The Australian Research Data Commons (ARDC) invites you to participate in a short survey about your
interaction with the ARDC and use of our national research infrastructure and services. The survey will take
approximately 5 minutes and is anonymous. It’s open to anyone who uses our digital research infrastructure
services including Reasearch Link Australia.
We will use the information you provide to improve the national research infrastructure and services we
deliver and to report on user satisfaction to the Australian Government’s National Collaborative Research
Infrastructure Strategy (NCRIS) program.
Please take a few minutes to provide your input. The survey closes COB Friday 29 May 2026.
Complete the 5 min survey now by clicking on the link below.
Keeping my place in the community: achieving successful ageing-in-place for people with intellectual and developmental disabilities. This project, in partnership with aged care and disability agencies across two states, aims to examine ways the aged care, social and health needs of people with intellectual and developmental disabilities may be met in rural and urban settings. It will explore mechanisms that will lead to a better integration of the aged care and disability sectors.
Understanding Health Service System Needs For People With Intellectual Disability
Funder
National Health and Medical Research Council
Funding Amount
$1,216,389.00
Summary
The health of people with intellectual disability (ID) is one of the poorest of any group in Australia. People with ID experience higher rates of ill health, poor access to responsive health services and premature death. Our research will develop the first comprehensive profile of health, health service and medicines use and costs for people with ID, and will examine the impact of the National Disability Insurance Scheme (NDIS) on these metrics.
A toolkit to build the capacity of disability staff to assist adults with intellectual disability to understand and plan for their end of life. Adults with intellectual disability lack information about death and opportunities to discuss their concerns and wishes. This project will develop and trial a toolkit about end of life to train disability staff. Trained staff will use the toolkit with adults with intellectual disability to help them to understand and plan for end of life and death.
Quality and outcomes of individual supported living arrangements for adults with intellectual and developmental disabilities. This project identifies service quality aspects contributing to positive outcomes in individual supported living arrangements that enable adults with developmental disabilities to live in their own homes. 150 arrangements will be evaluated across Western Australia, New South Wales and Victoria, providing evidence of service quality in support of people with disability hav ....Quality and outcomes of individual supported living arrangements for adults with intellectual and developmental disabilities. This project identifies service quality aspects contributing to positive outcomes in individual supported living arrangements that enable adults with developmental disabilities to live in their own homes. 150 arrangements will be evaluated across Western Australia, New South Wales and Victoria, providing evidence of service quality in support of people with disability having choice and control in their living arrangements.Read moreRead less
Improving The Mental Health Outcomes Of People With Intellectual Disability
Funder
National Health and Medical Research Council
Funding Amount
$1,189,979.00
Summary
Australians with intellectual disability (ID) have very high rates of mental illness but experience very poor access to mental health services. Our research will develop a sound evidence base on the profile of mental ill health, service use, pathways to care and mental health policy for people with intellectual disability. Together with consumers and support persons we will examine ways to improve mental health services for people with intellectual disability.
Increasing organisational capacity of community residential units to facilitate ageing in place for people with intellectual disability. Unique challenges face the disability, aged care and health sectors because of the increased life expectancy of people with life-long intellectual disability (ID) and the likelihood of their premature ageing. Although this group is recognised by Federal and State governments as requiring specific and special service arrangements, little is known about adapting ....Increasing organisational capacity of community residential units to facilitate ageing in place for people with intellectual disability. Unique challenges face the disability, aged care and health sectors because of the increased life expectancy of people with life-long intellectual disability (ID) and the likelihood of their premature ageing. Although this group is recognised by Federal and State governments as requiring specific and special service arrangements, little is known about adapting disability and aged care services to their needs. This research will inform the development of policy and programs in the disability, aged care, and health sectors. The research aims to improve the capacity of disability group homes to respond to the health and ageing issues of older people with ID,to improve their quality of life.Read moreRead less
Mental Health Of Young People With Developmental Disabilities
Funder
National Health and Medical Research Council
Funding Amount
$5,622,916.00
Summary
Mental health problems of people with developmental disabilities are a substantial public health problem. A large Australian study shows that the problem begins early and persists without intervention. We will evaluate the Stepping Stones Triple P model of parenting early intervention after adding newly developed modules for specific causes of ID. The effectiveness of the program across three states will be evaluated.
The importance of gender and socio-economic disadvantage for the mental health of people living with disabilities. The twenty per cent of Australians reporting a disability are more likely to live in disadvantaged circumstances such as inadequate housing, unemployment, and lower levels of education all of which may contribute to poor mental health. Yet there has not been research on the mental health of people with disabilities. This means that disability services and advocacy groups, which deal ....The importance of gender and socio-economic disadvantage for the mental health of people living with disabilities. The twenty per cent of Australians reporting a disability are more likely to live in disadvantaged circumstances such as inadequate housing, unemployment, and lower levels of education all of which may contribute to poor mental health. Yet there has not been research on the mental health of people with disabilities. This means that disability services and advocacy groups, which deal daily with the lived experiences of disadvantage and poor mental health in people with disabilities, do not have evidence to support policy and service sector reform. This project will provide this critical evidence as well as build research capacity in disability-related research and lead to better monitoring of disability-related health inequities.Read moreRead less
The effect of acquiring a disability in adulthood. This project aims to analyse the effect the acquisition of a disability in adulthood has on subsequent socio-economic circumstances (employment, housing, education, income, social capital, wealth) and wellbeing. Researchers from epidemiology, econometrics and statistics will use longitudinal data to model the patterns of disability and subsequent socio-economic and health circumstances over time. The methods aim to make causal statements and pro ....The effect of acquiring a disability in adulthood. This project aims to analyse the effect the acquisition of a disability in adulthood has on subsequent socio-economic circumstances (employment, housing, education, income, social capital, wealth) and wellbeing. Researchers from epidemiology, econometrics and statistics will use longitudinal data to model the patterns of disability and subsequent socio-economic and health circumstances over time. The methods aim to make causal statements and provide a template for research and evaluation in this field. Outcomes are expected to set priorities for action to improve socio-economic conditions, productivity and health for people with disabilities.Read moreRead less
Developing and testing a decision system for identifying housing options, mapping preferences and evaluating priorities in the disability market. Disability housing is problematic, largely because stakeholders find it difficult to agree on priorities whilst incorporating consumer needs and wants for housing. This project seeks to develop a systematic approach to improve multi-stakeholder decision making that can increase the reliability of decisions and improve consumer outcomes. Innovation lies ....Developing and testing a decision system for identifying housing options, mapping preferences and evaluating priorities in the disability market. Disability housing is problematic, largely because stakeholders find it difficult to agree on priorities whilst incorporating consumer needs and wants for housing. This project seeks to develop a systematic approach to improve multi-stakeholder decision making that can increase the reliability of decisions and improve consumer outcomes. Innovation lies in its customer oriented design and application of business models in the disability sector as well as its integrated disciplinary approach. The research design has not been applied in the Australian research context and aims to provide a much needed blueprint for market investment to develop viable, consumer directed, disability housing options.Read moreRead less