Quantifying the burden of systemic sclerosis in Australia: From data linkage to patient reported outcomes

Funding Activity

Website
http://purl.org/au-research/grants/nhmrc/GNT1113954

Funding Status
Closed

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Funded Activity Summary

Systemic sclerosis (SSc) is a rare autoimmune disease with the potential to cause significant physical, financial and psychosocial burden on patients, their family members and wider community. The true ‘burden’ of SSc in Australia is unknown. My study aims to quantify this burden of disease and use our results to advocate for appropriate allocation of resources with the ultimate goal of improving patient outcomes and reducing the financial and human costs of this chronic rare disease.

Funded Activity Details

Start Date: 01-01-2016

End Date: 01-01-2017

Funding Scheme: Postgraduate Scholarships

Funding Amount: $81,976.00

Funder: National Health and Medical Research Council

Research Topics

ANZSRC Field of Research (FoR)

Rheumatology and Arthritis

ANZSRC Socio-Economic Objective (SEO)

There are no SEO codes available for this funding activity

Other Keywords

burden of disease | data linkage | health economics | quality of life | scleroderma

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