ORCID Profile
0000-0003-0828-5912
Current Organisations
Via University College
,
VIA
,
University Colleges
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Publisher: Sciedu Press
Date: 29-06-2022
Abstract: Objective: The aim of the present study was to investigate the use of genetics/genomics (G/G) knowledge and competencies in a Danish nursing context.Methods: Using a qualitative approach, thirteen Danish nurses representing different parts of the Danish health care system were interviewed about their experiences with G/G in daily practice. One focus group interview was conducted face to face, and nine in idual semi-structured interviews were conducted partly face to face, partly online due to Covid-19 restrictions. Data were analyzed through systematic text condensation using the NVIVO13 tool (QSR International).Results: We identified five themes: 1) The nature of genetics 2) Knowledge about genetics 3) The roles of the nurse 4) Nurses’ engagement with patients and relatives 5) Patient pathways. Ethics was a recurrent theme in all five themes.Conclusions: The Danish nurses interviewed generally hold a narrow understanding of genetics i.e. defining it as heredity. They are involved in G/G aspects of care, although the extent and nature of this involvement varies considerably between different care settings. Hence, it seems unlikely that all nurses will require the same G/G knowledge and competencies. Nevertheless, the nurses share the belief that they should possess some basic knowledge about G/G to perform adequate nursing care. Their current knowledge about G/G is typically informed by practice and to a very small degree by their formal education. They agree that G/G literacy will be a general requirement in future nursing. Some of the nurses consider personalized medicine to be the golden road to better patient treatment and care. Some request more knowledge about G/G topics and a vocabulary to communicate adequately with doctors, patients and relatives on these issues. The importance of ethics is emphasized throughout the interviews.
Publisher: Springer Science and Business Media LLC
Date: 21-02-2009
DOI: 10.1007/S11019-009-9185-Z
Abstract: The main purpose of this paper is to draw attention to an important part of Habermas' critique of genetic enhancement, which has been largely ignored in the discussion namely his use of Kierkegaard's reflections on the existential conditions for becoming one-self from Either/or and the Sickness unto Death. It will be argued that, although Habermas presents some valuable and highly significant perspectives on the effect of genetic enhancement on the in idual's self-understanding and ability to experience him- or herself as a free and equal in idual, he does not succeed in working out a consistent argument. The claim is that he fails to explain how the existential analysis is related to his reflections on the sociological and psychological impacts of genetic enhancement in the realm of communicative action. It is this lack of theoretical clarity, which seems to render Habermas vulnerable to some of the critique which has been raised against his theory from a number of different scientific disciplines and areas of research. Hence, the first part of the paper provides some ex les of the nature and variety of this critique, the second part presents Habermas' own critique of genetic enhancement in the context of a dispute between so-called 'liberal' and 'conservative' arguments, and finally, the third part discusses the limits and possibilities of his position in a future debate about genetic enhancement.
Publisher: Sciedu Press
Date: 26-09-2019
Abstract: Objective: It is well established that genetics plays an increasing role in healthcare. This has given rise to an ongoing discussion about the genetics competencies that healthcare personnel should possess. Nurses are key players in healthcare, and several studies have found that current genetics teaching in nursing education is insufficient. Other studies have shown that many nurses have a very limited knowledge of genetics. The objective of the present study was to gain insight into the genetics content in the Danish nursing education.Methods: We conducted a questionnaire study, involving one science lecturer from each of the 26 Danish nursing schools, asking informants about the status of genetics at their nursing school, e.g. curriculum, number of teaching lessons and exam.Results: With a response rate of 100%, we found a large variation between schools regarding the number of genetics lessons offered, ranging from two to eleven lessons. There was also a large variation with regard to curriculum. Most schools used one of two textbooks written in Danish, and classical genetics subjects such as DNA structure, protein synthesis, single gene diseases, pedigrees, and chromosome abnormalities were part of the literature curriculum in almost all schools, with variation in the level of detail. Genetics subjects of specific relevance to nursing and healthcare, such as pharmacogenetics and cancer genetics, were only part of the literature curriculum in some schools. Genetics was only a minor exam subject (if at all), and inclusion of ethical and social aspects of genetics in healthcare varied considerably.Conclusions: This study gives a unique insight into the situation regarding genetics in the Danish nursing education, and we argue that national recommendations regarding genetics teaching in nursing education are of importance in order to harness the full potential of genetics in healthcare.
