ORCID Profile
0000-0003-4915-2729
Current Organisation
La Trobe University
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Publisher: F1000 Research Ltd
Date: 04-04-2022
DOI: 10.12688/HRBOPENRES.13497.1
Abstract: Background: A growing body of evidence attests to the disproportionate impact of COVID-19 on persons with intellectual and developmental disabilities (IDD) during the pandemic. This study asked caregivers about their perceptions of how COVID-19 impacted them and the people they support. Method: An online survey was conducted in 12 countries during August-September 2020 and sought information on demographics, support practices, information and training, experiences of COVID-19, social distancing, and wellbeing, as measured by the DASS12. This study reports on 3,754 family members, direct support professionals, and managers who participated in the survey. Results: Caregivers observed increases in depression/anxiety, stereotyped behaviours, aggression towards others and weight gain in the person(s) they supported. They also reported difficulties supporting the person(s) to access healthcare. Families reported reducing or ceasing employment and absorbed additional costs when supporting their family member. Direct support professionals experienced changes in staff shifts, staff absences, increased workload and hiring of casual staff. Caregivers’ wellbeing revealed high levels of stress, depression, and less so anxiety. The strongest predictor of wellbeing among families was observation of changes in mood in the person(s) they supported, while for direct support professionals, the strongest predictors of wellbeing were reorganisation of staff shifts and increases in new direct support staff. Discussion: Findings support the contention of this population experiencing a disproportionate burden during the COVID-19 pandemic, reflecting historical inequities in access to healthcare and other human rights violations which are now protected under the United Nations Convention on the Rights of Persons with Disabilities.
Publisher: Informa UK Limited
Date: 18-01-2016
Publisher: Wiley
Date: 22-05-2023
DOI: 10.1111/BLD.12534
Abstract: Social media use continues to grow, and it offers an important way for adults with intellectual disabilities to feel socially included and to communicate with others. This study aimed to establish the state of knowledge about social media use among adults with intellectual disabilities, their experiences and its impact. A scoping review was conducted of peer‐reviewed literature published between 2000 and 2021 that reported empirical research on social media use, experiences, training and outcomes for adults with intellectual disabilities. Adults with intellectual disabilities use social media platforms and experience a range of positive outcomes including feeling more included and valued. Some of the negative impacts included bullying and exploitation. The high cost of technology and some elements of design sometimes make social media inaccessible. The studies included provided evidence about the experience of using social media from adults with intellectual disabilities and some perspectives of family members and paid supporters. Future research is needed to examine effective approaches to overcoming barriers to access and ways to manage some of the negative impacts of engagement in order to inform policy and practice.
Publisher: Informa UK Limited
Date: 12-2012
Publisher: Informa UK Limited
Date: 30-11-2009
DOI: 10.1080/15367100903200445
Abstract: The purpose of this study was to examine the relationship between employment and social participation among a random, national s le of 597 Israelis with disabilities of working age. Overall findings indicated that employed people with disabilities were significantly more integrated in social and civic activities than the unemployed. Whereas most of the unemployed attributed their restricted patterns of participation to the lack of adequate financial resources, accessible transportation, and encouragement from community organizations, the employed reported lack of time as their main barrier. These findings suggest that employment and rich community participation patterns might reinforce each other and thus serve as a potential vehicle for promoting social integration for people with disabilities in their communities.
Publisher: Informa UK Limited
Date: 10-2011
Publisher: Wiley
Date: 09-06-2016
DOI: 10.1111/JIR.12300
Abstract: The present study aimed to explore the applicability of the attribution model to social workers' attributions towards clients with dual diagnosis of intellectual disability and psychiatric illness. Specifically, the study examined the relations between social workers' attribution of responsibility, causality, stereotypes of dangerousness, their emotional reactions and behavioural reactions towards clients with dual diagnosis. Social workers (N = 279) completed questionnaires measuring attributions of responsibility, causation and dangerousness, and reported on their emotional and behavioural reactions to clients diagnosed with DD. Most social workers reported high levels of helping behaviours. The strongest predictor of discriminatory behaviours was the stereotype of dangerousness. Social workers who reported feeling less anger and more pity towards clients with DD tended to report higher levels of helping behaviour. But contrary to attribution theory, fear and anger did not predict discriminatory behaviours. The results are discussed in relation to the core values of social work and to professional identity.
Publisher: Informa UK Limited
Date: 21-02-2017
Publisher: Elsevier BV
Date: 2021
Publisher: SAGE Publications
Date: 28-03-2019
Publisher: Elsevier BV
Date: 04-2016
DOI: 10.1016/J.APNU.2015.11.005
Abstract: The aim of this study was to explore the subjective experience of suffering in aging in iduals with schizophrenia. Qualitative interviews were conducted with 18 participants aged 60-69. Phenomenological content analysis was performed. Nine dimensions of suffering emerged: social rejection familial rejection the symptoms of schizophrenia hospitalisation the side effects of medication loss of employment potential loss of independent accommodation loss of social life, and loss of hope to be a partner and a parent. The suffering of aging people with schizophrenia is cumulative and ongoing and thus evokes issues such as existential loneliness and feelings of homelessness.
