ORCID Profile
0000-0001-8108-491X
Current Organisation
University of South Australia
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Publisher: Springer Science and Business Media LLC
Date: 30-09-2021
DOI: 10.1186/S40814-021-00919-8
Abstract: The Needs in Recovery Assessment (NiRA) is a newly developed needs assessment tool, designed to identify the needs of people recovering from mental illness. This tool has been evaluated outside of the clinical context for validity and reliability. The aim of this study is to introduce the NiRA into clinical practice and to evaluate the value of the NiRA as an adjunct to service delivery from the perspectives of stakeholders and to evaluate the barriers and facilitators of embedding the NiRA in a mental health service. The establishment of the NiRA in a tertiary mental health unit over a 6-month period will be evaluated using a multi-methods approach. Quantitative data will be collected using the NiRA itself and the Recovery Self-Assessment (RSA). Face-to-face interviews with service users and clinicians will be conducted following the initial completion of the NiRA, with a follow-up interview for service users on discharge from the service. Regular informal follow-up with clinicians throughout the study will support the introduction of the NiRA. Descriptive statistics will be used to analyse quantitative data, and descriptive qualitative methods will be used to analyse data from interviews. Aligning mental health services with recovery-oriented frameworks of care is imperative. The NiRA is a tool that has been designed in accordance with recovery principles and may assist services to be more recovery-oriented. If the NiRA is able to achieve the aims and objectives of this project, a larger implementation study will be conducted. Trial registration Australian and New Zealand Clinical Trial Registry (ANZCTR), ACTRN12621000316808
Publisher: Informa UK Limited
Date: 09-2016
DOI: 10.2147/JMDH.S113898
Publisher: Elsevier BV
Date: 05-2016
DOI: 10.1016/J.PEDN.2015.10.022
Abstract: There are few studies that exist which focus specifically on parents with a child with a rare disease. The purpose of this study was to better understand the lived experiences and supportive care needs (SCN) of parents caring for a child across a spectrum of rare diseases. A qualitative descriptive approach was used to guide the research, and four semi-structured focus group interviews were conducted with 23 parents (17 mothers and 6 fathers). Participants described 'feeling boxed-in outside the box' due to a number of limitations unique to their child's disease, daily practical challenges in providing care and the various relational impacts of caring for a child with a rare disease were discussed. The results from this study help to give clearer direction for health professionals on where to focus future efforts in better meeting the supportive care needs of parents and their child with a rare disease.
Publisher: Informa UK Limited
Date: 04-07-2022
Publisher: Wiley
Date: 05-07-2018
DOI: 10.1111/INM.12518
Abstract: Central to the role of mental health clinicians is the assessment of needs. A number of assessment tools have been used to evaluate the needs of in iduals diagnosed with a mental illness. These tools have largely been developed for people with a severe and persistent mental illness and may not be suitable for in iduals who are recovering from a first episode of mental illness. The aims of this review were therefore to identify the needs experienced by in iduals recovering from a first episode of mental illness determine what tools have been used to evaluate these needs and explore whether existing tools adequately reflect the needs described in the literature. Twenty-one articles were included, comprising articles which identified needs (n = 10), needs assessment tools (n = 1), or articles which identified both needs and a needs assessment tool (n = 10). Results indicate that in iduals who have been admitted to a specialized mental health unit and are recovering from a first episode of mental illness may experience an extensive range of needs, spanning emotional, psychological, social, informational, functional, practical, and relationship needs. Four established needs assessment tools were found to have been used to evaluate these needs however, these do not appear to represent all needs discovered in this review, were mostly developed for populations with a long-term mental illness, and may not be suitable for assessing the needs of in iduals recovering from a first episode of mental illness following a presentation to a specialized mental health unit.
Publisher: SAGE Publications
Date: 07-06-2022
DOI: 10.1177/13674935221095647
Abstract: Developmental hip dysplasia is an abnormality of the hip joint which is associated with an unstable or dislocatable hip. During infancy, hips should be screened to determine whether they are stable, unstable or dislocated. In Australia, this screening is often performed by nurses using physical assessment. Physical examination includes a number of assessments which seek to identify underlying abnormalities in hip joint anatomy and function. This scoping review outlines the physical assessments used by nurses in the screening and surveillance of developmental hip dysplasia. A review of the literature identified 15 ( N = 15 100%) sources of evidence, which included original research articles ( n = 6 40%), expert opinion pieces ( n = 2 13.3%) and practice guidelines ( n = 7 46.7%). There were 18 physical assessments identified as being used by nurses in the screening process for developmental hip dysplasia. However, it is apparent that high quality research is required to examine the timing, specificity and sensitivity of the physical assessments identified.
Publisher: Wiley
Date: 29-07-2019
DOI: 10.1111/HAE.13826
Abstract: Inherited bleeding disorders are rare, for some such as haemophilia, there is a growing body of evidence about caregiver burden and associated support needs. Whilst for other disorders, which may be present with less clinically significant bleeding, there is a paucity of data about parents support needs. To evaluate the supportive care needs of parents of children with a range of inherited bleeding disorders. A single-centre pilot study using the validated Parental Needs Scale for Rare Diseases to measure the overall support needs of parents of children with a bleeding disorder. 231 parents, including 99/231 (42.9%) fathers, completed the survey half had a bleeding disorder themselves. Parents reported a good understanding of their child's condition, and overall were happy with the care provided by the specialist haemophilia team but reported a lack of knowledge in non-specialist settings. More than half of parents reported experiencing significant emotional issues relating to their child's condition. 42.6%-46.7% reported financial concerns related to paying for medical care and respite, respectively. Overall, parents are confident about dealing with their child's bleeding disorder and are satisfied with the level of support and care that they and their child are receiving. The emotional and psychological impacts of having a child with a bleeding disorder remain a significant burden for many parents. The financial costs associated with caring for their child further impact on their ability to cope. Regular assessment of parental support needs should be part of routine clinical care.
