Service pathways for ageing caregivers of adults with intellectual disability

Funding Activity

Website
http://purl.org/au-research/grants/nhmrc/107305

Funding Status
Closed

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Funded Activity Summary

Caregiving is demanding, but for most it is but a phase of life. This is not so for the 90,000 Australian parents caring for a lifetime for their adult son or daughter with intellectual disability. They are at significant risk from the physical and emotional consequences of long-term caring and the compounding effects of their own - and their son or daughter's - ageing. Despite this, these ageing parent caregivers typically do not use health and community services until a crisis occurs. Our goal is to ensure that ageing parent caregivers use health and community services appropriately and for these services to be appropriate to their needs. The proposed project therefore aims to identify the pathways that lead to or prevent ageing parent caregivers accessing services and to construct a model for ageing parent caregivers' involvement with services that could be tested with a randomised clinical trial. Narrative life history method will be used to determine how ageing parent caregivers arrived in their present circumstances and factors which influence the caring relationship, its stresses and rewards, and their experiences and views concerning services. Service providers will participate in focus groups to examine their perceptions and expectations of services for ageing parent caregivers. Characteristics of the study sample will be compared with state and national population benchmarks. The findings will inform our planned development of a multi-dimensional strategy to provide cost effective preventive health and community services for this largely neglected subgroup within the population of caregivers in Australia.

Funded Activity Details

Start Date: 01-01-2000

End Date: 01-01-2001

Funding Scheme: NHMRC Project Grants

Funding Amount: $143,613.00

Funder: National Health and Medical Research Council

Research Topics

ANZSRC Field of Research (FoR)

Family Care

ANZSRC Socio-Economic Objective (SEO)

There are no SEO codes available for this funding activity

Other Keywords

ageing | ageing caregivers | caregiving | intellectual disability | parenting | parents as carers | preventive services

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