ORCID Profile
0000-0003-3866-3224
Current Organisation
Deakin University Alfred Deakin Institute for Citizenship and Globalisation
Does something not look right? The information on this page has been harvested from data sources that may not be up to date. We continue to work with information providers to improve coverage and quality. To report an issue, use the Feedback Form.
Research Topics
In Research Link Australia (RLA), "Research Topics" refer to ANZSRC FOR and SEO codes. These topics are either sourced from ANZSRC FOR and SEO codes listed in researchers' related grants or generated by a large language model (LLM) based on their publications.
Top 5 Research Topics
ANZSRC Field of Research (FoR)
Social and Cultural Anthropology | Anthropology | Race and Ethnic Relations | Sociology and Social Studies of Science and Technology | Sociology | Aboriginal and Torres Strait Islander Cultural Studies | Studies of Aboriginal and Torres Strait Islander Society | Other Studies in Human Society | Biologically Active Molecules | Comparative and Cross-Cultural Education | Museum Studies
ANZSRC Socio-Economic Objective (SEO)
Expanding Knowledge through Studies of Human Society | Cultural Understanding not elsewhere classified | Understanding Australia's Past | Indigenous Health not elsewhere classified | Communication Across Languages and Culture |
Related Links
Publications
Data-sharing for indigenous peoples
Publisher: Springer Science and Business Media LLC
Date: 22-06-2017
DOI: 10.1038/546474A
Moving beyond good intentions: Indigenous participation in Aboriginal and Torres Strait Islander health research
Publisher: Elsevier BV
Date: 10-2005
DOI: 10.1111/J.1467-842X.2005.TB00228.X
Abstract: Indigenous participation in every aspect of health research is increasingly recognised as an important element of any research project that aims to improve Indigenous health. Despite the acceptance of its importance, when the concept of 'Indigenous participation' is mentioned, authors are often imprecise as to the nature and purpose of participation, and its relationship to improved health outcomes. This report attempts to bring some clarity to the variety of meanings we might give Indigenous participation in research. For the purposes of stimulating further debate, we identify four distinct, but overlapping, rationales: pragmatic, moral, interventionist, and epistemological. Each has different implications for how Indigenous participation should be implemented and evaluated. More debate on the meanings and purposes of Indigenous participation will contribute to a refined understanding of its potential benefits to health research.
Of Transgression, Purification and Indigenous Scholarship
Publisher: Informa UK Limited
Date: 09-2009
Culture, History, and Health in an Australian Aboriginal Community: The Case of Utopia
Publisher: Informa UK Limited
Date: 09-2012
DOI: 10.1080/01459740.2011.636411
Abstract: The poor health of Indigenous Australians is well established. However, the health of residents of one remote community in the Northern Territory of Australia called Utopia has been found recently to be much better than expected. In this article, we draw on historical anthropological research to explain this finding. We trace how cultural and social structures were maintained through changing eras of government policy from the 1930s, and show how these structures strengthened psychosocial determinants of health. We argue that the mainstream psychosocial determinants of social cohesion and self-efficacy are usefully reconceptualized in an Indigenous context as connectedness to culture and land, and collective efficacy, respectively. Continuity of cultural and social structures into the 1940s was facilitated by a combination of factors including the relatively late colonial occupation, the intercultural practices typical of the pastoral industry, the absence of a mission or government settlement, and the in idual personalities and histories of those connected to Utopia.
Time, indigeneity and white anti‐racism in Australia
Publisher: Wiley
Date: 29-01-2015
DOI: 10.1111/TAJA.12122
Putting Indigenous cultural training into nursing practice
Publisher: Informa UK Limited
Date: 2011
DOI: 10.5172/CONU.2011.37.1.010
Abstract: The provision of Indigenous cultural training for non-Indigenous health workers has been widely promoted as a method of improving health service provision to 'close the gap' in Indigenous health. However, in the absence of strong evidence, the power of Indigenous cultural training to meaningfully contribute to the health of Aboriginal and Torres Strait Islander peoples remains questionable. This research explored how six hospital-based nurses consider the role of Indigenous cultural training and the impact it has had on their practice through in idual semi-structured interviews. Thematic analysis revealed the significance of in idual professionals' attitudes in determining the impact of Indigenous cultural training, as well as the need for institutional support to assist in translating Indigenous cultural training into practice. Utilising post-colonial theory, two key findings emerge. First, the way in which Indigenous cultural training conceptualises 'identity' and 'culture' is critical to its ultimate outcomes. Second, deficits in institutional support limit the efficacy of Indigenous cultural training by placing the onus for institutional change on the shoulders of in idual health workers.
