Development and psychometric evaluation of 2 measures of perceived needs: 1 for young persons with cancer; 1 for parents

Funded Activity Summary

It is increasingly acknowledged that there is a need to develop measures which allow patients to reflect their needs, so that the health-care system can respond effectively. Cancer patients represent some of the more poignant and in need groups. Of this patient cohort, young persons with cancer represent a group with potentially, and understandably, a wide range of high unmet needs. The stress and demands imposed upon parents who have children with cancer is acknowledged as being considerable. Despite the development of measures to identify unmet needs of various cancer patients including advanced, incurable cancer, breast cancer and cervical cancer, there has been no work to date on developing an accurate measure of unmet needs among parents of young persons who have cancer, as well as the unmet needs of young persons themselves who have cancer. This study will develop such a measure, as a first step in identifying the most cost-effective ways to address the unmet needs of children with cancer and their families. These measures will have a clinical application, in enabling accurate estimates of the prevalence of unmet needs, and a research application, in providing reliable and valid outcome measures for evaluating the effectiveness of interventions.

Funded Activity Details

Start Date: 01-01-2004

End Date: 01-01-2006

Funding Scheme: NHMRC Project Grants

Funding Amount: $253,500.00

Funder: National Health and Medical Research Council

Research Topics

ANZSRC Field of Research (FoR)

Family Care

ANZSRC Socio-Economic Objective (SEO)

There are no SEO codes available for this funding activity

Other Keywords

Behavioural intervention | Cancer | Child health | Childhood cancer | Measurement | Perceived needs

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