Publisher: SAGE Publications
Date: 11-2005
Abstract: The research studies the quality of life (QOL) of 127 men and women diagnosed as having a borderline IQ and ADHD living in two major residential programs of the Sharon region in central Israel in respect to their personal, disability, and social ecological variables. Core findings indicate that men and women differ significantly according to their educational background. Among those who studied in a regular educational environment, the main predictor of men’s QOL is their monthly income, whereas the main predictor for women is their level of attention deficit symptoms. The only predictor of QOL among men who studied in a special education program is the quality of contact with their mothers, whereas no significant predictor is observed among women.
Publisher: Informa UK Limited
Date: 14-08-2022
Publisher: Informa UK Limited
Date: 09-07-2020
Publisher: Ovid Technologies (Wolters Kluwer Health)
Date: 12-2007
Publisher: Springer Science and Business Media LLC
Date: 15-09-2016
Publisher: F1000 Research Ltd
Date: 03-12-2020
DOI: 10.12688/HRBOPENRES.13077.2
Abstract: Background : This protocol outlines research to explore family members’ and paid staff’s perceptions of the impact of COVID-19 on in iduals with intellectual and developmental disabilities and their caregivers. Evidence suggests that people with intellectual and developmental disabilities experience disparities in healthcare access and utilisation. This disparity was evident early in the pandemic when discussions arose regarding the potential exclusion of this population to critical care. Methods : An anonymous online survey will be conducted with caregivers, both family members and paid staff, to explore their perceptions of the impact of COVID-19 in terms of demographics, living arrangements, access to services, social distancing, and carer wellbeing. The survey will be developed by the research team, many of whom are experts in intellectual disability within their own jurisdictions. Using back-translation our team will translate the survey for distribution in 18 countries worldwide for international comparison. The survey team have extensive personal and professional networks and will promote the survey widely on social media with the support of local disability and advocacy agencies. Statistical descriptive and comparative analyses will be conducted. Ethical approval has been obtained for this study from University College Dublin’s Human Research Ethics Committee (HS-20-28-Linehan). Dissemination : Study findings will be prepared in a number of formats in order to meet the needs of different audiences. Outputs will include academic papers, lessons learned paper, practice guidelines, reports, infographics and video content. These outputs will be directed to families, frontline and management delivering disability services, national-level policy makers, healthcare quality and delivery authorities, national pandemic organisations and international bodies.
Publisher: The Ohio State University Libraries
Date: 15-09-2005
Publisher: Informa UK Limited
Date: 07-2013
Publisher: F1000 Research Ltd
Date: 23-06-2020
DOI: 10.12688/HRBOPENRES.13077.1
Abstract: Background : This protocol outlines research to explore the impact of coronavirus disease 2019 (COVID-19) on in iduals who have intellectual and developmental disabilities and their caregivers. Evidence suggests that people with intellectual and developmental disabilities experience disparities in healthcare access and utilisation. This disparity was evident early in the pandemic when discussions arose regarding the potential exclusion of this population to critical care. Methods : An anonymous online survey will be conducted with caregivers, both family members and paid staff, to explore the impact of COVID-19 on this population in terms of demographics, living arrangements, access to services, the impact of social distancing, and also carer wellbeing. The survey will be developed by the research team, many of whom are experts in intellectual disability within their own jurisdictions. Using back-translation our team will translate the survey for distribution in 16 countries worldwide for international comparison. The survey team have extensive personal and professional networks in intellectual disability and will promote the survey widely on social media with the support of local disability and advocacy agencies. Statistical descriptive and comparative analyses will be conducted. Ethical approval has been obtained for this study from University College Dublin’s Human Research Ethics Committee (HS-20-28-Linehan). Dissemination : Study findings will be prepared in a number of formats in order to meet the needs of different audiences. Outputs will include academic papers, lessons learned paper, practice guidelines, reports, infographics and video content. These outputs will be directed to families, frontline and management delivering disability services, national-level policy makers, healthcare quality and delivery authorities, national pandemic organisations and international bodies.
Publisher: Ovid Technologies (Wolters Kluwer Health)
Date: 06-2006
Publisher: Springer Science and Business Media LLC
Date: 13-10-2011
Publisher: Informa UK Limited
Date: 20-07-2015
DOI: 10.1080/13607863.2015.1063110
Abstract: In recent years, there are an increasing number of in iduals with schizophrenia who are aging within the general society. Self-etiology of the illness refers to its causal attributions by this population as part of the life review process. The aim of this paper is to develop knowledge from the perspective of older people with schizophrenia regarding the self-etiology of their illness. Focusing on the self-etiology of this particular population is useful, to enhance the understanding of their lived experience in the context of their lifeworld. The study was carried out using the reflective lifeworld phenomenological approach. In-depth semi-structured interviews were conducted with 18 aging in iduals with schizophrenia followed by analysis for meaning. Five major constituents of the phenomenon under study - the experience of self-etiology among aging people with schizophrenia - emerged from the findings: 'It leaves you to your fate' - schizophrenia as a decree of fate 'I have sinned against God' - schizophrenia as a punishment from God 'They put something in my coffee' - schizophrenia as a result of witchcraft 'Her genes are in me' - schizophrenia as genetic and 'She left me and that's how I got sick' - schizophrenia as a result of personal trauma. The findings show that self-etiology in old age tends to be stable, externally attributed and culturally oriented, and serves as a central component in the life review process. This is relevant for professionals developing intervention methods for aging people with schizophrenia.
No related grants have been discovered for Tal Araten- Bergman.