Publisher: Wiley
Date: 11-02-2020
DOI: 10.1111/INM.12697
Publisher: Informa UK Limited
Date: 26-06-2019
DOI: 10.1080/01612840.2019.1609637
Abstract: A broad array of needs often arise for in iduals when significant physical or mental illness occurs. The aim of this study was to investigate the needs experienced by in iduals recovering from a first-episode of mental illness, to explore how these needs have been assessed and to gauge the acceptability of participating in formal, systematic needs assessments in the future. Fifteen in iduals who had presented to a tertiary mental health service within the previous 3 years, and who were considered to be recovering from a first-episode of mental illness discussed their current and previous needs in small focus groups. A qualitative descriptive methodology was adopted to analyse data. Three themes incorporating the broad range of inter-related and often complex needs were identified as being: the need for safety, stability and security the need to be understood and to understand and the need for support networks and services. Participants reported a lack of involvement in discussions with mental health clinicians regarding their needs, and were in favour of participating in formal, systematic needs assessments in the future.
Publisher: Hindawi Limited
Date: 10-02-2018
DOI: 10.1111/PPC.12259
Abstract: First episode psychosis (FEP) can be a traumatic experience that may alter an in idual's ability to meet their own needs. The Supportive Care Needs Framework (SCNF) could complement the recovery-oriented, person-centred approach that is the current foundation of mental health care. To identify the supportive care needs (SCNs) of in iduals recovering from a FEP. A scoping review of the literature was undertaken. Review questions were developed, and relevant studies were identified through database and hand searches of peer-reviewed journal articles. Data from selected articles were tabulated, and contextual meaning was given to the data through a process of collating, summarizing, and reporting. A total of 14 peer-reviewed journal articles met inclusion criteria. SCNs were identified at different stages of recovery, ranging from initial treatment to 7 years postdiagnosis. Emotional, informational, practical, psychological, and social needs were identified in over half of the included articles, while needs in the physical and spiritual domains were identified in less than five. Unmet needs in each of the seven domains of need of the SCNF were identified in this population. There are a number of gaps in the literature relating to the specific needs of this population and the timing for which in iduals may require more supportive care in their recovery journey.
Publisher: Elsevier BV
Date: 10-2015
DOI: 10.1016/J.DHJO.2015.03.009
Abstract: Parents caring for a child with a rare disease report unmet needs, the origins of which are varied and complex. Few studies have systematically attempted to identify the supportive care needs of parents with a child with a rare disease comprehensively. We have used the widely accepted Supportive Care Needs Framework (SCNF) as the structure for this review. The purpose of the current review was to identify the supportive care needs of parents with a child with a rare disease, irrespective of condition. We conducted a scoping study review comprising 29 studies (1990-2014) to identify and examine the research literature related to the supportive care needs of parents, and to compare these needs with the seven domains outlined in the SCNF. Most common needs cited were social needs (72% of papers), followed by informational needs (65% of papers) and emotional needs (62% of papers), with the most common parental needs overall being information about their child's disease, emotional stress, guilt and uncertainty about their child's future health care needs, parents own caring responsibilities and the need for more general support. A paucity of studies exists that explore the supportive care needs of parents of a child with a rare disease. The SCNF only partially reflects the breadth and type of needs of these parents, and a preliminary revised framework has been suggested. Further research is required in this area, particularly empirical research to amend or confirm the suggested new framework.
Publisher: Springer Science and Business Media LLC
Date: 21-07-2016
Publisher: Informa UK Limited
Date: 24-03-2021
Publisher: Wiley
Date: 08-11-2013
DOI: 10.1111/JOCN.12190
Abstract: To explore issues related to sexual function and relationships, for men and their wives or partners, following diagnosis and treatment for prostate cancer. A diagnosis of prostate cancer and subsequent treatment result in a significant number of men experiencing some impairment to their sexual function. There is scant research into the impact of changed sexual function on these men's masculinity, sexuality, intimate relationships and their needs regarding counselling and supportive care. Internet-based survey. Focus groups and couple interviews were used to improve validity for questionnaire items designed to provide insight into men's experiences of prostate cancer in areas such as sexual function and relationships. The questionnaire included both closed and open-ended questions and had the option for the wife or partner to complete a section. Qualitative research revealed 17 specific categories within three key themes: sexual dysfunction, loss of libido and masculinity. The questionnaire found, unexpectedly, the majority of men said that they had sufficient emotional and psychological support. Wives artners confirmed cancer had impacted on their partner's feelings of masculinity (71%), compared to 42% of men who felt that this was the case. Predictors of loss of libido, erectile dysfunction and 'feeling less of a man' were developed. Univariate predictors included hormone therapy, regrets about treatment choice, cancer having impacted on masculinity and distress during the last week. Men are not able to clearly identify the challenges prostate cancer brings especially changes to their masculinity. The findings strongly suggest that for men with prostate cancer, nursing assessments of men's sexual health be augmented by information gained from their partners further, these assessments should be augmented with a careful exploration of these men's psyche guided by the knowledge that masculinity influences perceptions of self (being a man) and help seeking.
No related grants have been discovered for Lemuel Pelentsov.