A Longitudinal Study Of Psychopathology In People With Intellectual Disability
Funder
National Health and Medical Research Council
Funding Amount
$999,803.00
Summary
This project will further develop the research opportunities of an internationally unique 15 year follow up study of the mental health of young Australians with ID. We have shown that this group has 2-3 times the risk of suffering serious emotional and behavioural problems that are an added heavy burden on the individual, their family and carers and the community. These problems often are not recognised but are as common as schizophrenia in the community. The study will continue to use a combina ....This project will further develop the research opportunities of an internationally unique 15 year follow up study of the mental health of young Australians with ID. We have shown that this group has 2-3 times the risk of suffering serious emotional and behavioural problems that are an added heavy burden on the individual, their family and carers and the community. These problems often are not recognised but are as common as schizophrenia in the community. The study will continue to use a combination of questionnaire survey and in depth interviews of the young adults and their families or carers to track the course of their mental health. The study commenced in 1990 with nearly 1000 young people with ID aged 4-18 years and their progress has been reviewed every 2-3 years in over 75% of the original group. During the next 5 years we plan to follow their mental health during the critical stage of young adult life. During this time there is the greatest risk of mental illnesses such as depression and schizophrenia and the stresses of adjusting to new daily occupations, independent living or residential care and social contact away from the family. We will be able to study the specific emotional and behavioural problems faced by young adults with the main known causes of ID such as Down, Fragile X, Prader Willi and William Syndromes, as well as those who have autism. The great benefit of a long term follow up study is that it allows us to study the links between earlier family environmental, psychological and biological factors and subsequent mental health problems. We can also demonstrate the impact that mental illness in a young person with ID has on the family and parental mental health. The findings have implications for better diagnosis, improved care and management, early intervention and prevention of these common severe and under recognized mental health problems in this disadvantaged group of young Australians and their families and carers.Read moreRead less
Confronting everyday harms: preventing abuse of people with disability. The findings of the Disability Royal Commission necessitate new approaches to prevent violence, abuse, neglect and exploitation. Framed by recognition theory, this project proposes empirical research with young people with cognitive disability, using a new concept of ‘everyday harms’ in their paid relationships. The results will inform early responses to poor quality interactions in disability support. The strategic alliance ....Confronting everyday harms: preventing abuse of people with disability. The findings of the Disability Royal Commission necessitate new approaches to prevent violence, abuse, neglect and exploitation. Framed by recognition theory, this project proposes empirical research with young people with cognitive disability, using a new concept of ‘everyday harms’ in their paid relationships. The results will inform early responses to poor quality interactions in disability support. The strategic alliances with the government, industry and community partners will develop a practice framework to prevent everyday harms and the escalation to abuse, and to promote safety and wellbeing. The research has policy benefits for capacity-building in the sector to act on the rights and voices of people with disability. Read moreRead less
Young people with cognitive disability: relationships and paid support. This project aims to improve the rights and wellbeing of young people with cognitive disability by exploring their relationship and interaction with paid support workers. The introduction of national individualised funding and support is a watershed in Australian disability policy. Understanding the role that paid support plays in the ongoing identity development of these young people is urgently needed to realise national p ....Young people with cognitive disability: relationships and paid support. This project aims to improve the rights and wellbeing of young people with cognitive disability by exploring their relationship and interaction with paid support workers. The introduction of national individualised funding and support is a watershed in Australian disability policy. Understanding the role that paid support plays in the ongoing identity development of these young people is urgently needed to realise national policy aspirations for people with disability of rights, choice, inclusion and independence. Using social geography and recognition theory, the project expects to deliver new understanding and improved practice around how paid support relationships can foster mutual care, respect and value at a critically important time in young people’s lives.Read moreRead less
Linkage Infrastructure, Equipment And Facilities - Grant ID: LE210100013
Funder
Australian Research Council
Funding Amount
$600,000.00
Summary
Nyingarn: a platform for primary sources in Australian Indigenous languages. This project aims to build Nyingarn, an online platform of digital text versions of early Australian Indigenous language manuscripts with images of the original documents. There are over a thousand such documents that are foundational to understanding Australia's languages, and Nyingarn makes textual versions, accessions, and navigates such documents, with a means for adding more in future. Expected outcomes of this pro ....Nyingarn: a platform for primary sources in Australian Indigenous languages. This project aims to build Nyingarn, an online platform of digital text versions of early Australian Indigenous language manuscripts with images of the original documents. There are over a thousand such documents that are foundational to understanding Australia's languages, and Nyingarn makes textual versions, accessions, and navigates such documents, with a means for adding more in future. Expected outcomes of this project are accessible sources useful for educational materials, and for understanding the local language, its history, and its relationship to other languages. Nyingarn will provide cutting-edge methods for ingesting, analysing, and presenting these historical materials, both for research and for the general public.Read moreRead less
