RARE-Bestpractices: Best practices for management of rare diseases

Funding Activity

Website
http://purl.org/au-research/grants/nhmrc/1055131

Funding Status
Closed

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Funded Activity Summary

Although by definition rare, over 8000 rare diseases affect approximately 1.2 million Australians. Patient care has suffered from fragmented approaches and lack of information available to health professionals. This project brings together major experts on rare diseases to improve the translation of scientific progress into tangible benefits for patients. The ultimate impact of this work will be the significant improvement of health outcomes and quality of life for rare disease patients and reducing inequality in care.

Funded Activity Details

Start Date: 01-01-2013

End Date: 01-01-2016

Funding Scheme: Targeted Calls

Funding Amount: $640,231.00

Funder: National Health and Medical Research Council

Research Topics

ANZSRC Field of Research (FoR)

Health Information Systems (incl. Surveillance)

ANZSRC Socio-Economic Objective (SEO)

There are no SEO codes available for this funding activity

Other Keywords

best practice | chronic diseases | health inequalities | health outcomes | inherited

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