ORCID Profile
0000-0002-5147-7381
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In Research Link Australia (RLA), "Research Topics" refer to ANZSRC FOR and SEO codes. These topics are either sourced from ANZSRC FOR and SEO codes listed in researchers' related grants or generated by a large language model (LLM) based on their publications.
Aboriginal and Torres Strait Islander Cultural Studies | Cultural Studies | Social and Cultural Anthropology
The Performing Arts (incl. Theatre and Dance) | The Creative Arts (incl. Graphics and Craft) | Conserving Aboriginal and Torres Strait Islander Heritage |
Publisher: Elsevier BV
Date: 10-2023
Publisher: Wiley
Date: 07-10-2021
DOI: 10.1111/JPPI.12396
Abstract: People with intellectual disability do not have adequate access to mental health services and have worse mental health outcomes than the broader community. Access to information about mental health, treatment, and services has been advocated as one strategy to address these inequities. This article presents findings from a policy analysis of how the right to accessible information is represented in Australian mental health policy, with a focus on information access for people with intellectual disability. An analysis of Australian and New South Wales state policies relevant to mental health services 2007–2017, in current use and available online (49 documents) was conducted. Principles in the United Nations Convention on the Rights of Persons with Disability 2006 and an integrated health literacy framework were used to frame a content analysis. NVivo 11 (QSR 2015) was used to search the policy documents and themes were identified according to the policy type and purpose. The right to information is expressed in Australian and New South Wales state policy documents. However, the mental health policies do not refer to the communication needs of people with intellectual disability or incorporate strategies to address their needs. Many of the mental health policy directives incorporate the need for tailored communication. Some documents mention the needs of other groups of people with specific communication needs, but not people with intellectual disability. The inconsistency between the right to information expressed in policies and processes to communicate information with people who have intellectual disability needs to be addressed. The longstanding disparities in health outcomes, and difficulties accessing mental health service experienced by many people with intellectual disability underline the pressing need for policy to require accessible information practices.
Publisher: The Sax Institute
Date: 2022
DOI: 10.17061/PHRP3222214
Publisher: BMJ
Date: 07-2023
DOI: 10.1136/BMJOPEN-2023-072908
Abstract: Emergency department (ED) care must adapt to meet current and future demands. In Australia, ED quality measures (eg, prolonged length of stay, re-presentations or patient experience) are worse for older adults with multiple comorbidities, people who have a disability, those who present with a mental health condition, Indigenous Australians, and those with a culturally and linguistically erse (CALD) background. Strengthened ED performance relies on understanding the social and systemic barriers and preferences for care of these different cohorts, and identifying viable solutions that may result in sustained improvement by service providers. A collaborative 5-year project (MyED) aims to codesign, with ED users and providers, new or adapted models of care that improve ED performance, improve patient outcomes and improve patient experience for these five cohorts. Experience-based codesign using mixed methods, set in three hospitals in one health district in Australia. This protocol introduces the staged and incremental approach to the whole project, and details the first research elements: ethnographic observations at the ED care interface, interviews with providers and interviews with two patient cohorts—older adults and adults with a CALD background. We aim to s le a erse range of participants, carefully tailoring recruitment and support. Ethics approval has been obtained from the Western Sydney Local Health District Human Research Ethics Committee (2022/PID02749-2022/ETH02447). Prior informed written consent will be obtained from all research participants. Findings from each stage of the project will be submitted for peer-reviewed publication. Project outputs will be disseminated for implementation more widely across New South Wales, Australia.
Publisher: Wiley
Date: 25-08-2021
DOI: 10.1111/HEX.13343
Abstract: Patients are increasingly being asked for feedback about their healthcare and treatment, including safety, despite little evidence to support this trend. This review identifies the strategies used to engage patients in safety during direct care, explores who is engaged and determines the mechanisms that impact effectiveness. A systematic review was performed of seven databases (CINAHL, Cochrane, Cochrane‐Central, Embase, ISI Web of Science, Medline, PsycINFO) that included research published between 2010 and 2020 focused on patient engagement interventions to increase safety during direct care and reported using PRISMA. All research designs were eligible two reviewers applied criteria independently to determine eligibility and quality. A narrative review and realist synthesis were conducted. Twenty‐six papers reporting on twenty‐seven patient engagement strategies were included and classified as consultation (9), involvement (7) and partnership (11). The definitions of ‘patient engagement’ varied, and we found limited details about participant characteristics or interactions between people utilizing strategies. Collaborative strategy development, a user‐friendly design, proactive messaging and agency sponsorship were identified as mechanisms to improve engagement about safety at the point of direct care. Agency sponsorship of collaboration between staff and patients is essential in the development and implementation of strategies to keep patients safe during direct care. Insufficient details about participant characteristics and patient–provider interactions limit recommendations for practice change. More needs to be learned about how patients are engaged in discussions about safety, particularly minority groups unable to engage with standard information. Review progress was reported to the CanEngage team, including the consumer steering group, to inform project priorities (PROSPERO CRD42020196453).
