Needs Based Palliative Care: Development And Evaluation Of A Consumer Toolkit
Funder
National Health and Medical Research Council
Funding Amount
$68,500.00
Summary
People with advanced cancer and their caregivers may have a range of unmet physical, emotional, social and spiritual needs. Unfortunately, not everybody receives the type of help they need with these issues, or at the time they most need it. Our study will develop and trial a strategy aimed at helping patients and their caregivers to identify their own levels of unmet needs and to communicate these to their health care team, to improve needs-based palliative care.
Systematic Revision Of The Australian Fishes Of The Family Pomadasyidae
Funder
Fisheries Research and Development Corporation
Summary
Objectives: 1. Study the fishes of the family Pomadasyidae in the scientific collection of the Australian Museum Sydney & the National Museum Melbourne
Needs Based Access To Specialist Palliative Care Services: Development And Evaluation Of A Consumer Toolkit
Funder
National Health and Medical Research Council
Funding Amount
$286,572.00
Summary
The study will test the cost-effectiveness of two models of supportive care coordination for advanced cancer against _usual care�: a Telephone Caseworker model and an Oncologist-GP model. Both models are aimed at improving patients� and their informal caregivers� health and psychosocial status; are patient-centred, evidence based and readily transferable across health care settings. The Telephone Caseworker model has the additional advantage of reaching people isolated through geography, physica ....The study will test the cost-effectiveness of two models of supportive care coordination for advanced cancer against _usual care�: a Telephone Caseworker model and an Oncologist-GP model. Both models are aimed at improving patients� and their informal caregivers� health and psychosocial status; are patient-centred, evidence based and readily transferable across health care settings. The Telephone Caseworker model has the additional advantage of reaching people isolated through geography, physical disability or age.Read moreRead less
The development of the Fishnames project has been an ongoing concern for industry and the Fisheries Research Development Corporation.
The terms of reference (ToR) have been developed and wll be provided to workshop participants for consideration and feedback. The ToR include:
1) Report that details recommended changes to the objectives of the Fishnames process.
2) Changes to the Fishnames process.
3) The composition of the Fishnames committee.
4) Brie ....The development of the Fishnames project has been an ongoing concern for industry and the Fisheries Research Development Corporation.
The terms of reference (ToR) have been developed and wll be provided to workshop participants for consideration and feedback. The ToR include:
1) Report that details recommended changes to the objectives of the Fishnames process.
2) Changes to the Fishnames process.
3) The composition of the Fishnames committee.
4) Brief ‘user friendly’ summary of the project and outcomes suitable for publication on the FRDC website. Objectives: 1. Recommend changes to the objectives of the Fishnames process. 2. Chang to the Fishnames process. 3. The composition of the Fishnames committee. 4. A brief ‘user friendly’ summary of the project and outcomes suitable for publication on the FRDC website Read moreRead less
Closing The Divide: Aboriginal And Torres Straight Islander People And Cancer Survivorship
Funder
National Health and Medical Research Council
Funding Amount
$701,662.00
Summary
This project will significantly contribute to Indigenous health research through addressing the current knowledge gap about the unmet support needs of Indigenous cancer patients in Queensland. This study will also investigate if the existing cancer supportive care is adequate for Indigenous patients and how an indigenious patient navigator will adress the barriers to accessing existing care. Indigenous research capacity building is a strong element of this project.
Assessment Of The Effectiveness Of Australian Models Of Palliative Care Delivery In Four Neurodegenerative Disorders
Funder
National Health and Medical Research Council
Funding Amount
$150,000.00
Summary
This study will be conducted in three Australian states (Queensland, Victoria and West Australia), to assess the effectiveness of existing palliative care service delivery to people with motor neurone disease, multiple sclerosis, Huntington’s disease or Parkinson’s disease, and to their families. In phase I, interviews will be conducted with people who have these diseases, their families, and health professionals to discover the needs for palliative care services. In phase II, a survey will dete ....This study will be conducted in three Australian states (Queensland, Victoria and West Australia), to assess the effectiveness of existing palliative care service delivery to people with motor neurone disease, multiple sclerosis, Huntington’s disease or Parkinson’s disease, and to their families. In phase I, interviews will be conducted with people who have these diseases, their families, and health professionals to discover the needs for palliative care services. In phase II, a survey will determine the extent to which these needs are met. The findings will be used to recommend improved palliative care delivery models.Read moreRead less
A Program To Develop A Consensus As To "marketing" Names Of Fish Throughout Australia And To Publicise To The Trade And To The Public These "marketing" Names
Funder
Fisheries Research and Development Corporation
Summary
Objectives: 1. Enable production of a list of Australian and imported commercial fish, showing the scientific names, local names in each State and a suggested marketing name for each variety
Develop And Promote The Australian Fish Names Standard (AS-SSA 5300) And Ensure Reaccreditation As A Standards Development Organisation
Funder
Fisheries Research and Development Corporation
Funding Amount
$123,936.00
Summary
Use of standard Fish Names achieves outcomes that are consistent with the aims of industry and governments: 1. Reduced mis-reporting improves fisheries monitoring, stock assessment and sustainability. 2. Reduced confusion over fish names increases efficiency in seafood marketing, consumer confidence and industry profitability. 3. Improved accuracy in trade descriptions and labelling enables consumers to make more informed choices when purchasing seafood and reduces the potential for ....Use of standard Fish Names achieves outcomes that are consistent with the aims of industry and governments: 1. Reduced mis-reporting improves fisheries monitoring, stock assessment and sustainability. 2. Reduced confusion over fish names increases efficiency in seafood marketing, consumer confidence and industry profitability. 3. Improved accuracy in trade descriptions and labelling enables consumers to make more informed choices when purchasing seafood and reduces the potential for misleading and deceptive conduct. 4. Improved traceability results in more efficient management of seafood related public health incidents (including recalls) and food safety.
