606 words of Twitter discourse explored the political struggle between the modes of language. Differences within the conceptualisation of autism and disability underpinned varied subject positions and the rearticulation of autism and expertise was identified. Contextually driven adoption of identifying language requires awareness of the potential benefits and consequences.
Publisher: Wiley
Date: 13-04-2021
DOI: 10.1002/SONO.12260
Abstract: The prenatal identification of complex obstetric anomalies can present issues for expectant parents, sonographers and departments of obstetric ultrasound. The limitations of imaging technologies, ongoing fetal development and various interpretations of anomalies and prognosis create ambiguity. Complexity is further heightened by a lack of policies and training related to the communication of unexpected findings and support for sonographers who work with expectant parents during or after times of significant distress and trauma. This case report details challenges presented upon a third‐trimester diagnosis of a complex obstetric anomaly agenesis of the corpus callosum and offers recommendations to reduce the negative psychosocial consequences of complex obstetric anomaly diagnosis.
Publisher: Wiley
Date: 21-05-2021
DOI: 10.1111/JPM.12645
Abstract: Many parents find out that their unborn baby has a difference in their health, development, or genetics. This news is often unexpected and can be distressing and traumatic, which can lead to anxiety. There is a gap in support for parents. This paper offers a story of the lived experience of the first‐author, a mental health nurse who was told that her baby had a difference late in pregnancy. The narrative moves through the anxiety and difficulties faced when falling between gaps in the systems. This paper identifies the need for more support for parents who receive a prenatal diagnosis. This support is within the mental health nurse scope of practice across a range of settings and services. People who have been given a psychiatric diagnosis have been excluded from other studies that explore the experience of the unexpected news of a congenital anomaly. Research in this area is indicated. Mental health nurses are well‐positioned to address the gap in psychosocial support for parents who have received a prenatal diagnosis. As clinicians who are recognized to deliver federally funded pregnancy support counselling, psychosocial support is within the mental health nurse scope of practice. Some parents will require a higher level of support, assessment and intervention when they experience reactive mental illness or pre‐existing mental illness is exacerbated. Furthermore, people who have received a psychiatric diagnosis have been excluded from studies that explore the experience of receiving a prenatal diagnosis. This exclusion has resulted in a gap in knowledge. Expectant parents who receive a prenatal diagnosis of a congenital anomaly often experience shock, distress and a heightened risk of mental illness. This paper aimed to highlight the gap in psychosocial support for parents who receive a prenatal diagnosis through the personal narrative of a mental health nurse who received a third‐trimester diagnosis. The first‐author reviewed her medical records and photos to recall moments of the experience and prompt reflection. The narrative moved through the shock, guilt and subsequent pathological anxiety that followed a prenatal diagnosis at 32‐week gestation and the option to terminate. The gap in psychosocial supports for parents who receive a prenatal congenital anomaly diagnosis raises the risk to parental mental health and potentially confounds the risk to the baby. Mental health nurses are well‐positioned as service providers to fill this gap. The provision of psychosocial support after a prenatal diagnosis is within the mental health nurse scope of practice. This support may be provided through pregnancy support counselling, innovative nurse‐led perinatal mental health services or as additional support to a parent with the lived experience of mental illness who receives a prenatal diagnosis of a congenital anomaly.
Publisher: SAGE Publications
Date: 04-08-2020
Abstract: Studies indicate there is a need to improve the delivery of unexpected news via obstetric ultrasound, but there have been few advances in this area. One factor preventing improvement has been a lack of consensus regarding the appropriate phrases and behaviours which sonographers and ultrasound practitioners should use in these situations. To develop consensus guidelines for unexpected news delivery in Early Pregnancy Unit and Fetal Anomaly Screening Programme NHS settings. A workshop was conducted to identify priorities and reach consensus on areas of contention. Contributors included interdisciplinary healthcare professionals, policy experts, representatives from third-sector organisations, lay experts and academic researchers ( n = 28). Written and verbal feedback was used to draft initial guidance which was then circulated amongst the wider writing group ( n = 39). Revisions were undertaken until consensus was reached. Consensus guidelines were developed outlining the behaviours and phrases which should be used during scans where unexpected findings are identified. Specific recommendations included that: honest and clear communication should be prioritised, even with uncertain findings technical terms should be used, but these should be written down together with their lay interpretations unless expectant parents use other terminology (e.g. ‘foetus’), the term ‘baby’ should be used as a default, even in early pregnancy at the initial news disclosure, communication should focus on information provision. Expectant parents should not be asked to make decisions during the scan. These recommendations can be used to develop and improve news delivery interventions in obstetric ultrasound settings. The full guidelines can be accessed online as supplemental material and at 0.5518/100/24 .
No related grants have been discovered for Pieta Shakes.