ORCID Profile
0000-0001-9353-8990
Current Organisation
Bournemouth University
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Publisher: JMIR Publications Inc.
Date: 31-08-2022
Abstract: he COVID-19 pandemic impacted older adults' social connections and increased loneliness, but also led to increased technology adoption, providing new opportunities to develop technology interventions to meet their social needs. Existing off the shelf social connection platforms do not contain facilities designed to break the cognitive cycle of loneliness, and loneliness interventions implemented without due process could cause detriments to wellbeing. There is also lack of digital technology designed with older adults. e set out to iteratively design a user-centred smartphone app that could address older adult needs for social connection. The research questions were: how could our prototype smartphone app be used in mitigating loneliness and increasing a sense of social connectedness? What were emergent concerns resulting from use? In what ways could it be improved to better meet user needs? e used technology probes to elicit older adults' reflection on the concept of using the app in two studies: Concept focus groups (N=33) and Concept interviews (N=10), and then conducted a prototype trial with one week of use and follow up interviews (N=12). thematic analysis was conducted to explore the experience and emergent challenges of our app through the design process. This led to the development of four themes occurring in all three qualitative datasets: 1) Reflection on a digital social map is reassuring, 2) App features encourage socialising, 3) Risk of compounding loneliness, and 4) Feeling more control with mutual, socially beneficial activities. martphone apps have the potential to increase older people’s awareness of the richness of their social connections, which may support loneliness reduction. Our qualitative approach to app design enabled the inclusion of older adults' experiences in the technology design. With that, we conclude that our older adults most desired functionalities that can support mutual activities and maintaining or finding new connections, rather than sharing of emotional state. They were wary of the app being used to replace preferred in-person social interactions, and they raised concerns about making the user aware of a lack of connections or support in their social network, unless they are offered specific means of addressing their needs. Further user-centred design work is needed to enhance the app to support mutual activities and socialising. Our study illustrates the continued importance of user-centred design work to ensure that digital interventions are designed for populations like older adults.
Publisher: SAGE Publications
Date: 13-05-2022
DOI: 10.1177/14713012221096982
Abstract: The COVID-19 pandemic has placed a tremendous burden on all of society, particularly among vulnerable populations such as people living with dementia and their caregivers. Efforts to understand the impact of the COVID-19 pandemic on those living with dementia are crucial towards addressing needs during the pandemic and beyond. This qualitative descriptive study includes a thematic analysis of 6938 tweets from March 17–24, 2020, that included direct or indirect references to COVID-19 and at least one of the following terms/hashtags: Alzheimer, #Alzheimer, dementia, and #dementia. Five themes were identified: continuing care, finding support, preventing spread of COVID-19, maintaining human rights, and the impact of the pandemic on the daily lives of people living with dementia. People living with dementia and their families faced unique challenges related to caregiving, maintaining social connectedness while trying to follow public health guidelines, and navigating the convergence of COVID-19 and dementia-related stigma. Data from Twitter can be an effective means to understand the impacts of public health emergencies among those living with dementia and how to address their needs moving forward by highlighting gaps in practice, services, and research.
Publisher: Elsevier BV
Date: 05-2022
Publisher: JMIR Publications Inc.
Date: 27-01-2023
DOI: 10.2196/42172
Abstract: Loneliness is a significant well-being issue that affects older adults. Existing, commonly used social connection platforms do not contain facilities to break the cognitive cycle of loneliness, and loneliness interventions implemented without due processes could have detrimental effects on well-being. There is also a lack of digital technology designed with older adults. We aimed to iteratively design a user-centered smartphone app that can address loneliness in older adults. The aim of this study was to investigate the loneliness-related psychological processes that our conceptual smartphone app promotes. We also identified the emergent needs and concerns that older adults raised regarding the potential benefits and detriments of the app. We used technology probes to elicit older adults’ reflections on the concept of using the app in 2 studies as follows: concept focus groups (n=33) and concept interviews (n=10). We then conducted a prototype trial with 1 week of use and follow-up interviews (n=12). Thematic analysis explored the experiences and emergent challenges of our app through the design process. This led to the development of 4 themes as follows occurring in all 3 qualitative data sets: reflection on a digital social map is reassuring app features encourage socializing the risk of compounding loneliness and in iduals feel more control with mutual, socially beneficial activities. Smartphone apps have the potential to increase older adults’ awareness of the richness of their social connections, which may support loneliness reduction. Our qualitative approach to app design enabled the inclusion of older adults’ experiences in technology design. Thus, we conclude that the older adults in our study most desired functionalities that can support mutual activities and maintain or find new connections rather than enable them to share an emotional state. They were wary of the app replacing their preferred in-person social interaction. Participants also raised concerns about making the user aware of the lack of support in their social network and wanted specific means of addressing their needs. Further user-centered design work could identify how the app can support mutual activities and socializing.