Orphan DNA: Indigenous samples, ethical biovalue and postcolonial science
Publisher: SAGE Publications
Date: 28-02-2013
Abstract: Thousands of blood s les taken from Australia’s indigenous people lie in institutional freezers of the global North, the legacy of a half-century of scientific research. Since those collections were assembled, standards of ethical research practice have changed dramatically, leaving some s les in a state of dormancy. While some European and American collections are still actively used for genetic research, this practice is viewed as unethical by most Australian genetic researchers, who have closer relationships with indigenous Australians and postcolonial politics. For collections to be used ethically, they require a ‘guardian’ who has an ongoing and documented relationship with the donors, so that consent to further studies on s les can be negotiated. This affective and bureaucratic network generates ‘ethical biovalue’ such that a research project can satisfy Australian ethical review. I propose in this article that without ethical biovalue, collections become ‘orphan’ DNA, orced from a guardian and often difficult to trace to their sources. Such s les are both orphaned and functionally sterile, unable to produce data, scientific articles, knowledge or prestige. This article draws on an ethnographic study of genetic researchers who are working in indigenous communities across Australia. I present tales of researchers’ efforts to generate ethical biovalue and their fears for succession fears that extend to threats to destroy s les rather than see them orphaned, or worse, fall into the wrong hands. Within these material and affective networks, indigenous DNA morphs from biological s le to sacred object to political time bomb.
Understanding the complexities of ethnic-racial socialization processes for both minority and majority groups: A 30-year systematic review
Publisher: Elsevier BV
Date: 11-2014
THE STIGMA OF WHITE PRIVILEGE
Publisher: Informa UK Limited
Date: 05-2011
How collections end: objects, meaning and loss in laboratories and museums
Publisher: Cambridge University Press (CUP)
Date: 2019
DOI: 10.1017/BJT.2019.8
Abstract: Collections are made and maintained for pleasure, for status, for nation or empire building, for cultural capital, as a substrate for knowledge production and for everything in between. In asking how collections end, we shift the focus from acquisition and growth to erosion, loss and decay, and expose the intellectual, material and curatorial labour required to maintain collections. In this introductory essay, we draw together insights from the history of science and from science and technology studies to investigate the dispersal, destruction, absorption, repurposing and repatriation of the erse scientific collections discussed in the papers that make up this issue of BJHS Themes , and many other collections besides. We develop a distinction first suggested by the curator and bibliographer John Willis Clark between ‘working’ collections of objects valued for the information they hold or produce, and ‘unique’ collections of objects valued for their historical singularity. We show that in many cases, the ‘end’ of an object or collection involves a shift in the dominant account of its cultural value from ‘working’ to ‘unique’ or vice versa. Moving between the laboratory, the museum and difficult-to-classify spaces in between, we argue that ‘ending’ is not anathema to ‘collecting’ but is always present as a threat, or as an everyday reality, or even as a necessary part of a collection's continued existence. A focus on ending draws attention not only to the complex internal dynamics and social contexts of collections, but also to their roles in producing scientific knowledge.
Researchers using environmental DNA must engage ethically with Indigenous communities
Publisher: Springer Science and Business Media LLC
Date: 12-11-2020
Biobank networking and globalisation: perspectives and practices of Australian biobanks
Publisher: CSIRO Publishing
Date: 20-11-2021
DOI: 10.1071/AH20063
Abstract: Objective This study examined the practices and attitudes of Australian biobanks regarding access to s les and data, as well as local and global networking with other biobanks. Methods This was a mixed-methods study, including an online survey of Australian biobank administrators and qualitative interviews with survey participants. The survey examined the criteria applied when considering requests to share or network. The interviews explored attitudes and practices regarding sharing and networking. Results Most (90.9% 30/33) biobanks offered access to their s les and data to others, principally for research (90.6% 29/32). The most common criteria used to evaluate access requests included ethical oversight (84.8% 28/33), scientific merit (84.8% 28/33) and intended use (81.8% 27/33). Just over two-thirds (69.7% 23/33) of biobanks participated in Australian networks, and 39.1% (9/23) participated in global networks. Networking took the form of both sharing standardised operating procedures and policies (60.9%) and sharing s les and data (43.5%). Thirteen of the 16 interviewees participated in networks. Motivations for sharing included scientific necessity, sharing expertise and standardising operations and governance. Significant barriers to networking remain, including insufficient resources, inconsistent regulations and procedures, and cultural and political issues to do with the conduct of research. Conclusions Many Australian biobanks are already active participants in various types of global biobanking. If biobanks are to expand and make the most of their involvement in global networks, then important barriers need to be overcome. What is known about the topic? Biobanks that store human tissue and associated data are increasingly forming local, national and global networks. These networks create opportunities for enhancing the utility and sustainability of biobanks, but also raise considerable technical, legal and ethical challenges. What does this paper add? This paper reports findings from a mixed-methods study of Australian biobanks and reveals contemporary practices and perspectives concerning s le and data sharing, as well as local and global networking. It found most Australian biobanks currently take part in these activities. What are the implications for practitioners? Many Australian biobanks are networking in various ways across regional and national borders. A better understanding of current practices and views on significant and emerging issues is relevant to the erse range of biobank stakeholders involved in any agenda to expand biobank networking, including patients, consumers, clinicians, scientists, policy makers and regulators.
The vulnerable object of Indigenous research ethics
Publisher: Wiley
Date: 12-2014
DOI: 10.1111/TAJA.12109_9
HPV and Oropharyngeal Cancer among Indigenous Australians: Study Protocol
Publisher: JMIR Publications Inc.
