Investigating The Inclusion Of Vulnerable Populations In Advance Care Planning: Developing Complex And Sensitive Public Policy
Funder
National Health and Medical Research Council
Funding Amount
$379,368.00
Summary
People from Indigenous, and Culturally and Linguistically Diverse communities, and those living with chronic disease, tell us that current Advance Care Planning (ACP) policy and practice doesn’t meet their needs. This Partnership Project will work with these communities to develop inclusive, sensitive policy and practice for ACP— so all Australians get the care they deserve. It will also establish how to include vulnerable populations in developing health policy on complex and sensitive issues.
PREDICT Outcomes To Inform Services For Children With Cerebral Palsy
Funder
National Health and Medical Research Council
Funding Amount
$802,673.00
Summary
Every 15 hours a new child is born with Cerebral Palsy (CP). CP is due to an early static brain injury however physical problems can progress. Our PREDICT program will examine early measures of brain structure and motor development combined with growth, nutrition, physical activity, cognition, communication, participation, quality of life outcomes at 8 years and relate these to the costs of health care. These prediction models will inform the timing of early interventions, appropriate service pr ....Every 15 hours a new child is born with Cerebral Palsy (CP). CP is due to an early static brain injury however physical problems can progress. Our PREDICT program will examine early measures of brain structure and motor development combined with growth, nutrition, physical activity, cognition, communication, participation, quality of life outcomes at 8 years and relate these to the costs of health care. These prediction models will inform the timing of early interventions, appropriate service provision and projected costs of health care.Read moreRead less
Giving An Adult Life After Fontan Surgery To Those With The Most Severe Congenital Heart Conditions
Funder
National Health and Medical Research Council
Funding Amount
$1,295,355.00
Summary
The Fontan operation is the last of a series of operations performed for babies born with a single pumping heart chamber (ventricle). In the largest research of its kind, the Australia and New Zealand Fontan Registry partners with Heartkids, the parents’ association and the National Heart Foundation are intending to improve their life as they step into adulthood. We believe that our new standardised model of care will decrease their risk of experiencing adverse events such as stroke and reoperat ....The Fontan operation is the last of a series of operations performed for babies born with a single pumping heart chamber (ventricle). In the largest research of its kind, the Australia and New Zealand Fontan Registry partners with Heartkids, the parents’ association and the National Heart Foundation are intending to improve their life as they step into adulthood. We believe that our new standardised model of care will decrease their risk of experiencing adverse events such as stroke and reoperation.Read moreRead less
The Diabetes Renal Project: Better Outcomes For Patients With Diabetes And Chronic Kidney Disease
Funder
National Health and Medical Research Council
Funding Amount
$646,508.00
Summary
People with diabetes and chronic kidney disease (CKD) suffer from significant morbidity and premature mortality. Studies suggest a substantial gap between current recommended practices and treatment targets, which may be related to existing health services being unable to respond to these patients’ complex needs. This project aims to address this gap, by characterising the needs of patients, and the location, capacity and performance of existing health services. This work will ultimately inform ....People with diabetes and chronic kidney disease (CKD) suffer from significant morbidity and premature mortality. Studies suggest a substantial gap between current recommended practices and treatment targets, which may be related to existing health services being unable to respond to these patients’ complex needs. This project aims to address this gap, by characterising the needs of patients, and the location, capacity and performance of existing health services. This work will ultimately inform the design of a new model of care.Read moreRead less