Post-parental care planning for rural people with intellectual disabilities. This project addresses the urgent issue of post-parental care plans for people with an intellectual disability and their older parental carers in rural areas. The project aims to co-design a post-parental care planning approach and resources in collaboration with people with an intellectual disability, older parental carers and disability services. The results will be used by the researchers to generate new knowledge on ....Post-parental care planning for rural people with intellectual disabilities. This project addresses the urgent issue of post-parental care plans for people with an intellectual disability and their older parental carers in rural areas. The project aims to co-design a post-parental care planning approach and resources in collaboration with people with an intellectual disability, older parental carers and disability services. The results will be used by the researchers to generate new knowledge on post-parental care transitions and how to construct post-parental care plans within the context of the National Disability Insurance Scheme. The planning approach and resources will assist families and services to avert crisis transitions through improved coordination, preparation and support for post-parental care. Read moreRead less
Post-parental housing transitions among adults with intellectual disability. This project aims to address the urgent issue of growing numbers of older people with intellectual disability (ID) outliving their parent carers who have not put future care plans in place. This project expects to generate a national evidence-based framework for ensuring successful post-parental housing and care transitions. By using a three-phase mixed methodology design in three Australian cities, expected outcomes of ....Post-parental housing transitions among adults with intellectual disability. This project aims to address the urgent issue of growing numbers of older people with intellectual disability (ID) outliving their parent carers who have not put future care plans in place. This project expects to generate a national evidence-based framework for ensuring successful post-parental housing and care transitions. By using a three-phase mixed methodology design in three Australian cities, expected outcomes of the project include the development of an Australian-first evidence-based resource kit which should provide significant benefits for older people with ID, their family carers and the disability sector, in terms of planning for post-parental housing and care transitions.Read moreRead less
Neourobiology Of Human Epilepsy: Genes, Cellular Mechanisms,network And Whole Brain
Funder
National Health and Medical Research Council
Funding Amount
$17,652,824.00
Summary
The team is comprised of neurologists, molecular geneticists, physiologists and brain imaging specialists and leads the world in the discovery of the genetic causes of epilepsy. They will continue to identify genes underlying epilepsy and study how genetic variations result in development of seizures. Advanced brain imaging will be used to understand the effects of genetic variation on brain structure and function. This study may lead to new diagnostic methods and treatments for epilepsy.
NDIS: Rhetoric versus Reality? This project aims to explore the realities of living with intellectual disability in Australia, and the impact of individualised funding arising from the introduction of the NDIS. The study will examine, within this era of disability reform, how people with intellectual disability are having their needs met, and the extent to which they are involved in decision-making about their lives. The study will be conducted over three years using a mixed method design. It wi ....NDIS: Rhetoric versus Reality? This project aims to explore the realities of living with intellectual disability in Australia, and the impact of individualised funding arising from the introduction of the NDIS. The study will examine, within this era of disability reform, how people with intellectual disability are having their needs met, and the extent to which they are involved in decision-making about their lives. The study will be conducted over three years using a mixed method design. It will specifically examine the relationship between self-directed individualised funding and its effect on personal well-being, self-esteem and voice, choice and control. People with intellectual disability will act as co-researchers within the study.Read moreRead less
A Longitudinal Study Of Psychopathology In People With Intellectual Disability
Funder
National Health and Medical Research Council
Funding Amount
$999,803.00
Summary
This project will further develop the research opportunities of an internationally unique 15 year follow up study of the mental health of young Australians with ID. We have shown that this group has 2-3 times the risk of suffering serious emotional and behavioural problems that are an added heavy burden on the individual, their family and carers and the community. These problems often are not recognised but are as common as schizophrenia in the community. The study will continue to use a combina ....This project will further develop the research opportunities of an internationally unique 15 year follow up study of the mental health of young Australians with ID. We have shown that this group has 2-3 times the risk of suffering serious emotional and behavioural problems that are an added heavy burden on the individual, their family and carers and the community. These problems often are not recognised but are as common as schizophrenia in the community. The study will continue to use a combination of questionnaire survey and in depth interviews of the young adults and their families or carers to track the course of their mental health. The study commenced in 1990 with nearly 1000 young people with ID aged 4-18 years and their progress has been reviewed every 2-3 years in over 75% of the original group. During the next 5 years we plan to follow their mental health during the critical stage of young adult life. During this time there is the greatest risk of mental illnesses such as depression and schizophrenia and the stresses of adjusting to new daily occupations, independent living or residential care and social contact away from the family. We will be able to study the specific emotional and behavioural problems faced by young adults with the main known causes of ID such as Down, Fragile X, Prader Willi and William Syndromes, as well as those who have autism. The great benefit of a long term follow up study is that it allows us to study the links between earlier family environmental, psychological and biological factors and subsequent mental health problems. We can also demonstrate the impact that mental illness in a young person with ID has on the family and parental mental health. The findings have implications for better diagnosis, improved care and management, early intervention and prevention of these common severe and under recognized mental health problems in this disadvantaged group of young Australians and their families and carers.Read moreRead less
Using 3D printing to improve access to graphics by vision-impaired people. This project aims to investigate the possible benefits of 3D printing for production of accessible materials for vision-impaired people. Currently tactile graphics are used to provide severely vision-impaired adults and children with access to graphical content used in education and in orientation and mobility training. This project is expected to clarify the kinds of graphics for which 3D prints are better suited than ta ....Using 3D printing to improve access to graphics by vision-impaired people. This project aims to investigate the possible benefits of 3D printing for production of accessible materials for vision-impaired people. Currently tactile graphics are used to provide severely vision-impaired adults and children with access to graphical content used in education and in orientation and mobility training. This project is expected to clarify the kinds of graphics for which 3D prints are better suited than tactile graphics, and to build capacity within the national accessible format provision sector for the production and use of 3D prints. Benefits will include increased educational opportunities and quality of life for Australians with severe vision impairment, through improved access to graphic materials used in education and orientation and mobility training.