The commitment to standardizing Fish Names in Australia has been undertaken since the late 1970s. Strategic investments by the FRDC and SSA leadership on standardizing Fish Names culminated in the development of the Australian Fish Names Standard AS-SSA 5300-2007(AFNS).
Public and consumer confidence is vital to the well being of Australia’s seafood industry. Standard Fish Names remove confusion, strengthen consumer confidence, create market efficiency, underpin effective fisheries monitoring and improve management of food safety.
The AFNS contains agreed names for over 600 commercially important domestic and imported species of fish, and over 4,000 other domestic fish species. The process of assigning these agreed names involved the expertise of several of the world’s best fisheries taxonomists and other key stakeholders.
Development of the AFNS is underpinned by rigorous procedures agreed to by government, industry and other stakeholders and which are administered by SSA and its Fish Names Committee.
SSA is one of only 5 Standards Development Organizations (SDO) accredited by Standards Australia.
SSA has ongoing commitments to Standards Australia (including annual accreditation and audit costs) which must be met to maintain its accreditation as an SDO. Failure to do so will result in the Australian Fish Names Standard ceasing to exist and all files, etc passed on to Standards Australia.
Objectives: 1. 1. Ensure FRDC is accredited by Standards Australia as a Standards Development Organisation. 2. Continually improve the Australian Fish Names Standard AS SSA 5300 and underlying procedures to meet market, regulator and stakeholder needs and expectations. 3. Review and update Fish Names Procedures to incorporate improvements identified in the annual Standards Australia audit and feedback from stakeholders. 4. Improve the Fish Names website including the graphic design, usability and SEO (www.fishnames.com.au) 5. Provide a Fish Names Hotline service to support the adoption of standard fish names. 6. Promote the usage of Australian Standard Fish Names to the broader seafood industry. 7. Development of an alternative funding mechanism for the Administration of the Australian Fish Names Standard. 8. Undertake activities to further promote the uptake of fish names as agreed with FRDC (additional objective). Read moreRead less
Upgrade Of National Fisheries Database To Include Images An Common Names Of Australian Fishes
Funder
Fisheries Research and Development Corporation
Funding Amount
$315,422.00
Summary
Management decisions should be based on good quality data. Any steps taken to improve an inadequate baseline will eventually improve data quality and the subsequent cost effectiveness of obtaining these data. Any part of the baseline where confusion can arise should be identified and improved as soon as possible. The fisheries coding system knees to be enhanced to improve its functionality to clarify names and assist users when obtaining or vetting fish data. It will also prove an important ....Management decisions should be based on good quality data. Any steps taken to improve an inadequate baseline will eventually improve data quality and the subsequent cost effectiveness of obtaining these data. Any part of the baseline where confusion can arise should be identified and improved as soon as possible. The fisheries coding system knees to be enhanced to improve its functionality to clarify names and assist users when obtaining or vetting fish data. It will also prove an important baseline for a variety of other industry uses. The resources are presently available to improve this baseline and these may not be available in the future. It also coincides with a period of activity whereby the names our seafood will be standardised and legislated. The project is timely and should be completed now.
In addition to the commercial fishing industry, fish names are frequently referred to by an extremely broad variety of groups including administrators, aquarists, editors, educators, lawyers, legislators, recreational fishermen, scientists, seafood consumers and writers. The need for a standard list of common names of Australian fishes was eloquently flagged by eminent Australian scientist, Gilbert Whitley, some thirty years ago (see attached excerpt from his paper, appendix 4). A national nomenclatural standard covering all Australian fishes is long overdue - no such standard presently exists for secondary commercial any bycatch species. CAAB has now been adopted as the industry wide coding system but would be considerably more useful if it contained standardised common name information and an image of each species.
The unavailability or inconsistency use of common names of fish has created a problem for all sectors of the seafood industry. It has also led to serious confusion when interpreting catch return sheets and fisheries data based on common names. Even the guidelines of this application form (ie Project title and identification) request the use of the approved marketing mane of each species. However, most secondary commercial and almost all bycatch species have not been allocated a single approved common name.
Whereas the process of establishing single names for the main commercial species has been contentious, it is likely to be much simpler for the remaining fishes. If approached properly, the task only needs to be done once. The final product should be definitive work on the common names of Australian fishes requiring minimal alteration in the future.
The recently published Australian Seafood Handbook has created many enquiries from governmental and commercial groups wanting to gain access to images held in the CSIRO fish image library. However, in it s present form, this image collection cannot be accessed cost effectively.. The bulk of the collection is in celluloid format and the digital component has bot been assigned to a search and retrieval oriented database. Hence, it is presently grossly under utilised. A logical step is to digitise the collection and make the images freely available on the CAAB website, simultaneously improving accessibility and making CAAB more user friendly. Objectives: 1. To compile a draft list of common names of all Australian fishes for consideration by the Fish Names Committee and other stakeholders groups. 2. To scan and database high quality, digital images of Australian commercial and bycatch fishes and demonstrate their value in product promotion through associate websites and posters. 3. To upgrade the fisheries coding system website (CAAB) to include common names and images of Australian, fishes, enabling both easy and free access by industry. Read moreRead less