ORCID Profile
0000-0002-3153-1299
Current Organisation
Universiti Teknologi MARA
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Publisher: Informa UK Limited
Date: 20-07-2016
Publisher: Penerbit UTM Press
Date: 29-12-2015
DOI: 10.11113/JT.V77.7006
Abstract: This study emphasizes the value of mixed-method research methodologies in research with families of children with Neurodevelopmental Disorders (NDD), specifically Autism Spectrum Disorder (ASD). The category of NDD in the Diagnostic and Statistical Manual of Mental Disorders (5th ed. DSM-5) includes Intellectual Developmental Disorders, Communication Disorders, Autism Spectrum Disorder (ASD), Attention-Deficit/Hyperactivity Disorder (ADHD), Specific Learning Disorder, and Motor Disorders. NDD affect not only the child, but the family as well. Limited research has utilized a qualitative or a mixed-methods approach to explore the experiences, stressors, and resilience of parents of children with ASD in non-Western contexts. Providing an ex le of a mixed-methods design, this paper illustrates a multiple-phase doctoral study on Autism Spectrum Disorder (ASD). The study’s objective is to conduct an embedded design, mixed-method analysis using grounded theory to better understand parents’ (mothers and fathers) experiences, stressors, well-being and resilience in the Malaysian cultural context. Integrating and blending the approaches together allows for deeper analysis and theory development, while allowing rich cultural data to be shared in research areas where limited information is present. Revealing the family system, cultural, and contextual processes, the findings have important implications for professionals and researchers to develop more meaningful, culturally-tailored, and evidenced-based interventions.
Publisher: Frontiers Media SA
Date: 08-01-2019
Publisher: Frontiers Media SA
Date: 14-10-2021
DOI: 10.3389/FPSYT.2021.733905
Abstract: Background: The COVID-19 pandemic lockdowns have adversely impacted children on the autism spectrum and their families, especially in Malaysia where this population is often marginalized. The current quantitative research aimed to investigate the impact of the Malaysian COVID-19 lockdown on the behavior and psychological distress of children formally diagnosed with an autism spectrum condition (ASC) as well as the psychological distress and well-being of their parents, in comparison with a typically developing (TD) control group. Methods: The children's ages ranged between 5 and 17 years. The s le included 72 ASC parent-child dyads and 62 TD parent-child dyads. The primary caregiver completed an online survey including the following: demographic and diagnostic information ASC symptoms children's inattention, hyperactivity/impulsivity, perceived stress, depression, and anxiety parents' perceived stress, depression, anxiety, and well-being based on their experience pre- and mid-lockdown (March 18th to June 9th 2020) in Malaysia. Results: Among the ASC group, no significant pre- and mid-lockdown change was found in ASC symptoms ( p & 0.05). There were no significant gender differences (boys/girls) in all the child scales. The 2 [diagnosis (ASC, TD)] × 2 [lockdown (pre-lockdown, mid-lockdown)] mixed-model ANOVAs revealed main effects of lockdown on children's attention, hyperactivity/impulsivity, anxiety, and parents' perceived stress, depression, and psychological well-being ( p & 0.005). There was a main effect of diagnosis in all child and parent variables, except parents' perceived stress ( p & .005). However, there was no significant interaction effect between diagnosis and lockdown ( p & .005). All child behavior (inattention and hyperactivity/impulsivity) and child psychological distress (anxiety, depression, and perceived stress) were significantly correlated in both the ASC and TD groups ( p & 0.005). On the other hand, only some of the parent variables were significantly correlated with child variables ( p & 0.0045) in the ASC group while none of the parent variables were significantly correlated with the child variables ( p & 0.005) in the TD group. Conclusion: The results provide preliminary evidence indicating negative effects of the Malaysian lockdown on both children on the autism spectrum and TD children, as well as their parents. These quantitative results will be triangulated with the qualitative interview data to provide a holistic understanding of the impact of the pandemic, informing translational policy and practice recommendations.
Publisher: Frontiers Media SA
Date: 09-04-2018
Location: No location found
No related grants have been discovered for Kartini Ilias.