Patterns Of Care And Experience Of Care For Adolescents And Young Adults With Cancer
Funder
National Health and Medical Research Council
Funding Amount
$669,096.00
Summary
There is increasing concern, across several countries, that outcomes of care for adolescents and young adults (AYAs) with cancer are not optimal. This project aims to improve outcomes of care for AYAs with cancer by providing information about the best way to organise health services. It will do this by describing patterns of care for 700 AYA patients with cancer; providing detailed data on experiences with care for 300 patients; and conducting in-depth qualitative interviews.
Decolonising Practice In Aboriginal And Torres Strait Islander Primary Health Care
Funder
National Health and Medical Research Council
Funding Amount
$1,451,491.00
Summary
Aboriginal and Torres Strait Islander primary health care organisations do much to address issues surrounding ongoing colonisation, such as racism, discrimination, lack of power and control, and support for cultural identity and self-determination. This project examines what strategies organisations use, how these impact people's experiences of care and their health, and how policy could better support Aboriginal and Torres Strait Islander health organisations in this role.
Improving Decisions About The Funding Of High Cost Cancer Medicines In Australia
Funder
National Health and Medical Research Council
Funding Amount
$569,303.00
Summary
In this project, we will address the pressing policy question: How can those funding cancer medicines manage the intensifying economic and ethical challenges that they face? Specifically, we will explore ways of making funding decisions fairer and more legitimate in the eyes of different stakeholders, including patients, the general public, governments and pharmaceutical companies. We will also consider ways in which these guidelines might be generalised to the funding of other medicines.
Addressing Conflicts Of Interest In Public Health And Biomedicine: Enhancing Professional Integrity And Safeguarding The Public’s Health
Funder
National Health and Medical Research Council
Funding Amount
$583,014.00
Summary
It is common for health researchers, clinicians and policymakers to have "conflicts of interest" due, for example, to relationships with private industry. It is widely accepted that conflicts of interest can at times distort research, policymaking and practice, but there is no consensus as to how they should be conceptualised, assessed or managed In this project we will explore the causes and impacts of conflict of interest, and devise a sophisticated framework for managing them.
How Best To Protect Public Health: A Comparative Analysis Of Regulatory Safety Warnings On Medicines In Australia, Canada The European Union And The United States
Funder
National Health and Medical Research Council
Funding Amount
$1,002,283.00
Summary
Medicines have important health benefits but can also lead to harm. When new safety concerns arise, national regulatory agencies issue warnings to health professionals and the public. These warnings differ between countries, but no research has compared the effectiveness of different approaches. This study compares safety advisories on medicines in Australia, Canada, the United States, and the European Union in order to identify how to best protect public health.
The Natural History Of Unassisted Smoking Cessation In Australia
Funder
National Health and Medical Research Council
Funding Amount
$329,595.00
Summary
The majority of ex-smokers who successfully quit have done so without using pharmaceutical or counselling support. This study will produce pioneering insights into how and why so many smokers successfully quit without formal assistance. The findings will be conveyed to government, not-for-profit groups, and tobacco cessation professionals in order to help foster favourable social climates for smoking cessation and construct empowering messages about smoking cessation via self-change strategies.
Characterising Quality Of Life And Its Determinants For Children With Intellectual Disability And Their Families
Funder
National Health and Medical Research Council
Funding Amount
$520,874.00
Summary
Approximately 2% of children are born with intellectual disability. They and their families often experience poor health and wellbeing. We will develop a measure of quality of life for affected children and then we will investigate how different factors affect both child and family quality of life. Our new measure will provide capacity to determine what treatments could improve the lives of affected children and their families.
Understanding And Preventing Hepatitis C Transmission Within Sexual Partnerships
Funder
National Health and Medical Research Council
Funding Amount
$383,286.00
Summary
Transmission of hepatitis C among people who inject drugs occurs primarily as a result of sharing of equipment used to inject drugs, the majority of which occurs between intimate couples. However, there is little research in this area. This study will produce sophisticated and nuanced data able to capture the complexities of equipment sharing in couples and use these insights to suggest recommendations for hepatitis C prevention strategies.
Does Gastrostomy Improve The Lives Of Children With Severe Disability And Their Families?
Funder
National Health and Medical Research Council
Funding Amount
$645,101.00
Summary
Around 750 Australian children are born each year with severe intellectual disability. Problems may include feeding difficulties and frequent hospitalisations. Feeding via a gastrostomy tube into the stomach can be used. We will conduct a data linkage study in NSW and WA, and collect additional data in WA to investigate patterns of gastrostomy use and its safety, effectiveness and costs. Our findings will help the management of poor feeding in intellectual disability.
More Informed Action To Improve Aboriginal Heart Health In Western Australia
Funder
National Health and Medical Research Council
Funding Amount
$858,500.00
Summary
This research will provide better data about Aboriginal heart disease and patterns of care than has been previously available using the unique capability that exists in data available in western Australia. But we already have data that shows gaps in the care available to Aboriginal people compared to non-Aboriginal Australians so this research also proposes to examine the barriers to implementing changes based existing and new knowledge, not just at the service interface but at the health servic ....This research will provide better data about Aboriginal heart disease and patterns of care than has been previously available using the unique capability that exists in data available in western Australia. But we already have data that shows gaps in the care available to Aboriginal people compared to non-Aboriginal Australians so this research also proposes to examine the barriers to implementing changes based existing and new knowledge, not just at the service interface but at the health service management, planning and political level.Read moreRead less