Publisher: Wiley
Date: 28-10-2022
DOI: 10.1111/HEX.13610
Abstract: Although it is widely accepted that the physical environment can impact health quality and care outcomes, its impact on consumer engagement with health services has not been examined. Currently, no tools exist that assess the opportunities for consumer engagement offered within the physical environment. We aimed to develop and validate an environmental audit tool to assist health services and researchers to assess the extent to which the physical environment in health services creates and supports opportunities for consumer engagement. An iterative, team‐based approach in partnership with erse stakeholders was used to develop the Audit for Consumer Engagement (ACE) tool. A four‐stage process consisting of desktop review, concept clarification, identification of domains and validation was implemented. The tool was validated in one cancer service via face and content validation and inter‐rater reliability was also assessed. The ACE tool was demonstrated to comprise four main domains (access and signage information resources for consumers resources to support ersity and consumer engagement events or activities) measured with 17 items. Face and content validity was achieved, and preliminary reliability analysis indicated substantial agreement between the two researchers for all four domains with an average of 86% agreement. The ACE is a novel tool that is practical, relevant and reliable, and developed in partnership with consumers and health service providers. The tool can be used by health service providers, researchers and consumer agency groups to assess opportunities for consumer engagement offered within the physical environment of cancer services. The ACE tool has the potential to be used as a guide for enhancing consumer engagement opportunities and for research purposes. Further evidence about the validity of the tool is required, including criterion‐related validity and utility in other health settings. This project is part of a wider ‘CanEngage’ project that includes a consumer investigator and is supported by a consumer advisory group. This study was completed in active partnership with members of a consumer advisory group from erse backgrounds. Feedback was sought from the members throughout the development process of the tool with findings discussed with the CanEngage group members in scheduled meetings.
Publisher: Wiley
Date: 19-09-2023
DOI: 10.1111/HEX.13875
Publisher: Wiley
Date: 14-06-2022
DOI: 10.1111/JEP.13720
Publisher: JMIR Publications Inc.
Date: 13-06-2023
Abstract: eople from ethnic minority backgrounds are more at risk of poor care and outcomes in health services, this inequity is widely recognised. We used an adapted, experience-based co-design (EBCD) process to facilitate collaboration between staff and ethnic minority patients to identify key safety issues and devise a tailored solution at a cancer service in New South Wales, Australia. Identifying health service contact points relevant to medication concerns between appointments or hospital admissions was a key issue identified in the workshop. The co-design process resulted in the creation of a communication tool: Making it Meaningful (MiM). This protocol presents a pilot study testing whether MiM is feasible and acceptable for use with ethnic minority consumers in cancer services in Australia. This protocol is particularly significant as co-designed interventions are increasingly valued, but rarely documented in trials. o test whether MiM is feasible and acceptable for use with ethnic minority consumers in cancer services in Australia. single-site, controlled before and after pilot study to determine the feasibility and acceptability of ‘MiM’. Forty patients from Chinese and Russian cultural backgrounds will be recruited 20 treatment and 20 control. These cohorts were selected as the co-design participants identified these communities are at particular risk of medication safety concerns. The intervention group will use the MiM tool during usual appointments ,while the control group will receive routine care. Telephone surveys will be conducted with patients at three time points to assess patient knowledge and self-efficacy in medication management, and the perceived usability and acceptability of the MiM. Qualitative interviews with staff will be conducted at pilot conclusion to explore practitioner perceptions of MiM feasibility and acceptability. sing Evidence Based Codesign (EBCD) we identified communication about medication, particularly between appointments, as a key issue. Increasing consumer engagement in medication management was identified as a strategy to reduce medication safety problems in cancer care the MiM was developed to address this issue. his study involves implementation and evaluation of the feasibility and acceptability of the MiM, together with preliminary data on patient knowledge about prescribed medications and confidence in medication management, with a view to expanding the study to test whether the intervention is effective in improving patient outcomes. his protocol is registered with Australian New Zealand Clinical Trials Registry RN: ACTRN12622001260718p
Publisher: The Beryl Institute
Date: 02-08-2023
Publisher: Elsevier BV
Date: 08-2022
DOI: 10.1016/J.PEC.2022.04.014
