ORCID Profile
0000-0001-9986-9985
Current Organisation
University of Tasmania Launceston Campus
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Research Topics
In Research Link Australia (RLA), "Research Topics" refer to ANZSRC FOR and SEO codes. These topics are either sourced from ANZSRC FOR and SEO codes listed in researchers' related grants or generated by a large language model (LLM) based on their publications.
Top 5 Research Topics
ANZSRC Field of Research (FoR)
Psychology | Special Education and Disability | Developmental Psychology And Ageing | Curriculum and Pedagogy | Specialist Studies in Education | Health, Clinical And Counselling Psychology | Mathematics and Numeracy Curriculum and Pedagogy | Secondary Education | Special Education | Educational Psychology | Developmental Psychology and Ageing
ANZSRC Socio-Economic Objective (SEO)
Ability and disability | Youth/child development and welfare | Special Needs Education | Syllabus and Curriculum Development | Pedagogy | Learner Development | Special education | Work and Institutional Development not elsewhere classified | Allied Health Therapies (excl. Mental Health Services) | Early childhood education |
Related Links
Publications
Young people with Down syndrome: A preliminary investigation of health knowledge and associated behaviours
Publisher: Informa UK Limited
Date: 12-2006
DOI: 10.1080/13668250600999186
Abstract: Adults with intellectual disability have a range of significant health problems. If they are to live independently, they need to engage in behaviours that are health promoting, as well as avoiding behaviours that might directly lead to ill health. There is very little research about health-related knowledge and behaviour in this group. A group of 38 adolescents with Down syndrome (DS) and their families participated in this study. A semi-structured interview and a series of tasks were used to collect data on in iduals' health knowledge and behaviour relating to 4 aspects of health: hygiene, substance use, exercise and healthy eating. While the majority of young people demonstrated some awareness of basic hygiene, they were not yet at the level where these behaviours could be guaranteed to occur without parental support. Knowledge about substance use, exercise and healthy food was generally poor. Knowledge of most aspects of health assessed in this study was poor and pointed to a gap in the preparation of these young people for independent living.
Delay of gratification: A comparison study of children with Down syndrome, moderate intellectual disability and typical development
Publisher: Wiley
Date: 04-03-2016
DOI: 10.1111/JIR.12262
Abstract: Self-regulation has been found to be an important contributor to a range of outcomes, with delay of gratification (a self-regulatory skill) predicting better academic, social and personal functioning. There is some evidence that in iduals with Down syndrome have difficulty with delay of gratification. We investigated the question of whether this difficulty is common to intellectual disability irrespective of aetiology, or whether it presents a particular problem for those with Down syndrome. The latter was considered a possibility because of language difficulties in this group. Three groups of children with a mean MA between 36 and 60 months participated in the study: children with Down syndrome (n = 32), children with a moderate intellectual disability from a cause other than Down syndrome (n = 26) and typically developing children (n = 50). Children completed a series of measures of language and cognitive functioning and participated in a delay of gratification task. The group of children with Down syndrome delayed for a significantly shorter time than either of the other two groups that did not differ from each other. Receptive language was associated with delay time for the children with Down syndrome but not for the typically developing group, nor for the group with moderate intellectual disability. Children with Down syndrome appear to have a particular difficulty with delay of gratification. Language abilities would seem to be implicated in this difficulty, although further examination of this hypothesis is required.
Evaluating the Performance Improvement Preferences of Disability Service Managers: An Exploratory Study Using Gilbert's Behavior Engineering Model
Publisher: Wiley
Date: 09-06-2016
DOI: 10.1111/JAR.12260
Abstract: Front-line managers play an important role in managing the performance of staff working in services for people with intellectual disability, but little is known about the practices they prefer to use to improve staff performance and whether these align with what research has shown to be effective. This study comprised two phases. First, the present authors tested the validity and reliability of a short questionnaire designed to evaluate managers' preferences for performance improvement practices. Then, the present authors collected and analysed responses from 175 managers working in disability services in Queensland, Australia. The questionnaire demonstrated good content validity, concurrent validity and test-retest reliability. The participants believed strategies related to changing employee in idual characteristics to be more effective than strategies aimed at improving environmental factors. This study provides important considerations regarding the professional development needs of front-line managers working in organizations that provide services to people with intellectual disability.
Down Syndrome Temperament: The Stereotype at Middle Childhood and Adolescence
Publisher: Informa UK Limited
Date: 1991
Vulnerability to Loneliness in People with Intellectual Disability: An Explanatory Model
Publisher: Wiley
Date: 09-2014
DOI: 10.1111/JPPI.12089
Examination of a scale assessing attitudes towards individuals with intellectual disability in China
Publisher: Informa UK Limited
Date: 26-08-2015
The application of the drug user quality of life scale (DUQOL) in Australia
Publisher: Springer Science and Business Media LLC
Date: 2012
Exploring the complexity of implementing National Disability Insurance Scheme plans for adults with intellectual disability: Parents’ perspectives
Publisher: Informa UK Limited
Date: 17-12-2021
Parental strategies for assisting children to wait.
Publisher: Down Syndrome Education International
Date: 2006
DOI: 10.3104/REPORTS.315
Abstract: This study examined parents' behaviours as they waited with their child. Children were presented with an attractively wrapped gift and then asked not to touch it until the experimenter returned from finishing some work in another room. Three parent groups and their children participated in the study - parents of children with Down syndrome, parents of children with intellectual disability from another cause, and parents of children who were developing typically. There were no significant differences between children in how long they were able to wait before touching the gift. The data from the first two groups were combined for all analyses after it was established that there were no significant differences between them. There were few significant differences between parents of a child with intellectual disability and comparison parents. The former group were more likely to be classified as Authoritarian than were comparison parents, however with one exception, parenting style was unrelated to the strategies parents used in the waiting situation. Very few parents in either group used the opportunity to teach or explicitly praise effective waiting strategies in their children.