Publisher: Hindawi Limited
Date: 02-04-2020
DOI: 10.1111/JONM.12977
Publisher: SAGE Publications
Date: 04-2018
Abstract: Driven by interests in workforce planning and patient safety, a growing body of literature has begun to identify the reality and the prevalence of missed nursing care, also specified as care left undone, rationed care or unfinished care. Empirical studies and conceptual considerations have focused on structural issues such as staffing, as well as on outcome issues – missed care/unfinished care. Philosophical and ethical aspects of unfinished care are largely unexplored. Thus, while internationally studies highlight instances of covert rationing/missed care/care left undone – suggesting that nurses, in certain contexts, are actively engaged in rationing care – in terms of the nursing and nursing ethics literature, there appears to be a dearth of explicit decision-making frameworks within which to consider rationing of nursing care. In reality, the assumption of policy makers and health service managers is that nurses will continue to provide full care – despite reducing staffing levels and increased patient turnover, dependency and complexity of care. Often, it would appear that rationing/missed care/nursing care left undone is a direct response to overwhelming demands on the nursing resource in specific contexts. A discussion of resource allocation and rationing in nursing therefore seems timely. The aim of this discussion paper is to consider the ethical dimension of issues of resource allocation and rationing as they relate to nursing care and the distribution of the nursing resource.
Publisher: Springer Science and Business Media LLC
Date: 25-10-2014
DOI: 10.1007/S11019-014-9605-6
Abstract: An Irish surrogacy case from 2013 illustrates how negotiations of the mother's identity in a given national and legal context are drawing on novel scientific perspectives, at a time when the use of new biotechnological possibilities (such as IVF) is becoming more widespread and commonplace. The Roman dictum, 'Mater Semper Certa Est' (the mother is always certain, i.e. proven by giving birth) is contested by the finding of this Irish court, in which the judge made a declaration of parentage stating that the genetic parents of twins born using a surrogate (the mother's sister) were the parents. This article critically examines the normative background assumptions involved in this ruling. It will argue that the particular deployment of arguments from genetics and epigenetics in this court case produces a naturalization of the mother's identity that is inherently reductive. A second surrogacy case is also examined, this time regarding the rights of a woman of Irish nationality to receive paid maternity leave or paid leave similar to adoptive leave after the birth of her daughter to a surrogate mother in the US state of California. This case, which was brought to the Equality Tribunal in Ireland and decided by the Court of Justice of the European Union, is used to illustrate the possible ramifications of conflicting definitions of motherhood in the legal system. In concluding, this article argues for the development and deployment of a more complex understanding of the evolving state of motherhood within the courts, in keeping with developments in the IVF industry and the various new mother-relations it makes possible.
Publisher: Springer Science and Business Media LLC
Date: 18-03-2022
DOI: 10.1186/S12877-022-02890-2
Abstract: Demographic, economic and organisational changes challenge home care services. Increased use of welfare technology and involvement of family members as co-producers of care are political initiatives to meet these challenges. However, these initiatives also involve ethical aspects. The aim of this qualitative study was to explore family caregivers’ experience of involvement and possible ethical aspects of caring for frail older family members receiving home care services supported by welfare technology. This study used a qualitative explorative and descriptive design within a phenomenological-hermeneutical approach. Sixteen interviews with eighteen family caregivers were conducted. The participants were sons, daughters, siblings and spouses of frail older people receiving home care services with the support of welfare technology. Data were analysed using reflexive thematic analysis. The COREQ checklist was used. The analysis led to five main themes. First, the family caregivers’ experienced caring as meaningful but increasingly demanding concerning the changes in home care services. Second, they experienced a change in relationships, roles, tasks, and responsibilities related to more family involvement and the use of welfare technology. This also challenged their sense of autonomy. However, welfare technology helped them deal with responsibilities, especially safety. The family caregivers requested early involvement, dialogue for care decisions, more cooperation and support from health professionals. Third, the participants experienced that health professionals decided the conditions for co-production without discussion. Their need for information and knowledge about welfare technology were not met. Fourth, the family caregivers felt that the health professionals did not adequately recognise their unique knowledge of the care receiver and did not use this knowledge for customising the welfare technology to the care receiver and their families. Fifth, the family caregivers expressed concern about service and welfare technology inequality in home care services. Co-production in the involvement of family caregivers in care is still not an integral part of home care service. Welfare technology was appreciated, but the family caregivers called for early involvement to ensure successful and safe implementation and use. More attention needs to be given to ethical concerns about the change in relations, transfer of tasks and responsibility, and risk of inequality.
Publisher: Scandinavian University Press / Universitetsforlaget AS
Date: 09-05-2017
No related grants have been discovered for Karin Christiansen.