Date: 25-03-2018
The Postcolonial Gramsci
Publisher: Informa UK Limited
Date: 03-2013
Genetic research in Indigenous health: significant progress, substantial challenges
Publisher: AMPCo
Date: 10-2012
DOI: 10.5694/MJA.12.11113
Talking culture? Egalitarianism, color-blindness and racism in Australian elementary schools
Publisher: Elsevier BV
Date: 04-2014
Investigating disparity in access to Australian clinical genetic health services for Aboriginal and Torres Strait Islander people
Publisher: Springer Science and Business Media LLC
Date: 24-08-2022
DOI: 10.1038/S41467-022-32707-0
Abstract: Globally, there is a recognised need that all populations should be able to access the benefits of genomics and precision medicine. However, achieving this remains constrained by a paucity of data that quantifies access to clinical genomics, particularly amongst Indigenous populations. Using administrative data from clinical genetic health services across three Australian jurisdictions (states/territories), we investigate disparities in the scheduling and attendance of appointments among Aboriginal and/or Torres Strait Islander people, compared to non-Indigenous people. For 14,870 appointments scheduled between 2014–2018, adjusted Multivariate Poisson Regression models revealed that Aboriginal and/or Torres Strait Islander people were scheduled fewer appointments (IRR 0.73 [0.68–0.80], .001) and attended at lower rates (IRR 0.85 [0.78–0.93], .001). Within this population, adults, females, remote residents, and those presenting in relation to cancer or prenatal indications experienced the greatest disparity in access. These results provide important baseline data related to disparities in access to clinical genomics in Australia.
Influence of selenium in drought-stressed wheat plants under greenhouse and field conditions
Publisher: University of Ljubljana
Date: 26-11-2015
DOI: 10.14720/AAS.2015.105.2.01
Abstract: Effects of selenium (Na2SeO4) was studied in two wheat genotypes under well-watered and drought conditions in greenhouse (15 µg Se L-1) and field (20-60 60 g ha-1) experiments. Application of Se improved dry matter and grain yield under both well-watered and drought conditions. Se increased leaf concentration of pigments and photosynthesis rate under both well-watered and drought conditions. Our results indicated that Se alleviates drought stress via increased photosynthesis rate, protection of leaf photochemical events, accumulation of organic osmolytes and improvement of water use efficiency. Under well-watered condition, Se-mediated growth improvement was associated with higher photosynthesis rate and water use efficiency, greater root length and diameter, and higher leaf water content.
Community partnerships are fundamental to ethical ancient DNA research
Publisher: Elsevier BV
Date: 04-2023
Race, genetic determinism and the media: An exploratory study of media coverage of genetics and Indigenous Australians
Publisher: Springer Science and Business Media LLC
Date: 15-09-2012
Abstract: Social scientists and Indigenous people have voiced concerns that media messages about genetics and race may increase the public's belief in genetic determinism and even increase levels of racism. The degree of genetic determinism in media messages has been examined as a determining factor. This study is the first to consider the implications of this area of scholarship for the indigenous minority in Australia. A search of the last two decades of major Australian newspapers was undertaken for articles that discussed Indigenous Australians and genetics. The review found 212 articles, of which 58 concerned traits or conditions that were presented in a genetically deterministic or antideterministic fashion. These 58 articles were analysed by topic, slant, and time period. Overall, 23 articles were anti-deterministic, 18 were deterministic, 14 presented both sides and three were ambiguous. There was a spike in anti-deterministic articles in the years after the Human Genome Diversity Project, and a parallel increase in deterministic articles since the completion of the Human Genome Project in 2000. Potential implications of the nature of media coverage of genetics for Indigenous Australians is discussed. Further research is required to test directly the impact of these messages on Australians.
Sociology and empire
Publisher: Informa UK Limited
Date: 02-10-2014
Indigenous Knowledge in a Postgenomic Landscape: The Politics of Epigenetic Hope and Reparation in Australia
Publisher: SAGE Publications
Date: 17-02-2019
Abstract: A history of colonization inflicts psychological, physical, and structural disadvantages that endure across generations. For an increasing number of Indigenous Australians, environmental epigenetics offers an important explanatory framework that links the social past with the biological present, providing a culturally relevant way of understanding the various intergenerational effects of historical trauma. In this paper, we critically examine the strategic uptake of environmental epigenetics by Indigenous researchers and policy advocates. We focus on the relationship between epigenetic processes and Indigenous views of Country and health—views that locate health not in in idual bodies but within relational contexts of Indigenous ontologies that embody interconnected environments of kin/animals/matter/bodies across time and space. This drawing together of Indigenous experience and epigenetic knowledge has strengthened calls for action including state-supported calls for financial reparations. We examine the consequences of this reimagining of disease responsibility in the context of “strategic biological essentialism,” a distinct form of biopolitics that, in this case, incorporates environmental determinism. We conclude that the shaping of the right to protection from biosocial injury is potentially empowering but also has the capacity to conceal forms of governance through claimants’ identification as “damaged,” thus furthering State justification of biopolitical intervention in Indigenous lives.