A comparative study of mastery motivation in young children with Down's syndrome: Similar outcomes, different processes?
Publisher: Wiley
Date: 20-02-2003
DOI: 10.1046/J.1365-2788.2003.00460.X
Abstract: Findings from previous research into motivation in young children with Down's syndrome (DS) have been mixed. Some studies have suggested that development is merely delayed, while others have proposed that there are inherent differences or deficits. Using the mastery motivation paradigm, studies of young children have often found that those with DS are just as persistent and goal-directed as typically developing children of the same mental age (MA). However, research involving children with DS with MAs above 2 years is very limited. The major aim of the present study was to extend previous research by focusing on children with MAs between 24 and 36 months. A secondary aim was to investigate issues which would advance conceptual knowledge about the construct of mastery motivation. The participants were 25 children with DS and 43 typically developing children, matched for MA (24-36 months). The main measures of mastery motivation were persistence with structured mastery tasks (i.e. puzzles and shape-sorters) and maternal reports. With the challenging tasks, children with DS were just as persistent as the typically developing children. Correlations of persistence measures in the group with DS suggested that persistence for these children represented a more generalized approach rather than a task-specific response. Maternal ratings of persistence were lower in the group with DS. The main conclusion was that children with DS in the MA range of 24-36 months do not differ in their persistence with challenging tasks when compared with typically developing children of the same MA. The implication is that motivational development is delayed for children with DS, rather than deficient. However, there were some indications of possible differences in the processes underlying mastery behaviour in the two groups. The study addresses a number of conceptual and methodological issues associated with mastery motivation research, and stresses the important contribution that future longitudinal studies could make.
Reliability of a method for establishing the capacity of individuals with an intellectual disability to respond to Likert scales
Publisher: Informa UK Limited
Date: 06-09-2013
DOI: 10.3109/13668250.2013.832734
Abstract: The study reported here was an examination of the reliability of a method for determining acquiescent responding and the capacity to respond to items using a Likert scale response format by adults with an intellectual disability. Reliability of the outcomes of these procedures was investigated using a test-retest design. Associations with receptive vocabulary were examined. The majority of the participants did not demonstrate acquiescent responding. In iduals' responses to the Likert-type discrimination tasks were consistent, although this varied somewhat depending upon the abstractness of the task. There was some association between receptive language age equivalence scores and respondent performance. It is recommended that the pretest protocol (a) be modified to improve its reliability, and (b) this modified version be used with study participants who have an intellectual disability to ascertain the appropriate level of choice to be used for items that use a Likert response format.
Unanticipated ethical issues in a participatory research project with individuals with intellectual disability
Publisher: Informa UK Limited
Date: 08-08-2014
Understanding the Influence of Traditional Cultural Values on Indonesian Parenting
Publisher: Informa UK Limited
Date: 29-02-2016
Cultural beliefs about autism in Indonesia
Publisher: Informa UK Limited
Date: 11-04-2016
Mastery motivation in children with intellectual disability: Is there evidence for a Down syndrome behavioural phenotype?
Publisher: Informa UK Limited
Date: 04-05-2015
Attitudes towards the sexuality of adults with an intellectual disability: Parents, support staff, and a community sample
Publisher: Informa UK Limited
Date: 09-2004
Self-Regulation in Children Born with Extremely Low Birth Weight at Four Years of Age: A Comparison Study
Publisher: Informa UK Limited
Date: 24-08-2021
Parents and schools: commentary on “Identifying child, parent, and school correlates of stress among parents of children with intellectual and developmental disabilities” (Burke, Rios, & Aleman-Tovar, 2020)
Publisher: Informa UK Limited
Date: 02-01-2020
Editorial: Caveat emptor!
Publisher: Informa UK Limited
Date: 12-2005
Parenting satisfaction and self-efficacy: A longitudinal study of mothers of children with Down syndrome
Publisher: Informa UK Limited
Date: 06-2012
Life Styles of Adults with Down Syndrome Living at Home
Publisher: Wiley
Date: 12-2008
Impact of COVID-19 on refugee-background students during school shut down in Australia: a call for action
Publisher: University of Waikato
Date: 28-07-2021
Abstract: The majority of schools across Australia rapidly implemented online education during the first wave of COVID-19 restrictions. The school closure disproportionately affected the routines and socialisation of vulnerable students, including those with a refugee background. Refugee-background students have been impacted by COVID-19 as school closures interrupted face-to-face education, including English language and tutorial support and counselling services. School shutdown also impeded refugee-background students’ activities outside the home, which could render adverse effects on their physical, mental and social wellbeing. Holistic efforts are urgently needed in Australia to support refugee-background students in order to prevent further learning loss and promote health and wellbeing. Keywords: COVID-19, refugee-background students, education loss, physical, mental and social wellbeing, Australia
Social Behaviors of Children with ASD during Play with Siblings and Parents: Parental Perceptions
Publisher: Elsevier BV
Date: 02-2020
DOI: 10.1016/J.RIDD.2019.103525
Abstract: Both siblings and parents are important interactional partners for children with ASD, but we know little about whether these interactions differ between these two groups, or between older and younger siblings. To gather data about how parents perceive the interactional behaviors displayed by their child with ASD in play with their typically developing siblings and their parents. Parents completed a questionnaire developed for this study about the behaviors their children with ASD demonstrated when interacting with a sibling or parent. Following factor analysis, a 29-item instrument with two factors was revealed. Factors were labelled Prosocial Interaction and Withdrawal/Agonism. In some families, children with ASD were reported to display significantly higher levels of negative interaction when playing with their older siblings in comparison to younger siblings. When playing with their children with ASD, parents reported significantly more negative interactions compared to when their children with ASD played with younger siblings. There were few differences reported for play behaviors with parents versus older siblings. Children with ASD appear to display different interactional behaviors depending upon their play partners within the family unit. This study could be used to inform researchers of different interaction strategies which may be useful in creating interventions.
