Direct And Indirect Assessment Of 5 Ability Structures Underlying 7 Categories Of Childhood Psychopathology
Funder
National Health and Medical Research Council
Funding Amount
$263,311.00
Summary
This research has four main aims. First, we aim to obtain detailed knowledge of how normal children develop a range of different abilities, including motor coordination, language skills, the ability to understand other people, self-control, and general cognitive ability. Second, with this knowledge of normal development we will be able to identify cases in which normal development does not occur and to identify the exact ability area(s) in which development is abnormal. Patterns of abnormal deve ....This research has four main aims. First, we aim to obtain detailed knowledge of how normal children develop a range of different abilities, including motor coordination, language skills, the ability to understand other people, self-control, and general cognitive ability. Second, with this knowledge of normal development we will be able to identify cases in which normal development does not occur and to identify the exact ability area(s) in which development is abnormal. Patterns of abnormal development will be studied in children with one of seven disorders, including Autistic Disorder, Intellectual Disability, and Developmental Coordination Disorder. Third, we will assess whether deficits in some ability correspond to impairments in just one basic psychological structure (e.g., language deficits are related to impairment in the ability to recognise sounds) or whether they can be due to impairments in several structures (e.g., the ability to recognise faces or the ability to maintain attention). Finally, we will investigate whether and how impairments in one or more basic psychological structures can result in deficits in one or more of the ability areas that are the basis for the diagnosis of one or more developmental disorders. This research is expected to lead to an enhanced ability to assess the exact nature of any given developmental disorder which, in turn, should enhance clinical care of the child.Read moreRead less
Confronting everyday harms: preventing abuse of people with disability. The findings of the Disability Royal Commission necessitate new approaches to prevent violence, abuse, neglect and exploitation. Framed by recognition theory, this project proposes empirical research with young people with cognitive disability, using a new concept of ‘everyday harms’ in their paid relationships. The results will inform early responses to poor quality interactions in disability support. The strategic alliance ....Confronting everyday harms: preventing abuse of people with disability. The findings of the Disability Royal Commission necessitate new approaches to prevent violence, abuse, neglect and exploitation. Framed by recognition theory, this project proposes empirical research with young people with cognitive disability, using a new concept of ‘everyday harms’ in their paid relationships. The results will inform early responses to poor quality interactions in disability support. The strategic alliances with the government, industry and community partners will develop a practice framework to prevent everyday harms and the escalation to abuse, and to promote safety and wellbeing. The research has policy benefits for capacity-building in the sector to act on the rights and voices of people with disability. Read moreRead less
Young people with cognitive disability: relationships and paid support. This project aims to improve the rights and wellbeing of young people with cognitive disability by exploring their relationship and interaction with paid support workers. The introduction of national individualised funding and support is a watershed in Australian disability policy. Understanding the role that paid support plays in the ongoing identity development of these young people is urgently needed to realise national p ....Young people with cognitive disability: relationships and paid support. This project aims to improve the rights and wellbeing of young people with cognitive disability by exploring their relationship and interaction with paid support workers. The introduction of national individualised funding and support is a watershed in Australian disability policy. Understanding the role that paid support plays in the ongoing identity development of these young people is urgently needed to realise national policy aspirations for people with disability of rights, choice, inclusion and independence. Using social geography and recognition theory, the project expects to deliver new understanding and improved practice around how paid support relationships can foster mutual care, respect and value at a critically important time in young people’s lives.Read moreRead less
Enabling engagement and inclusion: organisational factors that embed active support in accommodation services for people with intellectual disability. The study will investigate the processes and structures necessary to ensure frontline staff deliver high quality support to people with intellectual disability, which enables them to engage in meaningful activity. This knowledge will inform disability service organisation processes and provide indicators of structures necessary for effective servi ....Enabling engagement and inclusion: organisational factors that embed active support in accommodation services for people with intellectual disability. The study will investigate the processes and structures necessary to ensure frontline staff deliver high quality support to people with intellectual disability, which enables them to engage in meaningful activity. This knowledge will inform disability service organisation processes and provide indicators of structures necessary for effective services.Read moreRead less
Lost in Transition: supporting young people with complex support needs. This project seeks to improve the lives of young people with complex support needs who experience overlapping forms of disadvantage. It intends to investigate how best to support their frequent transitions between services, institutions and care environments. These transitions are particularly problematic for this group, and if poorly supported, have significant social and economic costs. The project aims to analyse early li ....Lost in Transition: supporting young people with complex support needs. This project seeks to improve the lives of young people with complex support needs who experience overlapping forms of disadvantage. It intends to investigate how best to support their frequent transitions between services, institutions and care environments. These transitions are particularly problematic for this group, and if poorly supported, have significant social and economic costs. The project aims to analyse early life transitions and the supports available and to suggest best practice for transition support and a framework for how to track transitions using existing data. Intended outcomes will inform policy and practice in how best to invest in supports for young people with complex needs as they make multiple transitions.Read moreRead less