Genetic research in Indigenous health: significant progress, substantial challenges
Publisher: AMPCo
Date: 07-2012
DOI: 10.5694/MJA12.10531
Genetic Research and Aboriginal and Torres Strait Islander Australians
Publisher: Springer Science and Business Media LLC
Date: 12-10-2012
DOI: 10.1007/S11673-012-9391-X
Abstract: While human genetic research promises to deliver a range of health benefits to the population, genetic research that takes place in Indigenous communities has proven controversial. Indigenous peoples have raised concerns, including a lack of benefit to their communities, a ersion of attention and resources from non-genetic causes of health disparities and racism in health care, a reinforcement of "victim-blaming" approaches to health inequalities, and possible misuse of blood and tissue s les. Drawing on the international literature, this article reviews the ethical issues relevant to genetic research in Indigenous populations and considers how some of these have been negotiated in a genomic research project currently under way in a remote Aboriginal community. We consider how the different levels of Indigenous research governance operating in Australia impacted on the research project and discuss whether specific guidelines for the conduct of genetic research in Aboriginal and Torres Strait Islander communities are warranted.
Traditional Laws Meet Emerging Biotechnologies: The Impact of Genetic Genealogy on Indigenous Land Title in Australia
Publisher: Society for Applied Anthropology
Date: 06-2020
DOI: 10.17730/1938-3525.79.2.140
Abstract: The increasing popularity and availability of genetic testing has the potential to play into debates surrounding forms of Aboriginal and Torres Strait Islander land ownership known as “native title.” This paper draws on research with applied anthropologists working in native title, and a review of descriptions of native title holders in existing determinations, to address three key questions: Are native title holders and claimants interested in using genetic genealogy for claiming native title or resolving membership disputes? If so, can this biotechnology offer them the kind of information they seek? And finally, does the legal framework allow or support its use for these purposes? Our findings highlight the importance of disseminating current information about genetic genealogy among Indigenous Australians and having frank conversations about the opportunities and limits of genetic technologies in this context.
Measuring emotional and social wellbeing in Aboriginal and Torres Strait Islander populations: an analysis of a Negative Life Events Scale
Publisher: Springer Science and Business Media LLC
Date: 14-11-2007
The effect of topical negative pressure on wound biofilms using an in vitro wound model
Publisher: Wiley
Date: 29-11-2012
Critical Evaluation of a Program to Foster Reflexive Antiracism
Publisher: Macrothink Institute, Inc.
Date: 13-05-2014
Erratum to: Genetic Research and Aboriginal and Torres Strait Islander Australians
Publisher: Springer Science and Business Media LLC
Date: 09-07-2014
Indigenous blood and ethical regimes in the United States and Australia since the 1960s
Publisher: Wiley
Date: 26-10-2015
DOI: 10.1111/AMET.12168
Anthropology, Indigeneity, and the Epigenome
Publisher: Wiley
Date: 15-11-2018
DOI: 10.1111/AMAN.13141
“Related” Histories: On Epistemic and Reparative Decolonization
Publisher: Wiley
Date: 09-2020
DOI: 10.1111/HITH.12168
Abstract: What are we talking about when we talk about decolonization? In this article, we differentiate between epistemic and reparative decolonizing approaches and then consider the differences between postcolonial and decolonial modes in two fields: histories of science and, separately, museology. Touring these fields leads us to affirm the need for scholars to consider the consequences of their allegiances to different critical movements and moments. Whatever it will mean to decolonize history, we conclude, it is both a necessary and necessarily relational enterprise with material and conceptual excesses to address.
Ambivalent helpers and unhealthy choices: Public health practitioners' narratives of Indigenous ill-health
Publisher: Elsevier BV
Date: 03-2005
DOI: 10.1016/J.SOCSCIMED.2004.07.009
Abstract: Public health practitioners in Australian indigenous health work in a complex political environment. Public health training is limited in providing them with conceptual tools needed to unpack the postcolonial nexus of 'fourth-world' health. A workshop was designed by the authors to facilitate critical reflection on how the concepts of race and culture are used in constructions of indigenous ill-health. It was attended by researchers, students, clinicians and bureaucrats working in public health in northern Australia. A thematic analysis of the workshop minutes provided insight into public health practitioners' narratives of Indigenous ill-health. The major themes that emerged included tension between structure and agency and between sameness and difference, and ambivalence surrounding the 'helper' identity of public health practitioners. We suggest that these narratives can be understood as attempts to maintain the moral integrity of both Indigenous people and practitioners. This task is necessitated by the specter of cultural relativism intrinsic to contemporary liberal discourses of multiculturalism that attempt to reconcile the universal rights of the citizen with the special rights of minority groups. We argue that the concepts of self-determination and neocolonialism mark the spaces where universal and particular discourses overlap and clash. Practitioners who seek to escape neocolonialism must inhabit only the discursive space of public health congruent with self-determination, leaving them in a bind common to many postcolonial situations. They must relieve the ill-health of indigenous people without acting upon them change them without declaring that change is required.