Challenging the myths and redressing the missteps in family research
Publisher: Wiley
Date: 06-2009
Sibling relationships of children with Down syndrome: Perspectives of mothers, fathers, and siblings
Publisher: American Association on Intellectual and Developmental Disabilities (AAIDD)
Date: 2003
Futures of adults with intellectual disability: Staff expectations
Publisher: Informa UK Limited
Date: 06-10-2021
Mental Health Problems in Adults With Down Syndrome and Their Association With Life Circumstances
Publisher: Informa UK Limited
Date: 30-06-2014
Developmental Expectations, Personality Stereotypes, and Attitudes Towards Inclusive Education: Community and Teacher Views of Down Syndrome
Publisher: Informa UK Limited
Date: 03-2003
Changing student teachers' attitudes towards disability and inclusion
Publisher: Informa UK Limited
Date: 12-2003
A Focus Group Study of Police Officers' Recognition of Individuals with Intellectual Disability
Publisher: Informa UK Limited
Date: 02-2012
Parent Satisfaction With Early Intervention Services for Children With Physical Disabilities Internal Consistency of the European Parent Satisfaction Scale About Early Intervention
Publisher: Ovid Technologies (Wolters Kluwer Health)
Date: 07-2010
Attitudes to sexuality questionnaire (individuals with an intellectual disability): Scale development and community norms
Publisher: Informa UK Limited
Date: 09-2007
DOI: 10.1080/13668250701549450
Abstract: Attitudes to the sexual expression of adults with an intellectual disability (ID) are one reflection of the inclusiveness of a community. Our capacity to measure attitudes towards this important aspect of adult life is limited by the lack of an appropriate instrument. The aim of this study was to continue the development of a recently published questionnaire and to establish normative data. The Attitudes to Sexuality Questionnaire (In iduals with an Intellectual Disability) (ASQ-ID: Cuskelly & Bryde, 2004) was modified slightly and questions about hypothesised stereotypical views of sexuality were added. A community s le of 261 adults completed this modified questionnaire, as well as a shorter version of the questionnaire about attitudes to sexual expression in typically developing adults. Factor analysis revealed one general factor associated with sexual rights, plus three other factors related to parenting, non-reproductive sexual behaviour, and self-control. There were few differences in attitudes towards male and female sexuality, and attitudes were only slightly less positive for in iduals with an ID than for those without a disability. Views about parenting by people with an ID were more cautious than for other aspects of sexuality. The present study established the factor structure of an instrument for measuring attitudes towards the sexual expression of adults with an ID and provided normative data. Community attitudes towards the sexual rights of adults with an ID are generally quite positive.
Toilet training for children with autism: The effects of video modeling
Publisher: Springer Science and Business Media LLC
Date: 26-06-2007
Understanding maternal support for autonomy in young children with Down syndrome
Publisher: Wiley
Date: 06-2016
DOI: 10.1111/JPPI.12163
Measures for children with developmental disabilities: an ICF-CY approach
Publisher: Informa UK Limited
Date: 04-03-2015
Parents' views of an optimal school life: using Social Role Valorization to explore differences in parental perspectives when children have intellectual disability
Publisher: Informa UK Limited
Date: 06-05-2016
Parenting stress in mothers of preterm infants during early infancy
Publisher: Elsevier BV
Date: 2012
DOI: 10.1016/J.EARLHUMDEV.2011.06.014
Abstract: Mothers of preterm infants during the first year of life may experience stresses greater that those found in mothers of term infants. The aim of the study was to determine the levels of parenting stress and psychological well-being in mothers of very preterm babies in comparison to a control group of term mothers. One hundred and five mothers who delivered 124 babies at ≤30weeks gestation were recruited together with 105 mothers who delivered 120 babies at term. At 4months of age (corrected for prematurity for the preterm babies), the mothers completed the Parenting Stress Index Short Form, the Edinburgh Postnatal Depression Scale (EPDS), the Dyadic Adjustment Scale (DAS) and the Short Temperament Scale for Infants (STSI). The preterm and term groups were compared. Questionnaires were returned from 86 of the preterm mothers and 97 of the term mothers. The mean Total Stress score for the preterm and term groups was 67.0 and 63.79 respectively (P=0.32) with 17% of the preterm and 9% of the term group having high scores (P=0.135). There were no differences of the EPDS and the DAS between the groups. The temperament of the preterm infants was similar to the term infants. For both groups, scores on the EPDS, DAS and the STSI were independent predictors of Total Stress scores on multiple regression analysis. Parenting stress in mothers of preterm infants during early infancy does not appear to be greater than that in mothers of infants born at term. For both groups of mothers, depression symptoms, marital satisfaction and infant temperament were independent risk factors for high levels of parenting stress.
