ORCID Profile
0000-0003-2632-5383
Current Organisation
Central Queensland University
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Publisher: Springer Science and Business Media LLC
Date: 23-03-2017
Publisher: Public Library of Science (PLoS)
Date: 13-06-2022
DOI: 10.1371/JOURNAL.PONE.0269337
Abstract: People living with complex regional pain syndrome (CRPS), a rare chronic pain disorder, must become experts in their own self-management. Listening to the voice of the patient is often advocated in the pain literature. However, the patient’s option is rarely asked for or considered by clinicians, even when they live with a condition that health professionals have rarely heard of. To explore what people living with complex regional pain syndrome (CRPS) think health professionals should know about their condition to provide appropriate care. A heuristic, hermeneutic phenomenological study was conducted asking people about their experiences living with CRPS. This paper reports on the findings of an additional question asked of all participants. Seventeen people living with complex regional pain syndrome were interviewed. Overwhelmingly, participants felt that health professionals do not know enough about CRPS, or chronic pain and believe their health outcomes are affected by this lack of knowledge. Sub-themes identified were don’t touch unless I say it is okay be patient with the patient/ it is important to develop a relationship educate yourself and educate the patient choose your words carefully and refer to others as needed. An additional theme, it is very hard to describe CRPS was also identified. Including patients as a member of the healthcare team is recommended to help people take control and self-manage their pain. For true patient centered care to be achieved, health professionals must accept and respect patients’ descriptions of pain and their pain experience. This may require additional health professional education at both undergraduate and post-graduate levels in pain and communication to increase their bedside manner and therapeutic communication to deliver care in partnership with the patient.
Publisher: Elsevier BV
Date: 2022
DOI: 10.1016/J.NEDT.2021.105169
Abstract: To discover if nursing students have improved their level of pain knowledge and their attitudes towards pain management over the last 20 years. Systematic review utilising the Kable, Pich, and Maslin-Prothero 12 step approach to document a search strategy. A search was conducted from 2000 to 2020 using CINAHL, PubMed, Embase and ProQuest. Studies exploring the level of pain management knowledge and attitudes of nursing students were included. The Critical Review Form - Quantitative Studies provided the appraisal framework (Law et al., 1998). A narrative synthesis of eligible studies was undertaken. Six studies with a total of 1454 participants were included. The studies demonstrated that nursing students have not improved their level of pain knowledge and attitudes towards pain management in the last 20 years. Whilst many nursing students thought they possessed adequate pain knowledge, the studies all demonstrated that their pain knowledge is lacking and that they do not have appropriate attitudes towards pain. Students did not recognise the patient who was not grimacing as being in pain despite the patient report of pain. These findings support the notion that nursing education does not include sufficient focus on pain identification and management. Alignment of nursing pain education with the curriculum developed in 1993 by the International Association for the Study of Pain is needed to ensure nurses have appropriate knowledge so that patients can receive effective pain management.
Publisher: Elsevier BV
Date: 09-2021
DOI: 10.1016/J.JPAIN.2021.03.151
Abstract: Complex regional pain syndrome (CRPS) has never comprehensively been examined from a lived experience perspective. Patients generally have a poorer quality of life than people with other chronic pain conditions. This study aimed to understand the essence of living with CRPS. Data were collected from 17 patients via in-depth interviews. Hermeneutic discussions with four health professionals generated deeper insights. Internet blogs and a book containing patient stories were included for theme verification and triangulation. CRPS is seen as a war-like experience and five themes were identified within the battle: "dealing with the unknown enemy", "building an armoury against a moving target", "battles within the war", "developing battle plans with allies" and "warrior or prisoner of war". Patients live with a chronic pain condition and experience problems unique to CRPS such as fear of pain extending to other parts of their body. Use of the model generated by this research may assist patient/clinician interactions and guide therapeutic discussions. Support for people living with CRPS does not always exist, and some healthcare professionals require additional education about the condition. Better health outcomes are experienced by patients when their personal situation and experiences are heard and understood by health care professionals. PERSPECTIVE: This article presents the lived experience of CRPS. This information and the model generated can help clinicians to better understand their patients and deliver appropriate patient-centered care.
Publisher: Wiley
Date: 03-04-2018
DOI: 10.1111/AJAG.12526
Abstract: This article describes the Care coordination through Emergency Department, Residential Aged Care and Primary Health Collaboration (CEDRiC) project. CEDRiC is designed to improve the health outcomes for older people with an acute illness. It attempts this via enhanced primary care in residential aged care facilities, focused and streamlined care in the emergency department and enhanced intersectoral communication and referral. Implementing this approach has the potential to decrease inappropriate hospital admissions while improving care for older people in residential aged care and community settings. This article discusses an innovative way of caring for older adults in an ageing population utilising the existing evidence. A formal evaluation is currently underway.