Effective Decision Making Support for People with Cognitive Disability. This project aims to produce and test evidence-based education resources that boost the ability of supporters of people with cognitive disability to put the supported person’s own desires and values at the centre of decisions, as required by treaty obligations and best practice. The project aims to develop innovative education resources, and to then investigate the impact of the resources on the practices of decision-making ....Effective Decision Making Support for People with Cognitive Disability. This project aims to produce and test evidence-based education resources that boost the ability of supporters of people with cognitive disability to put the supported person’s own desires and values at the centre of decisions, as required by treaty obligations and best practice. The project aims to develop innovative education resources, and to then investigate the impact of the resources on the practices of decision-making supporters and the person being supported in a randomised control trial in three jurisdictions. The anticipated outcome is a demonstrably effective capacity-building tool, able to cater for all types of cognitive disabilities and the full spectrum of support contexts from guardianship to informal support.Read moreRead less
Support services for people with intellectual disability: the cost of meeting and not meeting the need. Presently, governments in Australia operate in the absence of rigorous empirical data on the real cost of providing and not providing the support that people with intellectual disability need in order to participate in the life of our community. This research will provide unique information which will be of value to governments as they assess policy frameworks and budget priorities associate ....Support services for people with intellectual disability: the cost of meeting and not meeting the need. Presently, governments in Australia operate in the absence of rigorous empirical data on the real cost of providing and not providing the support that people with intellectual disability need in order to participate in the life of our community. This research will provide unique information which will be of value to governments as they assess policy frameworks and budget priorities associated with the provision of support services that people with intellectual disability and their families need. The contribution this research will make to government decision making will ultimately benefit all people with intellectual disability, their families and our community.Read moreRead less
Economic impacts of disease on older workers: Costs to government and individuals and opportunities for intervention. With an ageing workforce, Australia is at risk of having an inadequate workforce to ensure economic growth and to maintain sufficient taxation revenue to support future needs.
This project will provide fill substantial gaps in the Australian evidence the health conditions that keep older workers out of the labour market and that diminish their own immediate and long-term livi ....Economic impacts of disease on older workers: Costs to government and individuals and opportunities for intervention. With an ageing workforce, Australia is at risk of having an inadequate workforce to ensure economic growth and to maintain sufficient taxation revenue to support future needs.
This project will provide fill substantial gaps in the Australian evidence the health conditions that keep older workers out of the labour market and that diminish their own immediate and long-term livings standards and reduce funds available to government. We will address one of the most significant issues resulting fundamental changes to the demography of the Australian labour market and one is regularly raised by the Prime Minister and Treasurer in their speeches following the Intergenerational Report.Read moreRead less
Genetic, Family And Social Determinants Of The Burden And Outcome In Rett Syndrome: A Population-based Investigation
Funder
National Health and Medical Research Council
Funding Amount
$332,550.00
Summary
Rett syndrome is a severe disorder of the nervous system mainly affecting females. At birth children with Rett syndrome often seem normal but in their second year lose skills. With time it becomes clear that they are severely intellectually and physically handicapped. In 1999 the link between Rett syndrome and a mutation in the gene, known as MECP2, was found. In Australia since 1993, we have had a register of basic information on all girls and young women diagnosed with Rett syndrome. Over thre ....Rett syndrome is a severe disorder of the nervous system mainly affecting females. At birth children with Rett syndrome often seem normal but in their second year lose skills. With time it becomes clear that they are severely intellectually and physically handicapped. In 1999 the link between Rett syndrome and a mutation in the gene, known as MECP2, was found. In Australia since 1993, we have had a register of basic information on all girls and young women diagnosed with Rett syndrome. Over three quarters of the register s 248 cases have now been genetically tested. In 2000 and again in 2002, extra information on ability to do everyday tasks, behaviour, hand function, medical conditions, and use of health and education services was collected. In 2002 questions on family well being were also included. From 2004 to 2007, further information will be gathered on function, health and well being of the affected child and their family. This will be by telephone interview, questionnaire, video recording, existing medical records, clinical assessments and tests. This will include in 2004 completion of calendars which will provide information needed to estimate health and medical care costs for these children. Similar information by questionnaire and calendar will also be collected from the parents of children with Down syndrome in 2004. The information will be used to compare the social and financial burden of Rett syndrome with Down syndrome, a commoner cause of intellectual disability. The research will also show if it is possible to predict from early genetic test results how severely a child with Rett syndrome will later be affected. It will also determine whether some ways of management improve the long-term outlook for the girl and her family. Finally this study will investigate why some families cope better with this devastating disorder than others. This research is only possible in Australia because of the ongoing register we have set up here.Read moreRead less
Normalising Ability Diversity through Career Transitions:Disability at Work. This project aims to investigate how the higher education sector can better support people with disabilities to transition from economic exclusion to work. One in five Australians have a disability and of these 47.3% are not employed. This is a significant issue with regulatory failures and challenges often affecting rights to education and work being exercised on an equal basis. This project seeks to examine internatio ....Normalising Ability Diversity through Career Transitions:Disability at Work. This project aims to investigate how the higher education sector can better support people with disabilities to transition from economic exclusion to work. One in five Australians have a disability and of these 47.3% are not employed. This is a significant issue with regulatory failures and challenges often affecting rights to education and work being exercised on an equal basis. This project seeks to examine international legal norms, theories and strategic and operational practices in the higher education sector. Expected outcomes include advances in scholarship on ableism, informed policy reform, and transferable operational processes for the education and employment sectors, to improve the transition of people with disabilities to work.Read moreRead less