Whiteness and national identity: teacher discourses in Australian primary schools
Publisher: Informa UK Limited
Date: 04-07-2016
What’s at stake? Determining indigeneity in the era of DIY DNA
Publisher: Informa UK Limited
Date: 20-01-2019
Indigenous body parts, mutating temporalities, and the half-lives of postcolonial technoscience
Publisher: SAGE Publications
Date: 30-07-2013
Abstract: Biological s les collected from indigenous communities from the mid-20th century for scientific study and preserved in freezers of the Global North have been at the center of a number of controversies. This essay explores why the problem of indigenous biospecimens has returned to critical attention frequently over the past two decades, and why and how Science and Technology Studies should attend to this problem. We propose that mutation – the variously advantageous, deleterious, or neutral mechanism of biological change – can provide a conceptual and analogical resource for reckoning with unexpected problems created by the persistence of frozen indigenous biospecimens. Mutations transcend dichotomies of premodern/modern, pro-science/anti-science, and north/south, inviting us to focus on entanglements and interdependencies. Freezing biospecimens induces mutations in indigenous populations, in the scientists who collected and stored such specimens, and in the specimens themselves. The jumbling of timescales introduced by practices of freezing generates new ethical problems: problems that become ever more acute as the supposed immortality of frozen s les meets the mortality of the scientists who maintain them. More broadly, we propose that an ‘abductive’ approach to Science and Technology Studies theories of co-production can direct attention to the work of temporality in the ongoing alignment of social and technical orders. Attending to the unfolding and mutating vital legacies of indigenous body parts, collected in one time and place and reused in others, reveals the enduring colonial dimensions of scientific practice in our global age and demonstrates new openings for ethical action. Finally, we outline the articles in this special issue and their respective ‘mutations’ to postcolonial Science and Technology Studies, a field that, like genome science, is racked with ethical and temporal dilemmas of reckoning for the past in the present.
Cntnap2-dependent molecular networks in autism spectrum disorder revealed through an integrative multi-omics analysis
Publisher: Springer Science and Business Media LLC
Date: 17-10-2022
DOI: 10.1038/S41380-022-01822-1
Abstract: Autism spectrum disorder (ASD) is a major neurodevelopmental disorder in which patients present with core symptoms of social communication impairment, restricted interest, and repetitive behaviors. Although various studies have been performed to identify ASD-related mechanisms, ASD pathology is still poorly understood. CNTNAP2 genetic variants have been found that represent ASD genetic risk factors, and disruption of Cntnap2 expression has been associated with ASD phenotypes in mice. In this study, we performed an integrative multi-omics analysis by combining quantitative proteometabolomic data obtained with Cntnap2 knockout (KO) mice with multi-omics data obtained from ASD patients and forebrain organoids to elucidate Cntnap2 -dependent molecular networks in ASD. To this end, a mass spectrometry-based proteometabolomic analysis of the medial prefrontal cortex in Cntnap2 KO mice led to the identification of Cntnap2 -associated molecular features, and these features were assessed in combination with multi-omics data obtained on the prefrontal cortex in ASD patients to identify bona fide ASD cellular processes. Furthermore, a reanalysis of single-cell RNA sequencing data obtained from forebrain organoids derived from patients with CNTNAP2 -associated ASD revealed that the aforementioned identified ASD processes were mainly linked to excitatory neurons. On the basis of these data, we constructed Cntnap2 -associated ASD network models showing mitochondrial dysfunction, axonal impairment, and synaptic activity. Our results may shed light on the Cntnap2 -dependent molecular networks in ASD.
Genetics and Indigenous Communities: Ethical Issues
Publisher: Elsevier
Date: 2015
All in the Blood
Publisher: SAGE Publications
Date: 15-09-2015
Abstract: Public participation in medical research and biobanking is considered key to advances in scientific discovery and translation to improved health care. Cultural concerns relating to blood have been found to affect the participation of indigenous peoples and minorities in research, but such concerns are rarely specified in the literature. This article presents a review of the role of blood in Australian Aboriginal cultures. We discuss the range of meanings and uses of blood in traditional culture, including their use in ceremonies, healing, and sorcery. We draw on more recent literature on Aboriginal Australians and biomedicine to consider how traditional beliefs may be changing over time. These findings provide an empirical basis for researchers and bioethicists to develop culturally grounded strategies to boost the participation of Aboriginal Australians in biomedical research. They also serve as a model for integrating anthropological literature with bioethical concerns that could be applied to other indigenous and minority groups.
Welcome to Country: Acknowledgement, Belonging and White Anti-racism
Publisher: University of Technology, Sydney (UTS)
Date: 25-11-2015
Abstract: The Welcome to Country (WTC) ceremony and its twin, the Acknowledgement of Traditional Owners, have become prominent anti-racist rituals in the post-settler society of Australia. These rituals are rich in meaning. They are simultaneously emblems of colonisation and dispossession of recognition and reconciliation and a periodic focus of political posturing. This article analyses the multiple meanings of WTC ceremonies. In particular, I explore the politics of belonging elicited by WTC and Acknowledgement rituals. Drawing on ethnography of non-Indigenous people who work in Indigenous affairs, I argue that widespread enjoyment of these rituals among White anti-racists is explained because they paradoxically experience belonging through a sense of not belonging.