Mothers' and fathers' roles in caring for an adult child with an intellectual disability
Publisher: Informa UK Limited
Date: 09-2011
A Lasting Legacy
Publisher: Informa UK Limited
Date: 22-11-2008
Effectiveness of support services for children and young people with challenging behaviours related to or secondary to disability, who are in out-of-home care: A systematic review
Publisher: Elsevier BV
Date: 04-2012
Constrained labour: Maternal employment when children have disabilities
Publisher: Wiley
Date: 15-11-2007
Paid employment of mothers and fathers of an adult child with multiple disabilities
Publisher: Wiley
Date: 02-2002
DOI: 10.1046/J.1365-2788.2002.00383.X
Abstract: Paid employment is increasingly undertaken by mothers as their children age, with the majority of women being in employment by the time their offspring are adult. Opportunities to engage in employment appear to be reduced for mothers of children with disabilities however, little is known about the employment of mothers or fathers of adults with disabilities. Data were collected regarding the employment decisions of parents of a young adult with multiple disabilities and contrasted with those of parents whose children were all developing normally. Twenty-five mothers and 12 fathers of a young adult with multiple disabilities were interviewed, as were 25 comparison mothers and 19 comparison fathers. Data collected included hours of work, reasons for employment status, attitudes towards work and child care, and psychological well-being. Clear differences were found between the two groups. Mothers and fathers of a child with multiple disabilities showed different engagement patterns with the paid workforce from comparison parents. Hours of work for fathers of a young adult with multiple disabilities showed a bi-modal distribution, with some fathers working fewer hours than usual and others working very long hours. For mothers in both groups, the number of hours in paid employment was negatively associated with reports of psychological problems. Increased attention needs to be given to the employment opportunities of parents of children with disabilities since employment appears to play a protective role for mothers, in particular. Services provided to adults with disabilities will need to change if parents are to have the same life chances as parents without adult offspring with a disability.
Self-regulatory behaviors in children with Down syndrome and typically developing children measured using the Goodman Lock Box
Publisher: Elsevier BV
Date: 03-2003
DOI: 10.1016/S0891-4222(03)00012-X
Abstract: Self-regulation has been identified as an area of difficulty for those with mental retardation. The Goodman Lock Box provides measures of two critical aspects of self-regulation-planfulness and maintenance of goal-directed behavior. In this study, the Lock Box performance of 25 children with Down syndrome was compared with that of 43 typically developing children, matched for mental age (24-36 months). Children in both groups showed similar levels of competence, planfulness and distractibility. However, children with Down syndrome displayed more task-avoidant behavior. Some issues related to the measurements obtained from the Lock Box are raised.
Corrigendum to “Preparation of MnZn ferrite nanoparticles from chemical sol–gel combustion method and the magnetic properties after sintering” [J. Non-Cryst. Solids 353/44–46 (2007) 4170–4173]
Publisher: Elsevier BV
Date: 06-2010
Loneliness and life satisfaction of boys with developmental coordination disorder: The impact of leisure participation and perceived freedom in leisure
Publisher: Elsevier BV
Date: 04-2008
DOI: 10.1016/J.HUMOV.2008.02.004
Abstract: A theoretical model linking motor ability with perceived freedom in leisure, participation in team sports, loneliness, and global life satisfaction was tested using linear confirmatory path analysis. Participants were 173 boys aged 10-13 years who filled in self-report questionnaires about perceived freedom in leisure, loneliness, and global life satisfaction. Parents of boys completed 7-day diaries and 12-month retrospective recall questionnaires about their son's leisure-time activity participation. Results of path analyses confirmed that the fit of the hypothetical model was consistent with predictions. The inferred direct pathways of influence between both total loneliness and global life satisfaction on motor ability were in the expected directions (i.e., inverse and positive relationships, respectively). Perceived Freedom in Leisure (PFL) and participation in team sports were two intermediate variables indirectly influencing these relationships. Although PFL was identified as a motivational process influencing participation levels in team sports it was noted that other psychological and environmental factors must also be considered when evaluating child-activity-environment fit for boys with developmental coordination disorder.
The development of research skills in young adults with intellectual disability in participatory research
Publisher: Informa UK Limited
Date: 14-05-2015
Contribution of occupational therapists in positive behaviour support
Publisher: Wiley
Date: 25-10-2012
DOI: 10.1111/J.1440-1630.2012.01036.X
Abstract: Positive behaviour support employs specific strategies which aim to both reduce the incidence of behaviours of concern and enhance the quality of life of people with intellectual disabilities. This study aims to identify activities and experiences of occupational therapists working in behaviour support contexts to understand how they see their contributions in this area. Semi-structured interviews were undertaken with 10 occupational therapists who have provided behaviour support for people with intellectual disabilities. Audio recordings were transcribed verbatim and thematically analysed. Three major themes emerged from the interview data: contextualising and understanding behaviour occupational therapy - why and how? and 'challenges, strengths and expanding horizons'. Participants saw themselves as providing an occupational perspective in the delivery of behaviour support, to in iduals with behaviour support needs. They highlighted that this was achieved utilising their skills and knowledge about positive behaviour support strategies. Their approaches were seen as drawing on: their understanding of neurological function and how it relates to a person's occupational engagement combining occupationally focussed approaches with behavioural analysis methodology to guide practice and advocating for person-centred interventions. These observations form the basis for exploring ways in which occupational therapists can advance their contributions in positive behaviour support settings.