Abstract: Ethnic minority populations are often exposed to healthcare-associated harm. There is little evidence about whether current patient engagement interventions are relevant. We conducted a national analysis of existing approaches amongst stakeholders in cancer care. Five online focus groups were conducted with 24 participants from consumer and health organisations across the Australian cancer system. Case studies depicting common methods of healthcare engagement to improve patient safety were developed and used to explore the suitability of current methods. Data were analysed thematically using the framework method. Three themes were identified: 1) sociocultural foundations of consumer engagement 2) principles for adaptation and 3) integration and implementation into cancer services. Sociocultural beliefs about cancer were considered to influence suitability. Adaptation may include multichannel methods, visual modalities and culturally specific content. Health system capacity, cultural competence of health service providers and consumer-led co-development were identified as critical to successful implementation. Existing engagement strategies are not completely suitable for ethnic minority populations nor feasible for implementation within cancer services. Healthcare services must work with ethnic minority populations to understand if and how underpinning beliefs influence engagement with cancer services. A range of tangible techniques may enhance the suitability of existing interventions.
Publisher: JMIR Publications Inc.
Date: 18-09-2023
DOI: 10.2196/49902
Publisher: Wiley
Date: 28-10-2022
DOI: 10.1111/HEX.13629
Abstract: Consumer engagement in health care is recognized as a critical strategy to minimize healthcare‐associated harms, however, little research has focussed on strategies to engage young people in healthcare safety. This study explores the suitability of commonly used engagement strategies, such as brochures, interactive bedside charts or apps, for young people (14–25 years) to improve their healthcare safety, with a focus on cancer care. Four qualitative online workshops were conducted ( N = 19). Two workshops included young people who had experienced cancer ( n = 6) and two workshops included staff who support young people who had experienced a diagnosis of cancer ( n = 12). Evidence from a systematic review was used to develop case studies of existing strategies as a topic guide for the online workshops. Data were analysed using a framework method and template analysis approach. Thematic analysis against the analytic framework led to the development of four principles for engagement with young people: empowerment, transparency, participatory culture and flexibility. The transition from being ‘looked after’ to young people being responsible for their own care was an integrative theme which intersected all elements of the framework. For service providers to engage with young people about safety issues in cancer services, the strategies employed need to be tailored to consider the transitional nature of being an adolescent or young adult. A systemic approach that incorporates flexible, tailored engagement strategies, education and empowerment of young people and healthcare providers is required to engage effectively with young people about safety in healthcare. These findings may have implications beyond cancer care. Workshop content was developed with and by the CanEngage team, including the Consumer Advisory Group, who reviewed content and inform wider project priorities.
Publisher: MDPI AG
Date: 02-12-2021
Abstract: People with intellectual disability have unmet health needs and experience health inequalities. There is limited literature regarding cancer care for children, adolescents, and young adults (AYA) with intellectual disability despite rising cancer incidence rates in this population. This systematic review aimed to identify the psycho-social and information support needs of AYA cancer care consumers with intellectual disability to generate recommendations for future research and cancer care service delivery enhancement. We searched eight databases yielding 798 articles. Following abstract and full-text review, we identified 12 articles meeting our inclusion criteria. Our three themes related to communication and accessible information supports and system navigation, cancer service provider training, and reasonable adjustments. There was a lack of user-friendly, accessible information about cancer and screening programs available. Both paid and family carers are critical in accessing cancer supports, services, and screening programs for AYA with intellectual disability. Ongoing training should be provided to healthcare professionals regarding the importance of care screening for AYAs with intellectual disability. This review recommends that AYA with intellectual disability and their family carers be involved in developing tailored cancer services. This should focus on enabling inclusive screening programs, accessible consent, and challenging the enduring paternalism of support services via training and appropriate communication tools.
No related organisations have been discovered for Bronwyn Newman.
Start Date: 10-2020
End Date: 10-2024
Amount: $469,627.00
Funder: Australian Research Council
View Funded Activity