Communication, quality of life and advance care planning for people with motor neurone disease and their caregiver.

Funding Activity

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Funded Activity Summary

People with motor neurone disease experience devastating deterioration in movement, communication, swallowing and ultimately breathing. Research is required to determine if the advance care planning (ACP) process for people with MND is impacted by communication impairment. This study will build evidence to improve the ACP process for this vulnerable patient group. It also aims to investigate the impact communication impairment has on caregivers’ quality of life in order to improve carer support.

Funded Activity Details

Start Date: 01-01-2017

End Date: 01-01-2020

Funding Scheme: Postgraduate Scholarships

Funding Amount: $108,902.00

Funder: National Health and Medical Research Council

Research Topics

ANZSRC Field of Research (FoR)

Neurology and Neuromuscular Diseases

ANZSRC Socio-Economic Objective (SEO)

There are no SEO codes available for this funding activity

Other Keywords

caregivers | dysarthria | end-of-life decision making | motor neuron disease (MND) | qualitative research