Factor structure of the Parenting Sense of Competence scale using a normative sample
Publisher: Wiley
Date: 29-12-2009
DOI: 10.1111/J.1365-2214.2008.00867.X
Abstract: The Parenting Sense of Competence (PSOC) scale is a commonly used measure of parental self-efficacy. Previous investigations of the factor structure of this instrument have been unsatisfactory and there is no adequate normative group against which at-risk groups can be compared. A non-clinical s le of 586 mothers and 615 fathers completed the PSOC. Factor analysis produced three acceptable factors (Satisfaction, Efficacy, Interest) that accounted for 47.3% and 50.1% of the variance for mothers and fathers respectively. Mothers reported higher efficacy than fathers, and fathers reported greater satisfaction with the parenting role than did mothers. The PSOC contains three useful factors that reflect satisfaction with the parental role, parenting efficacy and interest in parenting. The paper provides normative data against which at-risk groups can be compared.
The Impact of Teacher Attributes on Intentions to Practice Inclusive Education in Secondary Schools in Ghana
Publisher: Informa UK Limited
Date: 24-02-2022
Parenting Style and Parent–Child Relationship: A Comparative Study of Indonesian Parents of Children with and without Autism Spectrum Disorder (ASD)
Publisher: Springer Science and Business Media LLC
Date: 20-07-2017
Measures of Parent Satisfaction with Early Intervention Services for Children with Physical Disabilities: A Systematic Review
Publisher: Informa UK Limited
Date: 07-2011
National disability insurance scheme: is it creating an ordinary life for adults with intellectual disability?
Publisher: Informa UK Limited
Date: 20-04-2023
Maternal support for autonomy: Relationships with persistence for children with Down syndrome and typically developing children
Publisher: Elsevier BV
Date: 09-2009
DOI: 10.1016/J.RIDD.2009.02.005
Abstract: Maternal behaviors and child mastery behaviors were examined in 25 children with Down syndrome and 43 typically developing children matched for mental age (24-36 months). During a shared problem-solving task, there were no group differences in maternal directiveness or support for autonomy, and mothers in the two groups used similar verbal strategies when helping their child. There were also no group differences in child mastery behaviors, measured as persistence with two optimally challenging tasks. However, the two groups differed in the relationships of maternal style with child persistence. Children with Down syndrome whose mothers were more supportive of their autonomy in the shared task displayed greater persistence when working independently on a challenging puzzle, while children of highly directive mothers displayed lower levels of persistence. For typically developing children, persistence was unrelated to maternal style, suggesting that mother behaviors may have different causes or consequences in the two groups.
School readiness and factors that influence decision making
Publisher: Wiley
Date: 11-2004
DOI: 10.1002/OTI.211
Abstract: Occupational therapists are frequently asked to make recommendations regarding a child's school readiness. The primary objective of this study was to investigate the factors that influence the decision making of parents and teachers regarding this issue. The home environments and developmental status of 215 preschool children (age: M = 62.2 months, SD = 4.65) were assessed. Parents and teachers completed questionnaires about each child's behaviour, temperament, and readiness for school. Their perceptions were analysed separately. Results showed that chronological age, and the presence of adaptability, well-developed social skills, and the ability to persist with an activity until completed influenced parents' as well as teachers' perceptions of school readiness. In addition, teachers' decisions were influenced by gender (girls were perceived as being more ready for school than boys), and the presence of the temperament characteristic of inhibition (withdrawn, shy behaviours). These results indicated that factors other than a child's developmental status influenced parental and teacher decision making, challenging occupational therapists to adopt a broader focus when consulting with parents and teachers about school readiness. Limitations of the study included the self-selected s le resulting in potential bias owing to the over-representation of families from higher socioeconomic backgrounds. It is suggested that future research take the form of a matched pairs design, and focus on a comparison between a population of children perceived to be ready to progress to school and a group perceived not to be ready.
The National Disability Insurance Scheme: voices of adults with intellectual disabilities
Publisher: Informa UK Limited
Date: 02-01-2022
Choosing a school: parental decision-making when special schools are an option
Publisher: Informa UK Limited
Date: 21-10-2015
Observational Assessment and Maternal Reports of Motivation in Children and Adolescents With Down Syndrome
Publisher: No publisher found
Date: 2011
DOI: 10.1352/1944-7558-116.2.153
Abstract: Despite a lack of consistent empirical evidence, there has been an ongoing assumption that intellectual disability is associated with reduced levels of motivation. The participants in this study were 33 children with Down syndrome ages 10-15 years and 33 typically developing 3-8-year-old children. Motivation was measured through observational assessments of curiosity, preference for challenge, and persistence, as well as maternal reports. There were no significant group differences on motivation tasks, but mothers of children with Down syndrome rated their children significantly lower on motivation than did parents of typically developing children. There were some intriguing group differences in the pattern of correlations among observations and parent reports. The findings challenge long-held views that in iduals with intellectual disability are invariably deficient in motivation.
A longitudinal study of motivation and competence in children with Down syndrome: early childhood to early adolescence
Publisher: Wiley
Date: 14-04-2009
DOI: 10.1111/J.1365-2788.2009.01166.X
Abstract: Motivation has been identified as an area of difficulty for children with Down syndrome. Although in idual differences in mastery motivation are presumed to have implications for subsequent competence, few longitudinal studies have addressed the stability of motivation and the predictive validity of early measures for later academic achievement, especially in atypical populations. The participants were 25 children with Down syndrome. Mastery motivation, operationalized as persistence, was measured in early childhood and adolescence using tasks and parent report. At the older age, preference for challenge, another aspect of mastery motivation, was also measured and the children completed assessments of academic competence. There were significant concurrent correlations among measures of persistence at both ages, and early task persistence was associated with later persistence. Persistence in early childhood was related to academic competence in adolescence, even when the effects of cognitive ability at the younger age were controlled. For children with Down syndrome, persistence appears to be an in idual characteristic that is relatively stable from early childhood to early adolescence. The finding that early mastery motivation is significant for later achievement has important implications for the focus of early interventions.
