The Australian Research Data Commons (ARDC) invites you to participate in a short survey about your
interaction with the ARDC and use of our national research infrastructure and services. The survey will take
approximately 5 minutes and is anonymous. It’s open to anyone who uses our digital research infrastructure
services including Reasearch Link Australia.
We will use the information you provide to improve the national research infrastructure and services we
deliver and to report on user satisfaction to the Australian Government’s National Collaborative Research
Infrastructure Strategy (NCRIS) program.
Please take a few minutes to provide your input. The survey closes COB Friday 29 May 2026.
Complete the 5 min survey now by clicking on the link below.
A longitudinal study exploring women's experiences following a prenatal diagnosis of fetal abnormality. In Australia four per cent of babies are born with a congenital abnormality, many of which are detected during pregnancy. Little is known about women's experiences of a diagnosis. The aim of this study is to explore women's experiences following the diagnosis of a fetal abnormality during pregnancy, in order to develop appropriate models of supportive care.
Discovery Early Career Researcher Award - Grant ID: DE200100343
Funder
Australian Research Council
Funding Amount
$427,115.00
Summary
Dying well: Designing rural end-of-life services for chronic disease. This project aims to understand how existing rural service structures impact access to end-of-life support in chronic conditions. Chronic diseases account for 90% of deaths in Australia, yet access to end-of-life support is limited and little is known about services in rural areas. Information gathered through patient and stakeholder interviews, national survey and service mapping will be used to generate a new evidence-based ....Dying well: Designing rural end-of-life services for chronic disease. This project aims to understand how existing rural service structures impact access to end-of-life support in chronic conditions. Chronic diseases account for 90% of deaths in Australia, yet access to end-of-life support is limited and little is known about services in rural areas. Information gathered through patient and stakeholder interviews, national survey and service mapping will be used to generate a new evidence-based framework and guideline. These outputs will support early engagement with end-of-life planning, known to improve quality of life and reduce health system costs, and to inform development of equitable future end-of-life services for people and their families living with chronic conditions across rural Australia. Read moreRead less