Genetic Counseling for Indigenous Australians: an Exploratory Study from the Perspective of Genetic Health Professionals
Publisher: Wiley
Date: 28-10-2014
DOI: 10.1007/S10897-014-9782-8
Abstract: Indigenous populations are thought to have particularly low levels of access to genetic health services, and cultural issues may be a contributing factor. This article presents the findings of the first study of genetic health service provision to Indigenous Australians. This qualitative study aimed to identify elements of culturally-competent genetic health service provision in Indigenous Australian contexts. Twelve semi-structured interviews were conducted with genetic counselors and clinical geneticists from around Australia who had delivered services to Indigenous Australians. Participants were asked to describe their experiences and identify any collective cultural needs of Indigenous clients, as well as comment on specific training and resources they had received or used. Interviews were audio-recorded and transcribed with thematic analysis conducted on the data. The findings show that participants were reluctant to generalize the needs of Indigenous peoples. Some participants asserted that Indigenous peoples have needs that differ from the general population, while others felt that there were no collective cultural needs, instead advocating an in idualized approach. Being flexible and practical, taking time to build rapport, recognizing different family structures and decision-making processes, as well as socio-economic disadvantage were all identified as important factors in participants' interactions with Indigenous clients. Indigenous support workers and hospital liaison officers were seen as valuable resources for effective service provision. The implications of this study for training and practice are discussed.
The Politics of the Gap: Indigenous Australians, Liberal Multiculturalism, and the End of the Self‐Determination Era
Publisher: Wiley
Date: 28-08-2008
Sociology of bio-knowledge at the limits of life
Publisher: SAGE Publications
Date: 03-2015
Indigenous biospecimen collections and the cryopolitics of frozen life
Publisher: SAGE Publications
Date: 03-2015
Abstract: In the mid-20th century, scientists began to collect and freeze blood s les for a range of purposes. This article considers the broader implications of scientific freezing for conceptions of time and life by drawing on empirical research with scientists associated with a large collection of s les assembled from Indigenous Australians in the 1960s. We first review some key critiques of cryopreservation posed by Indigenous scholars and by science and technology studies. We then propose ‘cryopolitics’ as a concept to express the various political, ethical and temporal conundrums presented by the practice of freezing. We frame cryopolitics as a mode of Michel Foucault’s biopolitics. If biopolitical assemblages make live and let die, cryopolitical ones reveal the dramatic consequences of mundane efforts to make live and not let die. In our case study, we argue that frozen blood vacillates between two cryopolitical states, ‘latent life’ and ‘incomplete death’. S les seen as latent life cannot be destroyed s les understood as incomplete death require destruction. A state of incomplete death can be resolved through the return of blood s les to the Indigenous groups they were collected from, a process that has occurred in North America. Our cryopolitical analysis suggests another potential resolution: reviving a form of latent life aligned with futures envisaged by Indigenous communities themselves.
Human Papillomavirus and Oropharyngeal Cancer Among Indigenous Australians: Protocol for a Prevalence Study of Oral-Related Human Papillomavirus and Cost-Effectiveness of Prevention (Preprint)
Publisher: JMIR Publications Inc.
Date: 25-03-2018
Abstract: ropharyngeal cancer is an important, understudied cancer affecting Aboriginal and Torres Strait Islander Australians. The human papillomavirus (HPV) is a significant risk factor for oropharyngeal cancer. Current generation HPV vaccines are effective against the 2 most common types of high-risk HPVs in cancer (hrHPVs 16/18). his study aims (1) to yield population estimates of oncogenic genotypes of HPV in the mouth and oropharynx of defined Aboriginal and Torres Strait Islander populations (2) to estimate the proportion of oropharyngeal cancer attributable to HPV among these Australian citizens (3) to estimate the impact of HPV vaccination as currently implemented on rates of oropharyngeal cancer among Aboriginal and Torres Strait Islander Australians and (4) taking into account impact on oropharyngeal as well as cervical cancer, to evaluate efficacy and cost-effectiveness of targeted extended HPV vaccination to older ages, among our study population. ur study design and operation is straightforward, with minimal impost on participants. It involves testing for carriage of hrHPV in the mouth and oropharynx among 1000 Aboriginal South Australians by simple saliva collection and with follow-up at 12 and 24 months, collection of sexual history at baseline, collection of information for estimating health state (quality-of-life) utilities at baseline, genotyping of viruses, predictive outcome and cost-effectiveness modeling, data interpretation and development of vaccination, and follow-up management strategies driven by the Aboriginal community. articipant recruitment for this study commenced in February 2018 and enrollment is ongoing. The first results are expected to be submitted for publication in 2019. he project will have a number of important outcomes. Synthesis of evidence will enable generation of estimates of the burden of oropharyngeal cancer among Aboriginal and Torres Strait Islander Australians and indicate the likely effectiveness and cost-effectiveness of prevention. This will be important for health services planning, and for Aboriginal health worker and patient education. The results will also point to important areas where research efforts should be focused to improve outcomes in Aboriginal and Torres Strait Islander Australians with oropharyngeal cancer. There will be a strong focus on community engagement and accounting for the preferences of in iduals and the community in control of HPV-related cancers. The project has international relevance in that it will be the first to systematically evaluate prevention of both cervical and oropharyngeal cancer in a high-risk Indigenous population taking into account all population, testing, and surveillance options. R1-10.2196/10503
Neural Tissue Engineering
Publisher: Springer International Publishing
Date: 2020
‘You are not born being racist, are you?’ Discussing racism with primary aged-children
Publisher: Informa UK Limited
Date: 04-09-2016
A postcolonial analysis of Indigenous cultural awareness training for health workers
Publisher: Informa UK Limited
Date: 03-2011
A community-based co-designed genetic health service model for Aboriginal Australians
Publisher: Public Library of Science (PLoS)
Date: 29-10-2020
Putting Indigenous cultural training into nursing practice
Publisher: Informa UK Limited
Date: 12-2010
Indigeneity and the refusal of whiteness
Publisher: Informa UK Limited
Date: 02-01-2017
Inclusion of Indigenous Australians in biobanks: a step to reducing inequity in health care
Publisher: AMPCo
Date: 03-06-2019
DOI: 10.5694/MJA2.50219
Indigenous genetics and rare diseases: Harmony, diversity and equity
Publisher: Springer International Publishing
Date: 2017
DOI: 10.1007/978-3-319-67144-4_27
Abstract: Advances in our understanding of genetic and rare diseases are changing the face of healthcare. Crucially, the global community must implement these advances equitably to reduce health disparities, including between Indigenous and non-Indigenous peoples. We take an Australian perspective to illustrate some key areas that are fundamental to the equitable translation of new knowledge for the improved diagnosis of genetic and rare diseases for Indigenous people. Specifically, we focus on inequalities in access to clinical genetics services and the lack of genetic and phenomic reference data to inform diagnoses. We provide ex les of ways in which these inequities are being addressed through Australian partnerships to support a harmonious and inclusive approach to ensure that benefits from traditional wisdom, community knowledge and shared experiences are interwoven to support and inform implementation of new knowledge from genomics and precision public health. This will serve to deliver benefits to all of our erse citizens, including Indigenous populations.
