Special Research Initiatives - Grant ID: SR0354765
Funder
Australian Research Council
Funding Amount
$10,000.00
Summary
Developing a multidisciplinary international research network focussed on maximizing the social and health benefits to Australia of human genetic technologies. The initiative will build upon the Centre for Law and Genetics' existing informal networks, resources and infrastructure with the aim of constructing an Australian based multidisciplinary research network, with extensive functional global links. The network will be designed to facilitate and coordinate collaboration across disciplines, in ....Developing a multidisciplinary international research network focussed on maximizing the social and health benefits to Australia of human genetic technologies. The initiative will build upon the Centre for Law and Genetics' existing informal networks, resources and infrastructure with the aim of constructing an Australian based multidisciplinary research network, with extensive functional global links. The network will be designed to facilitate and coordinate collaboration across disciplines, institutions and geographic boundaries to address the legal, ethical, social, and policy implications of human genetic technologies. It will aim to maximise the social and health benefits in the most effective, efficient and economic manner; avoiding duplication and promoting the free exchange of ideas and information, and fostering cooperative effort on a global scale.Read moreRead less
Commercial risk management in the health environment: exploring the legal and ethical boundaries of consent in genetic diagnostic research. There is little empirical research on consent in clinical research, particularly genetic diagnostic testing, despite its key significance to risk management in medical research practice. This study analyses consent procedures of clinicians and researchers for individual research participants. Key clinicians and Laboratory Heads engaged in genetic diagnostic ....Commercial risk management in the health environment: exploring the legal and ethical boundaries of consent in genetic diagnostic research. There is little empirical research on consent in clinical research, particularly genetic diagnostic testing, despite its key significance to risk management in medical research practice. This study analyses consent procedures of clinicians and researchers for individual research participants. Key clinicians and Laboratory Heads engaged in genetic diagnostic research will be interviewed and consent forms assessed. This will produce identification of trends in consent procedures and baseline information for national studies. The significance is the priority accorded genetic research, the need for adequate risk management in that context and development of optimal consent procedures and policy at State and National levels.Read moreRead less