ORCID Profile
0000-0001-6020-7490
Current Organisations
St George's, University of London
,
King's College London
,
King's College School
,
University College London
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Publisher: Wiley
Date: 29-12-2015
DOI: 10.1111/HEX.12435
Publisher: Elsevier BV
Date: 06-2022
Publisher: Wiley
Date: 04-2009
DOI: 10.1111/J.1600-0447.2008.01296.X
Abstract: This paper describes a measure of continuity of care, establishes its reliability and tests it in a field trial s le for evidence of its validity. In contrast to others, this measure has been generated from the perspectives of service users. As continuity of care is a concern particularly for those with severe mental illness, we have confined our work to this population group. Service users in focus groups and expert panels generated the measure. The researchers were themselves service users. Test-retest reliability was assessed with an independent s le. The measure was administered to a final independent field trial s le to determine their experiences of continuity of care and for further psychometric testing. The measure generated by service users has satisfactory psychometric properties. Service users in the field trial s le were more satisfied when continuity, as assessed by this measure, was in place. It is possible and valid to construct outcome measures in mental health entirely from the user perspective. This has not been done before.
Publisher: Informa UK Limited
Date: 02-01-2022
Publisher: Springer Science and Business Media LLC
Date: 22-02-2015
Publisher: Springer Science and Business Media LLC
Date: 08-06-2012
Publisher: Elsevier BV
Date: 08-2009
DOI: 10.1016/J.SOCSCIMED.2009.06.015
Abstract: Continuity of care is considered by patients and clinicians as an essential feature of good quality care in long-term disorders, yet there is general agreement that it is a complex concept and the lack of clarity in its conceptualisation and operationalisation has been linked to a deficit of user involvement. In this paper we utilise the concept of the 'patient career' to frame patient accounts of their experiences of the mental health care system. We aimed to capture the experiences and views of users and carers focusing on the meanings associated with particular (dis)continuities and transitional episodes that occurred over their illness career. As part of a large longitudinal study of continuity of care in mental health a sub-s le of 31 users was selected together with 14 of their carers. Qualitative interviews framed around the service user's illness career explored general experiences of relationship with services, care, continuity and transition from both user and carer perspectives. Five key themes emerged: relational (dis)continuity depersonalised transitions invisibility and crisis communicative gaps and social vulnerability. One of the important findings was the fragility of continuity and its relationship to levels of satisfaction. Supportive, long-term relationships could be quickly undermined by a range of factors and satisfaction levels were often closely related to moments of transition where these relationships were vulnerable. Ex les of continuity and well managed transitions highlighted the importance of professionals personalising transitions and situating them in the context of the daily life of service users. Further research is required to identify how best to negotiate these key points of transition in the future.
Publisher: Wiley
Date: 07-09-2012
Publisher: Springer Science and Business Media LLC
Date: 12-2016
Publisher: Informa UK Limited
Date: 02-2011
DOI: 10.3109/09540261.2010.545990
Abstract: It is becoming increasingly recognized that conventionally derived outcome measures in mental health research are problematic. This is both because of the methodology used and because a 'good' outcome is framed from the perspective of clinicians and researchers. This paper describes a methodology for developing outcome measures for use in large studies entirely from the perspective of mental health service users. It is a mixed methods model starting with a participatory and qualitative methodology and proceeding to psychometric testing. At all stages, the researchers are themselves mental health service users. In the first phase of the model, focus groups are convened comprising people who have received the treatment or service being measured. The focus groups meet twice resulting in a draft mixed-methods questionnaire devised from thematic analysis of the focus group data. This is then taken to expert panels, again comprising in iduals who have received the treatment or service being evaluated for refinement. Following this, a feasibility study is conducted with N ∼ 50 participants and changes made iteratively to the questionnaire in light of feedback. The final measure is subject to psychometric testing both to ensure it is robust and to explore similarities and differences with conventionally derived measures.
Publisher: Springer Science and Business Media LLC
Date: 18-03-2011
Location: United Kingdom of Great Britain and Northern Ireland
Location: United Kingdom of Great Britain and Northern Ireland
Location: United Kingdom of Great Britain and Northern Ireland
Location: United Kingdom of Great Britain and Northern Ireland
Location: United Kingdom of Great Britain and Northern Ireland
Location: United Kingdom of Great Britain and Northern Ireland
Location: United Kingdom of Great Britain and Northern Ireland
No related grants have been discovered for Angela Sweeney.