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International Managers: How Do We Get Them? Explanations of Staffing Strategy for International Work Performed From Home or Abroad. Australian companies often need to expand globally to survive and prosper. Yet, they report a shortage of managers for international work. This project aims to explain how companies staff international work, conceived as a set of interrelated options in which the work may be performed abroad or domestically from Australia. International staffing has rarely been ....International Managers: How Do We Get Them? Explanations of Staffing Strategy for International Work Performed From Home or Abroad. Australian companies often need to expand globally to survive and prosper. Yet, they report a shortage of managers for international work. This project aims to explain how companies staff international work, conceived as a set of interrelated options in which the work may be performed abroad or domestically from Australia. International staffing has rarely been considered as a comprehensive set of alternatives. This project will explain staffing strategy from organisational and individual perspectives and factors, including why women are underrepresented. The results will help understand the staffing strategy, management development, retention, and equity practices needed to staff international work.Read moreRead less
Religion and domestic violence: exploring men’s perpetration. The project will generate new knowledge about how religious beliefs and practices are used by men to perpetrate domestic violence. Using a qualitative design this project will gain insights into how churches understand and respond to domestic violence; and identify and analyse the perpetration of spiritual abuse as a form of domestic violence. The significant innovation and benefit is interviewing Australian men about their understand ....Religion and domestic violence: exploring men’s perpetration. The project will generate new knowledge about how religious beliefs and practices are used by men to perpetrate domestic violence. Using a qualitative design this project will gain insights into how churches understand and respond to domestic violence; and identify and analyse the perpetration of spiritual abuse as a form of domestic violence. The significant innovation and benefit is interviewing Australian men about their understandings and use of violence through an ecclesiastical lens. The outcomes will enhance the knowledge base of domestic violence theory, serving as a platform to develop more effective policies and practice inside and outside religious settings to prevent domestic violence. Read moreRead less
Confronting everyday harms: preventing abuse of people with disability. The findings of the Disability Royal Commission necessitate new approaches to prevent violence, abuse, neglect and exploitation. Framed by recognition theory, this project proposes empirical research with young people with cognitive disability, using a new concept of ‘everyday harms’ in their paid relationships. The results will inform early responses to poor quality interactions in disability support. The strategic alliance ....Confronting everyday harms: preventing abuse of people with disability. The findings of the Disability Royal Commission necessitate new approaches to prevent violence, abuse, neglect and exploitation. Framed by recognition theory, this project proposes empirical research with young people with cognitive disability, using a new concept of ‘everyday harms’ in their paid relationships. The results will inform early responses to poor quality interactions in disability support. The strategic alliances with the government, industry and community partners will develop a practice framework to prevent everyday harms and the escalation to abuse, and to promote safety and wellbeing. The research has policy benefits for capacity-building in the sector to act on the rights and voices of people with disability. Read moreRead less
Research Utilisation in Child Protection Policy: Understanding and Conceptualising the Role of Research in Social Policy Development. The findings of this project will have significant benefits for vulnerable children and families by enhancing the capacity for research-informed policy in child protection. In this way, the project will also have significant flow-on economic benefits for Local, State and Federal Governments by decreasing the social and economic costs associated with child abuse an ....Research Utilisation in Child Protection Policy: Understanding and Conceptualising the Role of Research in Social Policy Development. The findings of this project will have significant benefits for vulnerable children and families by enhancing the capacity for research-informed policy in child protection. In this way, the project will also have significant flow-on economic benefits for Local, State and Federal Governments by decreasing the social and economic costs associated with child abuse and neglect. Research funding will have a greater impact by the increased understanding this study will provide about how research can be more effectively used in policy.Read moreRead less