Publisher: Elsevier BV
Date: 06-2020
Publisher: Walter de Gruyter GmbH
Date: 10-2015
DOI: 10.1016/J.SJPAIN.2015.06.003
Abstract: Pain is known to be a subjective experience yet the majority of pain related research does not address the lived experience of the condition. Difficult to diagnose, Complex Regional Pain Syndrome (CRPS) is often poorly managed. The aim of this paper was to identify and synthesise the currently available literature on experiences of living with chronic pain in order to understand where and how CRPS research may be best situated in the future. A narrative review was performed and ProQuest, EBSCO, Informit, Scopus/Science Direct and Web of Science, Medline, CINHAL and Google Scholar were searched in order to identify the literature from 1998 until 2015. 301 papers were identified of which 197 described the lived experience of chronic pain conditions. 12 papers were examined closely to determine the experience of living with CRPS or a similar chronic pain condition that does not have a definite pain origin such as cancer or endometriosis. Known understandings of pain were identified and a model was developed depicting the lived experience of chronic pain starting with loss of the former healthy, pain free self and culminating in acceptance of the condition. Major themes identified were disbelief/invisibility of pain, loss, coping with a non-compliant/constant painful body, self-management and alleviating pain/treatment. The review also found that there is no peer-reviewed published literature on the lived experience of CRPS. Little is known about the lived experience of CRPS. There appears to be a clear indication that research needs to be conducted into CRPS from a lived experience perspective in order to provide information to patients, the general public, health practitioners and policy makers of previously unknown characteristics of this condition which may improve health outcomes for this patient cohort. It has been identified that patients and their families should be active participants in education of health practitioners and in providing information to inform the development of National Pain Strategies currently being devised throughout the world. Research into the lived experience of chronic pain conditions, and CRPS in particular, can help to provide information to enhance understanding enabling national pain strategies and future treatment guidelines strategies to be devised appropriately.
Publisher: Informa UK Limited
Date: 29-09-2023
Publisher: Wiley
Date: 29-11-2017
DOI: 10.1111/JAN.13198
Abstract: This paper summarizes phenomenology and discusses how nurses can use their own experiences as data and maintain rigour within the method. It explores how data from researchers experiencing the phenomenon of interest could be used to explicate assumptions and pre-understandings and may also be used as data. While the ethnographic concept of insider research has gained popularity, the notion of researcher as participant in phenomenology is relatively new. The lived experience of a phenomenon is unique to each person and utilization of the nurse researcher's experiences of the phenomenon should be considered for inclusion as data. Discussion paper. Articles from 2001 - 2015 in the CINAHL and PubMed databases were identified using keywords such as 'insider research', 'phenomenology', 'bracketing' and 'qualitative research'. In addition, reference lists from articles used were examined to identify additional literature. Phenomenology is a valuable research method. Usability, credibility, trustworthiness and auditability of data collected must be considered to ensure rigour and maintain orientation to the phenomenon under investigation. Nurse researchers may be interviewed as participants if these four principles are considered and methods used are made explicit. Utilizing appropriate research methods are as important as getting clinical practice correct to advance knowledge and benefit those under our care. We recommend using the researchers' experience as a data source to gain a complete picture of the phenomenon under investigation. Using the approach proposed here, nurses can ensure they are incorporating all data sources available while maintaining research rigour.
Publisher: Elsevier BV
Date: 03-2021
Publisher: Wiley
Date: 13-07-2018
DOI: 10.1111/HIV.12532
Abstract: The Maraviroc Switch (MARCH) study week 48 data demonstrated that maraviroc, a chemokine receptor-5 (CCR5) inhibitor, was a safe and effective switch for the ritonavir-boosted protease inhibitor (PI/r) component of a two nucleos(t)ide reverse transcriptase inhibitor [N(t)RTI] plus PI/r-based antiretroviral regimen in patients with R5-tropic virus. Here we report the durability of this finding. MARCH, an international, multicentre, randomized, 96-week open-label switch study, enrolled HIV-1-infected adults with R5-tropic virus who were stable (> 24 weeks) and virologically suppressed [plasma viral load (pVL) < 50 HIV-1 RNA copies/mL]. Participants were randomized to continue their current PI/r-based regimen (PI/r) or to switch to MVC plus two N(t)RTIs (MVC) (1:2 randomization). The primary endpoint was the difference in the proportion with pVL < 200 copies/mL at 96 weeks. The switch arm was defined as noninferior if the lower limit of the 95% confidence interval (CI) for the difference was < -12% in the intention-to-treat (ITT) population. Safety endpoints (the difference in the mean change from baseline or a comparison of proportions) were analysed as key secondary endpoints. Eighty-two (PI/r) and 156 (MVC) participants were randomized and included in the ITT analysis 71 (87%) and 130 (83%) were in follow-up and on therapy at week 96. At week 96, 89.0% and 90.4% in the PI/r and MVC arms, respectively, had pVL < 50 copies/mL (95% CI -6.6, 10.2). Moreover, in those switching away from PI/r, there were significant reductions in mean total cholesterol (differences 0.31 mmol/L P = 0.02) and triglycerides (difference 0.44 mmol/L P < 0.001). Changes in CD4 T-cell count, renal function, and serious and nonserious adverse events were similar in the two arms. MVC as a switch for a PI/r is safe and effective at maintaining virological suppression while having significant lipid benefits over 96 weeks.
Publisher: Oxford University Press (OUP)
Date: 05-04-2016
DOI: 10.1093/CID/CIW207
Publisher: Informa UK Limited
Date: 02-2023
Publisher: Springer Science and Business Media LLC
Date: 12-2018
No related grants have been discovered for Colleen Johnston-Devin.