Trajectories of Development of Receptive Vocabulary in Individuals with Down Syndrome
Publisher: Wiley
Date: 21-04-2016
DOI: 10.1111/JPPI.12151
Authoritative Parenting of Chinese Mothers of Children with and without Intellectual Disability
Publisher: Springer Science and Business Media LLC
Date: 02-12-2017
Adjustment of chldren who have a sibling with Down syndrome: perspectives of mothers, fathers and children
Publisher: Wiley
Date: 07-11-2006
DOI: 10.1111/J.1365-2788.2006.00922.X
Abstract: A number of methodological weaknesses have contributed to our relatively poor understanding of the impact on children of having a brother or sister with a disability. These include a focus on poor adjustment, using multidiagnostic groups, inadequate matching, and a failure to consider the perspectives of children and parents together. This study compared the adjustment of 53 siblings of a child with Down syndrome with a comparison group of siblings of children who were developing typically. Children were matched on a case-by-case basis for gender, age and position in family. Families were matched for family size and father's occupation. The age range of the target siblings was 7-14 years. Data were gathered from mothers, fathers and siblings. There were no significant differences between the groups on adjustment measures. These included parent perceptions of externalizing and internalizing behaviours, parent perceptions of sibling competence, and sibling perceptions of their own competence and self-worth. Associations between measures of adjustment and child reports of their contribution to household functioning depended on sex rather than group membership. There was an association between parental reports of externalizing behaviour and sibling relationships with the brother/sister closest in age. Having a brother or sister with Down syndrome does not inevitably lead to poor adjustment. Examination of within-family processes would appear to be more useful in identifying children at risk than merely group membership.
Adjustment, sibling problems and coping strategies of brothers and sisters of children with autistic spectrum disorder
Publisher: Informa UK Limited
Date: 06-2006
DOI: 10.1080/13668250600710864
Abstract: Siblings of children with autistic spectrum disorder (ASD) express more problem behaviours and experience more difficulties in their relationships than do children in families where all children are developing typically. We know little about what contributes to these difficulties. Mothers of a child with ASD completed the Child Behavior Checklist (Achenbach, 1991) with respect to a non-disabled sibling. Siblings responded to a questionnaire tapping their knowledge about their brother or sister's disorder. They reported on problems they had experienced with their brother or sister with ASD and on the coping strategies they had used in response to these events. Problems were classified into 1 of 5 problem types. Aggressive behaviour was the most commonly reported interaction problem and anger was the usual response. Siblings did not generally choose blaming (either self or other) as a coping strategy when facing difficulties with their brother or sister with ASD. Neither coping strategies nor knowledge of ASD were associated with adjustment. Forty percent of non-disabled siblings had scores on the Child Behavior Checklist that placed them in the borderline or clinical range. The current study indicated that siblings of children with ASD are at increased risk of developing internalising behaviour problems. The contributing factors to this outcome are unknown at this point. It is important for research to focus on dynamic variables in the search for these contributors, as they are open to change.
Engaging with National Disability Insurance Scheme Planning: perspectives of parents of an adult with intellectual disability
Publisher: Informa UK Limited
Date: 16-10-2020
Predictors of stress in mothers and fathers of children with fragile X syndrome
Publisher: Elsevier BV
Date: 11-2006
DOI: 10.1016/J.RIDD.2005.10.002
Abstract: This study examined parental and family stress and functioning where there is a child with fragile X syndrome. Mothers and fathers in 40 families were asked about their child with fragile X syndrome, family supports, their psychological stress, the marital relationship, and their family stress. Results indicate parents were well adjusted in terms of their levels of psychological stress and in their marital relationships, however, parents reported high levels of family stress. Mothers and fathers were found to experience similar levels of stress and to report similar levels of satisfaction with supports. Stress was predicted by different variables in mothers and fathers, suggesting that different processes underlie their experiences. The strongest predictor of maternal stress was the level of marital satisfaction while the strongest predictor of paternal stress was the level of the child's adaptive skills.
Educational psychology: Establishing a role
Publisher: Informa UK Limited
Date: 12-1998
Parenting and employment decisions of parents with a preschool child with a disability
Publisher: Informa UK Limited
Date: 1998
Contributors to adult sibling relationships and intention to care of siblings of individuals with Down syndrome
Publisher: American Association on Intellectual and Developmental Disabilities (AAIDD)
Date: 05-2016
DOI: 10.1352/1944-7558-121.3.204
Abstract: The contribution of childhood sibling relationships to adult sibling relationships and intention to provide care was investigated in a s le in which one member of each dyad had Down syndrome. Thirty-nine adult siblings of an adult with Down syndrome who had participated in a study of sibling relationships in childhood/adolescence provided data about the quality of current relationships and of their intention to provide care for their brother/sister with Down syndrome in the future. Only behavior problems in the child with Down syndrome predicted warmth of the current adult relationship. Although adult sibling relationships were reported to be warm, the quality of neither the current nor the past relationship was associated with the reported intention to provide care.