To be or not to be Indigenous? Understanding the rise of Australia’s Indigenous population since 1971
Publisher: Informa UK Limited
Date: 24-12-2018
Aboriginal mitogenomes reveal 50,000 years of regionalism in Australia
Publisher: Springer Science and Business Media LLC
Date: 08-03-2017
DOI: 10.1038/NATURE21416
Abstract: Aboriginal Australians represent one of the longest continuous cultural complexes known. Archaeological evidence indicates that Australia and New Guinea were initially settled approximately 50 thousand years ago (ka) however, little is known about the processes underlying the enormous linguistic and phenotypic ersity within Australia. Here we report 111 mitochondrial genomes (mitogenomes) from historical Aboriginal Australian hair s les, whose origins enable us to reconstruct Australian phylogeographic history before European settlement. Marked geographic patterns and deep splits across the major mitochondrial haplogroups imply that the settlement of Australia comprised a single, rapid migration along the east and west coasts that reached southern Australia by 49-45 ka. After continent-wide colonization, strong regional patterns developed and these have survived despite substantial climatic and cultural change during the late Pleistocene and Holocene epochs. Remarkably, we find evidence for the continuous presence of populations in discrete geographic areas dating back to around 50 ka, in agreement with the notable Aboriginal Australian cultural attachment to their country.
Indigenous Australian Students' Participation Rates in Higher Education: Exploring the Role of Universities
Publisher: The University of Queensland
Date: 12-2011
DOI: 10.1375/AJIE.40.59
Abstract: Indigenous Australians are underrepresented and considerably disadvantaged within the Australian system of higher education. The various measures taken by Australian universities over the past decades have produced varying levels of success in increasing Indigenous participation and completion rates. In order to continue improving Indigenous Australian participation in higher education, it is important to understand the current patterns of participation and factors within universities that are associated with participation and success. In this article we analyse higher education student and staff statistics available from the Department of Education, Employment and Workplace Relations (DEEWR) and information sourced from the web sites of 40 Australian universities to examine correlations between various Indigenous student support mechanisms and Indigenous students' higher education participation rates. Our results indicate that there is a dual system of Indigenous higher education, with one group of universities excelling at attracting Indigenous students, and a different group of universities demonstrating high Indigenous student completion rates. We argue that challenges remain in determining how to increase commencements at universities with high Indigenous completion rates without compromising entrance requirements or further diluting the level of student support, and how to increase completion rates at universities with higher numbers of Indigenous students.
Reflexive antiracism: A novel approach to diversity training
Publisher: SAGE Publications
Date: 14-02-2013
Abstract: This article introduces the concept of reflexive antiracism as a response to two major critiques of antiracism theory and praxis: the dangers of essentialism and the elicitation of counter-productive emotional reactions. The article explores these critiques as they apply to two broad approaches to ersity training: cultural awareness and antiracism. Reflexive antiracism offers an alternative to existing approaches through a focus on racialisation and the formation and maintenance of racialised identities in particular. An emphasis on the paradoxes of racialisation and the contingencies of minority and white antiracist identities can promote a realistic and productive understanding of ersity training that may avoid the pitfalls of existing approaches. To conclude, an outline of factors that contribute to reflexive antiracism praxis are presented, drawing on ex les from an existing ersity training course.