Publisher: American Psychological Association (APA)
Date: 23-12-2021
DOI: 10.1037/STL0000307
Publisher: SAGE Publications
Date: 25-03-2021
DOI: 10.1177/14713012211002410
Abstract: A diagnosis of dementia in midlife can be challenging, causing losses or changes in a person’s identity. Narrative provides a means of reconstructing identity and can be communicated on social media. There has been initial evidence on the value of Twitter for people with dementia, but researchers have not yet directly engaged with users’ perspectives. We employed a narrative model of identity to examine why people with dementia use Twitter and what challenges they face. Interviews were conducted with 11 younger people with dementia and analysed thematically. Participants used Twitter to counter a loss of identity through community membership and by regaining a sense of purpose. They sought to redefine dementia identities by challenging stigma and c aigning for social change. The character limit of tweets facilitated narrative through which participants preserved their identities. These findings suggest that Twitter could be an important source of post-diagnostic support for people with young-onset dementia. However, there are some risks as Twitter was sometimes a hostile environment for in iduals who did not present in a ‘typical’ manner, or faced technical difficulties because of their symptoms. In the future, platform developers could work with people with dementia to make Twitter more accessible for this group.
Publisher: Wiley
Date: 18-07-2023
DOI: 10.1002/CASP.2724
Abstract: Loneliness is a pernicious problem in older adulthood, associated with physical decline and isolation from valued social groups. However, the long‐term evolving experiences of ageing, identity and loneliness have yet to be elucidated. We use a Qualitative Longitudinal Research interview approach with nine vulnerable older adults (Age mean = 79.4 years), in which five participants were interviewed twice between 2019 and 2020, and four participants were interviewed at three‐time points from 2019 to 2021. This study aims to understand the unfolding experiences of ageing, social identity and loneliness during a prolonged period of social isolation during the Coronavirus pandemic. A theoretically guided thematic analysis highlights that participants initially experience ‘Categorisation as Vulnerable and Loss of Agency’ and ‘Shrinking Social Worlds’, leading to ‘Undermining of Reciprocal Support’ and ‘Fears of Persistent Loneliness’. Findings suggest that interventions to ameliorate loneliness among older adults would benefit from addressing age‐based stereotypes and emphasising the value of reciprocal contributions that older adults can make to their networks, as well as scaffolding and enhancing social identification with new groups. Please refer to the Supplementary Material section to find this article's Community and Social Impact Statement .
Publisher: SAGE Publications
Date: 06-08-2018
Abstract: There is a growing body of research on the use of Twitter by people with health conditions, but it does not include people with dementia. In this brief report, we aim to: (1) determine whether people with dementia are using Twitter (2) provide an estimate of the number of Twitter account holders who identify as having a diagnosis of dementia and (3) examine the demographic characteristics of these account holders. Tweetcatcher was used to identify tweets containing the search terms ‘dementia’ or ‘Alzheimer’. These data were systematically searched to locate account holders who identified themselves as having a diagnosis of dementia, and a content analysis was conducted of these account holders’ profiles. Thirty account holders self-identified as having a diagnosis of dementia. The average age of account holders was 59 years and the majority were located in North America or the UK. Although the majority of account holders reported having Alzheimer’s disease or did not specify a type of dementia, some rare forms of dementia were also evident. The s le consisted of relatively young account holders and contained more men, which might suggest that other groups are under-represented on Twitter. The majority of account holders considered themselves a dementia activist or were affiliated with a dementia organisation. The findings suggest that people with dementia, with varying demographic characteristics and a range of diagnoses, are active on Twitter. These account holders are more frequently male, relatively young, and dementia activists.
Publisher: Elsevier BV
Date: 2020
Location: United Kingdom of Great Britain and Northern Ireland
Location: United Kingdom of Great Britain and Northern Ireland
No related grants have been discovered for Catherine Talbot.