Parenting stress in mothers of very preterm infants - Influence of development, temperament and maternal depression
Publisher: Elsevier BV
Date: 09-2013
DOI: 10.1016/J.EARLHUMDEV.2013.04.005
Abstract: To measure levels of parenting stress and postnatal depression in mothers of very preterm infants in comparison with mothers of infants born at term is the objective of this study. The study also aimed to explore factors associated with parenting stress in the mothers of the preterm infants. One hundred and five mothers who delivered 124 babies at ≤30 weeks gestation were enrolled together with 105 term mothers who delivered 120 babies. At one year of age (corrected for prematurity for the preterm cohort), the mothers completed the Parenting Stress Index Short Form (PSI), the Edinburgh Postnatal Depression Scale (EPDS) and the Short Temperament Scale for Toddlers. The infants had neurodevelopmental assessment. The preterm and term groups were compared. Questionnaires were completed by 101 of the preterm mothers and 98 of the term mothers. The mean PSI Total Stress score was significantly higher for the preterm mothers (70.28 vs 64.52, p = 0.022), with 19% of the preterm group and 9% of the term group having high scores (p = 0.038).There was no group difference on the EPDS or measures of temperament, with disability being greater in the preterm infants. For the preterm group, maternal depression and infant temperament were independent predictors of Total Stress scores on multivariate analysis. Parenting stress in mothers of preterm infants at one year of age is significantly greater than that found in mothers of term infants. For preterm mothers, symptoms of depression and infant temperament are independent risk factors for higher levels of parenting stress.
Leisure time physical activity energy expenditure in boys with developmental coordination disorder: The role of peer relations self-concept perceptions
Publisher: SAGE Publications
Date: 2008
DOI: 10.3928/15394492-20080101-05
Abstract: An integral aspect of occupational therapy practice is the facilitation of active participation in health-enhancing leisure for all in iduals. Boys with developmental coordination disorder (DCD) are at risk of limited participation in recreational physical activities, which has implications for physical health associated with low energy expenditure. Therefore, identification of mechanisms influencing relationships between physical coordination ability and physical activity energy expenditure is warranted. Self-concept perceptions were investigated as potential mechanisms influencing energy expenditure during the out-of-school hours for boys with DCD. Participants were 60 boys with DCD and 113 boys without DCD between 10 and 13 years of age who were assessed by the Self-Description Questionnaire-I and the Movement Assessment Battery for Children. Parents completed 7-day diaries that were used to record intensity, duration, content, and social and physical context of leisure time activities. Boys with DCD were found to have lower mean scores than boys without DCD for energy expenditure and self-concept appraisals of physical ability and physical appearance, peer relations and parent relations, and general self-concepts. The peer relations self-concept was identified as a significant mechanism mediating the relationship between physical coordination ability and low energy expenditure. The clinical significance of the peer relations self-concept as a change mechanism influencing the negative relationship between physical coordination ability and sedentary behavior is discussed.
School Counsellors and Young People in Care
Publisher: Cambridge University Press (CUP)
Date: 07-2006
Abstract: Protocols recently introduced by state education authorities require guidance and school counsellors to collaborate with other school personnel to develop In idual Education Support Plans for students in the care of the state. Of the more than 20,000 young people in care in Australia, the majority are in foster home placements due to previous maltreatment or neglect by their parents. Young people in care are a erse, vulnerable and, at times, challenging cohort of students who typically have academic, psychological, behavioural, social, and friendship difficulties — and for some, ongoing mental health issues. This article reviews the characteristics allied with young people in care as well as procedures and strategies school counsellors can consider that facilitate more positive outcomes for these students.
Challenges for the National Disability Insurance Scheme in regional, rural, and remote areas. Reflections on “Connecting Tasmanian National Disability Insurance Scheme participants with allied health services: challenges and strategies of support coordinators” (Jessup & Bridgman, 2021)
Publisher: Informa UK Limited
Date: 31-03-2022
Self-regulation in Children Born With Extremely Low Birth Weight at 2 Years Old A Comparison Study
Publisher: Ovid Technologies (Wolters Kluwer Health)
Date: 04-2012
Associations of child & adolescent mastery motivation & self-regulation with adult outcomes: A longitudinal study of individualswith down syndrome
Publisher: American Association on Intellectual and Developmental Disabilities (AAIDD)
Date: 05-2017
DOI: 10.1352/1944-7558-122.3.235
Abstract: This 20-year prospective longitudinal study focuses on the contribution of mastery motivation and self-regulation to adult outcomes for in iduals with Down syndrome. In earlier phases of the research, 25 participants completed measures of cognitive ability, mastery motivation and self-regulation in childhood (4 to 6 years) and adolescence (11 to 15 years). In the adult phase reported here, self-determination and adaptive behavior were assessed in 21 of the original participants at age 23 to 26 years. Mastery motivation and self-regulation made unique contributions to adult outcomes, over and above the effects of cognitive ability. The findings provide powerful evidence about the important role of child and adolescent mastery motivation and self-regulation for the adult lives of in iduals with Down syndrome.
Behavioural problems in children with Down's syndrome and their siblings
Publisher: Wiley
Date: 05-1992
DOI: 10.1111/J.1469-7610.1992.TB00910.X
Abstract: Reports of problem behaviour in children with Down's syndrome and their siblings were gathered from mothers, fathers and teachers. Twenty-one sibling pairs were included in the study. The Revised Behavior Problem Checklist (Quay & Peterson, 1983) was used to gather information on total problem behaviour and on five specific problem areas. Children with Down's syndrome were reported to display more problem behaviours overall and to show significantly more attentional problems than their siblings by all rater groups. Sisters of children with Down's syndrome were reported to be more conduct disordered than were brothers by mothers, fathers and teachers. Measures of depression and marital satisfaction found both parent groups to be in the non-distressed range on these instruments. Depression contributed significantly to both parents' reports of problems in the siblings while marital satisfaction was important for mothers' reports of problems in children with Down's syndrome.