Development of the reflexive antiracism scale - Indigenous
Publisher: Emerald
Date: 26-04-2013
Abstract: Reflexive Antiracism is an approach to antiracism that seeks to avoid the limitations of essentialism and negative emotional reactions through a focus on racialisation (a concept that encompasses both racism and antiracism) as well as the formation and maintenance of racialised identities. This paper aims to outline the construction and validation of a scale to measure this novel theoretical construct: the Reflexive Antiracism Scale‐Indigenous (RAS‐I). In the context of a cultural training course focused on Indigenous peoples in Australia, 20 items to assess attitudes were developed along with four hypothetical scenarios designed to assess behavioural intentions in specific situations. The survey formed by these items and scenarios was piloted to assess test‐retest, concurrent and construct validity as well as item endorsement and internal reliability. Findings suggest that an 11‐item scale based on this survey forms a valid and reliable measure of Reflexive Antiracism. Further research and applications are discussed. This paper will prompt further exploration of Reflexive Antiracism as a concept that can be applied in a range of settings where a more nuanced understanding and approach to antiracism may be of benefit. Being aware of their position within a society that is racialised will allow antiracists to be reflexive (and realistic) about their ability as in iduals to achieve antiracist ideals while continuing to strive towards them.
The open question
Publisher: Edinburgh University Library
Date: 14-04-2015
DOI: 10.17157/MAT.2.1.216
Abstract: The open question: Medical anthropology and open access
Indigenous cultural training for health workers in Australia
Publisher: Oxford University Press (OUP)
Date: 04-04-2011
Abstract: Culturally inappropriate health services contribute to persistent health inequalities. This article reviews approaches to indigenous cultural training for health workers and assesses how effectively they have been translated into training programmes within Australia. CINAHL PLUS, MEDLINE, Wiley InterScience, ATSIHealth and ProQuest. The review focuses on the conceptual and empirical literature on indigenous cultural training for health workers within selected settler-colonial countries, together with published evaluations of such training programmes in Australia. Data extraction Information on conceptual models underpinning training was extracted descriptively. Details of authors, year, area of investigation, participant group, evaluation method and relevant findings were extracted from published evaluations. Six models relevant to cultural training were located and organized into a conceptual schema ('cultural competence, transcultural care, cultural safety, cultural awareness, cultural security and cultural respect'). Indigenous cultural training in Australia is most commonly based on a 'cultural awareness' model. Nine published evaluations of Australian indigenous cultural training programmes for health workers were located. Of the three studies that assessed change at multiple points in time, two found positive changes. However, the only study to include a control group found no effect. This review shows that the evidence for the effectiveness of indigenous cultural training programmes in Australia is poor. Critiques of cultural training from indigenous and non-indigenous scholars suggest that a 'cultural safety' model may offer the most potential to improve the effectiveness of health services for indigenous Australians.
The City's Outback by Gillian Cowlishaw
Publisher: Wiley
Date: 14-07-2010
Related Organisations
Cooperative Research Centre For Aboriginal & Tropical Health
Location: Australia
Deakin University Alfred Deakin Institute For Citizenship And Globalisation
Location: Australia
Related Funding Activities
Curation And Evaluation Of Biological Samples From Indigenous Populations Held In JCSMR
Start Date: 2012
End Date: 2012
Funder: Australian National University
View Funded ActivityBiobank Networks, Medical Research And The Challenge Of Globalisation
Start Date: 2015
End Date: 2018
Funder: National Health and Medical Research Council
View Funded ActivityParticipation In The Management And Research Activities Of The National Centre For Indigenous Genomics (NCIG)
Start Date: 2014
End Date: 2017
Funder: Australian National University
View Funded ActivityModels And Quality Of Genetic Health Services For Aboriginal And Torres Strait Islander People
Start Date: 2016
End Date: 2020
Funder: National Health and Medical Research Council
View Funded ActivityModels And Quality Of Genetic Health Services For Aboriginal And Torres Strait Islander People
Start Date: 2016
End Date: 2020
Funder: Lowitja Institute
View Funded ActivityDeveloping An Intervention To Promote Effective Racial Socialisation Strategies For Parents And Teachers.
Start Date: 2011
End Date: 2013
Funder: VicHealth
View Funded ActivityAttitudes To Genetic Research Among Indigenous People In Western Australia
Start Date: 2008
End Date: 2009
Funder: University of Melbourne
View Funded Activity(Using Museums To Counter Racism And Increase Acceptance Of Diversity Among Young People)
Start Date: 2012
End Date: 2014
Funder: Australian Research Council
View Funded ActivityIndigenous Genetic Research Roundtable
Start Date: 2010
End Date: 2010
Funder: Lowitja Institute
View Funded ActivityARC Future Fellowships - Grant ID: FT160100093
Start Date: 06-2017
End Date: 12-2021
Amount: $920,000.00
Funder: Australian Research Council
View Funded ActivityDiscovery Early Career Researcher Award - Grant ID: DE120100394
Start Date: 04-2012
End Date: 06-2016
Amount: $375,000.00
Funder: Australian Research Council
View Funded ActivityDiscovery Projects - Grant ID: DP150102087
Start Date: 05-2015
End Date: 12-2018
Amount: $197,153.00
Funder: Australian Research Council
View Funded ActivityDiscovery Projects - Grant ID: DP190102071
Start Date: 03-2019
End Date: 06-2023
Amount: $348,000.00
Funder: Australian Research Council
View Funded ActivityDiscovery Indigenous - Grant ID: IN220100031
Start Date: 09-2022
End Date: 09-2025
Amount: $1,014,000.00
Funder: Australian Research Council
View Funded ActivityLinkage Projects - Grant ID: LP120100080
Start Date: 06-2012
End Date: 12-2015
Amount: $175,242.00
Funder: Australian Research Council
View Funded Activity