Locating LGBTIQ+ youth in the archive: Telling new stories for belonging. This project aims to produce the first study of LGBTIQ+ youth in Australia’s past and investigate what these histories mean to LGBTIQ+ youth today. We will generate new knowledge of Australian LGBTIQ+ history and links between historical knowledge and wellbeing in relation to LGBTIQ+ youth. Working with LGBTIQ+ youth we will also develop new archival storytelling techniques, theorising archives as ‘laboratories of belongin ....Locating LGBTIQ+ youth in the archive: Telling new stories for belonging. This project aims to produce the first study of LGBTIQ+ youth in Australia’s past and investigate what these histories mean to LGBTIQ+ youth today. We will generate new knowledge of Australian LGBTIQ+ history and links between historical knowledge and wellbeing in relation to LGBTIQ+ youth. Working with LGBTIQ+ youth we will also develop new archival storytelling techniques, theorising archives as ‘laboratories of belonging’. In doing so, the project forges links between cultural studies of storytelling, LGBTIQ+ youth studies and Australian history. Benefits include innovations in reparative historical methodologies, new resources for the GLAM, youth and education sectors and improvements in LGBTIQ+ youth wellbeing.Read moreRead less
The transition from secondary school to adulthood: Experiences and life outcomes for youth with an intellectual disability and their families. This project seeks to explore the challenges faced and outcomes achieved by students with an intellectual disability as they move from secondary school into adult life. The study will investigate the factors at an individual, educational, family, and societal level which positively and adversely affect outcomes for young people with an intellectual disab ....The transition from secondary school to adulthood: Experiences and life outcomes for youth with an intellectual disability and their families. This project seeks to explore the challenges faced and outcomes achieved by students with an intellectual disability as they move from secondary school into adult life. The study will investigate the factors at an individual, educational, family, and societal level which positively and adversely affect outcomes for young people with an intellectual disability and their families. Family impacts can include significant loss of income as parents may have to cease employment to care for their young adult who has limited employment or day placement options. Gaining the knowledge to minimise the disruption to family life, which often occurs at this time of transition, will lead to strengthening Australia's social and economic fabric.Read moreRead less
New approaches measuring Australia’s creative workforce: Beyond the Census . This project aims to develop new approaches to measuring Australia’s creative workforce to address increasingly urgent questions about the value of this growing but poorly understood part of the economy and society. It expects to develop and demonstrate novel methods for capturing a range of creative activity currently at the margins of traditional measurement typified by the Census. Expected outcomes, which will benefi ....New approaches measuring Australia’s creative workforce: Beyond the Census . This project aims to develop new approaches to measuring Australia’s creative workforce to address increasingly urgent questions about the value of this growing but poorly understood part of the economy and society. It expects to develop and demonstrate novel methods for capturing a range of creative activity currently at the margins of traditional measurement typified by the Census. Expected outcomes, which will benefit industry partners, the cultural and creative industries, and international scholarship, include new understandings of the scope of creative qualifications, the contribution of creatives working outside the creative industries, the extent of second and other incomes, and the value of volunteering and online entrepreneurship.Read moreRead less
Effective clinical handover communication: improving patient safety, experiences and outcomes. Communication in clinical handover (transfer of responsibility for patient care) plays a causal role in many adverse events. This project will contribute new knowledge for improvements in handover communication which will be shared across hospitals and health departments nationally to improve patient safety and reduce healthcare costs.
ARC Centre of Excellence for Indigenous and Environmental Histories and Futures. ARC Centre of Excellence for Indigenous and Environmental Histories and Futures. The proposed Centre aims to generate a new direction in knowledge creation based on Aboriginal- and Torres Strait Islander-led approaches to managing Land and Sea Country. The Centre expects to make a legacy contribution by developing complementary Indigenous and Western knowledge frameworks for modelling environmental, cultural, and hi ....ARC Centre of Excellence for Indigenous and Environmental Histories and Futures. ARC Centre of Excellence for Indigenous and Environmental Histories and Futures. The proposed Centre aims to generate a new direction in knowledge creation based on Aboriginal- and Torres Strait Islander-led approaches to managing Land and Sea Country. The Centre expects to make a legacy contribution by developing complementary Indigenous and Western knowledge frameworks for modelling environmental, cultural, and historical change in Australia over the last millennium and into the near future. Expected outcomes focus on sustainable Indigenous land and sea management planning for future decades. Benefits include improved forecasting of the trajectory of environmental change, an increase in the capacity of Indigenous research, creation of a pipeline for Indigenous students into research, and evidence-based policy-making.Read moreRead less
Indigenous nationhood in the absence of recognition: Self-governance insights and strategies from three Aboriginal communities. Based on evidence that effective governance is a necessary precursor to Indigenous communities’ economic, social and cultural outcomes, this project aims to strengthen Australian Indigenous communities by learning and sharing lessons about sustainable and effective Indigenous governance. In collaboration with three Aboriginal communities in Victoria, South Australia and ....Indigenous nationhood in the absence of recognition: Self-governance insights and strategies from three Aboriginal communities. Based on evidence that effective governance is a necessary precursor to Indigenous communities’ economic, social and cultural outcomes, this project aims to strengthen Australian Indigenous communities by learning and sharing lessons about sustainable and effective Indigenous governance. In collaboration with three Aboriginal communities in Victoria, South Australia and New South Wales that are differentially engaged in Indigenous governance processes, the project aims to identify innovation in community governance, test the usefulness of Australian governance assessment tools, and foster an Indigenous Australian and global network to share successful strategies. In doing so, the project contributes to an emerging theory of Indigenous nation building.Read moreRead less