Sustainable caregiving? demands upon and resources of female carers of adults with intellectual disability
Publisher: Informa UK Limited
Date: 19-04-2011
DOI: 10.1080/08952841.2011.561141
Abstract: Female carers of adults with an intellectual disability are increasing in our communities as those with intellectual disability live into middle and old age. Twenty-seven carers between the ages of 45 and 85 years responded to questionnaires about demands, resources, and their health. Almost all were in the clinical range on the measure of psychological functioning. Demands contributed significantly to poorer functioning however, other measures did not. The women in this study appeared to underreport the level of difficulties they experienced. The caregiving role undertaken by these women does not appear to be sustainable under their current circumstances.
Commentary on Improving policy and practice: Adults with intellectual disability and their families (Fyffe, Pierce, Ilsley, & Paul, 2015)
Publisher: Informa UK Limited
Date: 02-01-2015
A Mental Age-Matched Comparison Study of Delay of Gratification in Children with Down Syndrome
Publisher: Informa UK Limited
Date: 09-2003
Readers' responsibilities
Publisher: Informa UK Limited
Date: 23-02-2009
The Parenting Sense of Competence scale: Updating a classic
Publisher: Wiley
Date: 09-10-2023
DOI: 10.1111/CCH.13173
Young people's perceptions of family, peer, and school connectedness and their impact on adjustment
Publisher: No publisher found
Date: 2013
DOI: 10.1017/JGC.2012.19
Educating teachers about asthma
Publisher: Informa UK Limited
Date: 1994
DOI: 10.3109/02770909409089474
Abstract: The objectives of this project were to investigate teachers' knowledge of asthma and to evaluate the effectiveness of an information session similar to the asthma programs for schools developed and offered by an organization charged with educating the community about asthma. A questionnaire consisting of 24 multiple-choice questions on asthma and its management was created for this project. There were no significant differences in knowledge of asthma between teachers who attended an information session about asthma and teachers who did not. Teachers with asthma had more knowledge of asthma than nonasthmatic teachers, but knowing someone with asthma made no significant difference to teachers' knowledge. There were no significant differences between teachers who had or had not received training in asthma from some other source prior to our intervention. Ninety-three percent of teachers indicated they wanted more information on asthma prior to the intervention session. Seventy-nine percent of teachers wanted further information after the intervention session. Methods of improving the effectiveness of the transmission of information concerning asthma and its management are explored.
Down Syndrome Across the Life Span
Publisher: Wiley
Date: 12-2008
Developmental Dyscalculia and Down Syndrome: Indicative Evidence
Publisher: Informa UK Limited
Date: 07-02-2019
General self-concept and life satisfaction for boys with differing levels of physical coordination: The role of goal orientations and leisure participation
Publisher: Elsevier BV
Date: 12-2006
DOI: 10.1016/J.HUMOV.2006.05.003
Abstract: Participation in leisure-time activities, self-concept perceptions and in idual dispositional goal orientations were examined as mediators of relationships between physical coordination and self-evaluations of life satisfaction and general self-concept for 173 boys aged 10-13 years. Participants completed seven-day activity diaries and 12-month retrospective recall questionnaires recording participation in leisure-time activities. Self-report measures of self-concept, global life satisfaction and dispositional goal orientations were also completed. Results showed that boys with moderate to severe physical coordination difficulties had significantly lower self-concept perceptions of physical ability and appearance, peer and parent relations and general self-concept, as well as lower life satisfaction than boys with medium to high levels of physical coordination. The relationships between boys' physical coordination and their self-perceptions of life satisfaction and general self-concept were significantly influenced by in idual self-concept appraisals of physical ability and appearance, peer and parent relations. Adopting task-oriented goals was found to positively change the relationship between physical coordination and both general self-concept and life satisfaction. Team sport participation positively mediated the relationship between physical coordination and life satisfaction. The potential for team sport participation and adoption of task-oriented goals to influence life satisfaction for boys with differing levels of physical coordination was discussed.
Multiple Perspectives of Family Life
Publisher: Wiley
Date: 12-2008
Mapping the evidence-based research on Ghana’s inclusive education to policy and practices: a scoping review
Publisher: Informa UK Limited
Date: 02-04-2021
Perceived freedom in leisure and physical co-ordination ability: Impact on out-of-school activity participation and life satisfaction
Publisher: Wiley
Date: 19-01-2007
DOI: 10.1111/J.1365-2214.2007.00730.X
Abstract: Perceived freedom in leisure (PFL) is explored as a potential mechanism mediating relationships between physical co-ordination ability and both global life satisfaction and leisure-time physical activity participation for boys with differing levels of physical co-ordination ability. Understanding psychological mechanisms contributing to low rates of participation in physical activities for boys with developmental co-ordination disorder (DCD) is a clinical and research priority with potential to inform clinical interventions and preventive health initiatives. Sixty boys aged 10-13 years with DCD and 113 boys without DCD completed self-report measures of PFL and life satisfaction. Seven-day leisure-time activity diaries and 12-month retrospective recall questionnaires were completed by parents. Lower self-appraisals of PFL and overall life satisfaction were found for boys with DCD compared with boys without DCD. PFL mediated relationships between physical ability and both life satisfaction and team sport participation. Perceived freedom in leisure, comprising self-appraisals of leisure needs satisfaction and competence, depth of involvement and perceived control over leisure outcomes, was a significant mechanism influencing leisure-time participation and life satisfaction for boys. The implications for effective intervention and preventive health programmes are discussed.
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