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Pathways to and through palliative care: a sociological study of patient, carer and clinician experiences at the end-of-life. Palliative care services provide care and support for families, carers and individuals trying to cope with the challenges presented at the end of life. This project will provide critical policy and practice-relevant data in order to improve our understanding of, and support for, the dying process in Australia.
Understanding the implications of pandemic delays for the end of life. The untold toll of Covid-19 is emerging in ‘avoidable deaths’ linked to late(r) diagnosis or treatment due to pandemic-related delay. How delays are experienced and felt across families and communities requires urgent attention. This project aims to understand the implications of pandemic delay for dying and bereavement, including the sociocultural factors that shape experiences of illness and care amid delay. The significanc ....Understanding the implications of pandemic delays for the end of life. The untold toll of Covid-19 is emerging in ‘avoidable deaths’ linked to late(r) diagnosis or treatment due to pandemic-related delay. How delays are experienced and felt across families and communities requires urgent attention. This project aims to understand the implications of pandemic delay for dying and bereavement, including the sociocultural factors that shape experiences of illness and care amid delay. The significance of this project lies in its innovative sociological approach; expected outcomes include the generation of new knowledge on needs at the end of life that move across contexts and settings. Benefits include provision of findings that will inform social and health policy and practice improvements to enable good deaths.Read moreRead less
Development and evaluation of computer assisted survey technology as an adjunct to the professional consultation. The project aims to test the effectiveness of computer technology as an adjunct to the client-provider interaction in General Medical Practice. An innovative system for generating dietary assessment and advice will be developed, supporting both local software and multi media industries and providing data on population based interventions for prevalent lifestyle disease (obesity, diab ....Development and evaluation of computer assisted survey technology as an adjunct to the professional consultation. The project aims to test the effectiveness of computer technology as an adjunct to the client-provider interaction in General Medical Practice. An innovative system for generating dietary assessment and advice will be developed, supporting both local software and multi media industries and providing data on population based interventions for prevalent lifestyle disease (obesity, diabetes). The study involves developing the technology, evaluating its use in practice and researching the opinions of key stakeholders (consumers, GPs dietitians) on the position of this technology in the client-provider interaction.Read moreRead less
An action research project to strengthen inter-professional learning and practice across the ACT health system. There are 14 beneficial reasons why this project is vital to the fabric of our nation. These include: the economic benefits of a more efficient health-care system; the social benefits of more responsive and resilient workplaces; the research benefits of better knowledge about how professionals can work together effectively; the consumer benefits of improved patient care; health sector ....An action research project to strengthen inter-professional learning and practice across the ACT health system. There are 14 beneficial reasons why this project is vital to the fabric of our nation. These include: the economic benefits of a more efficient health-care system; the social benefits of more responsive and resilient workplaces; the research benefits of better knowledge about how professionals can work together effectively; the consumer benefits of improved patient care; health sector benefits in assisting health reforms to be more effective; and education sector benefits in understanding how professionals from different disciplines can learn together more collaboratively. The benefits are transferable to other industries and professional groups, as well as to Australia's international partners.Read moreRead less
Caring at end of life: understanding the nature and effect of informal community care networks for people dying at home. This project will provide an understanding of the function and purpose of caring networks for people at the end of their life, specifically for people who are dying at home. This understanding will enable the development of communities capacity in addition to informing a national health promotion approach to palliative care.
Discovery Early Career Researcher Award - Grant ID: DE170100440
Funder
Australian Research Council
Funding Amount
$372,000.00
Summary
A sociological study of cancer. This project aims to study the experiences of Australian women with advanced, incurable breast cancer, including their illness, wellness and survivorship experiences. It will examine how women negotiate the uncertainties of survivorship and the knowledge of clinical terminality. Focusing on women who seek to live with, rather than die from, cancer is expected to advance sociological understandings of uncertainty, insecurity and biographical and social complexity a ....A sociological study of cancer. This project aims to study the experiences of Australian women with advanced, incurable breast cancer, including their illness, wellness and survivorship experiences. It will examine how women negotiate the uncertainties of survivorship and the knowledge of clinical terminality. Focusing on women who seek to live with, rather than die from, cancer is expected to advance sociological understandings of uncertainty, insecurity and biographical and social complexity and provide end-user, translatable knowledge for improving care and support for women.Read moreRead less
Cultural biographies, medical knowledges: A sociological study. Cultural biographies, medical knowledges: A sociological study. This project aims to push the cancer care sector toward person-centred care rather than simply ‘accommodating cultural diversity’. Cancer is much more than just the leading burden of disease in Australia; it is a social and cultural entity, experienced in hugely varied ways within and across communities, subtly reflecting individual histories and cultural biographies. T ....Cultural biographies, medical knowledges: A sociological study. Cultural biographies, medical knowledges: A sociological study. This project aims to push the cancer care sector toward person-centred care rather than simply ‘accommodating cultural diversity’. Cancer is much more than just the leading burden of disease in Australia; it is a social and cultural entity, experienced in hugely varied ways within and across communities, subtly reflecting individual histories and cultural biographies. This project will use oral life history and visual methods to understand the interplay of migrants' cultural biographies, their experiences of cancer, and the care they receive. Anticipated outcomes are improved care for migrants living with cancer, person-centred care, and inclusive policy strategies and guides for practice.Read moreRead less
Effective communication and improved patient safety: Addressing the complexities of managing high risk medications in metropolitan and regional hospitals. Current costs of hospital-related incidents are around AU$2 billion per year, and the most common cause of these incidents is ineffective communication. Medication incidents relating to use of high risk medications are particularly critical because of the increased severity of patient outcomes. High risk medications are administered in busy en ....Effective communication and improved patient safety: Addressing the complexities of managing high risk medications in metropolitan and regional hospitals. Current costs of hospital-related incidents are around AU$2 billion per year, and the most common cause of these incidents is ineffective communication. Medication incidents relating to use of high risk medications are particularly critical because of the increased severity of patient outcomes. High risk medications are administered in busy environments, and involve patients who are cared for by many different health professionals in technologically complex settings. These factors increase the likelihood of more medication incidents. The unique knowledge obtained will inform policies and identify strategies for better communication. Health professionals and patients can adopt these strategies to improve medication safety.Read moreRead less
Discovery Early Career Researcher Award - Grant ID: DE150100285
Funder
Australian Research Council
Funding Amount
$372,000.00
Summary
Who cares? A sociological study of informal care at the end of life. It is often said that a society can be measured by how it cares for its most vulnerable people. Informal care for people nearing the end of life, often provided by family and friends, is a vital area of care for the vulnerable, and is coming under significant pressure in Australia. Our capacity to care is being challenged by economic, social and cultural shifts. This project aims to examine systematically the character of infor ....Who cares? A sociological study of informal care at the end of life. It is often said that a society can be measured by how it cares for its most vulnerable people. Informal care for people nearing the end of life, often provided by family and friends, is a vital area of care for the vulnerable, and is coming under significant pressure in Australia. Our capacity to care is being challenged by economic, social and cultural shifts. This project aims to examine systematically the character of informal care from multi-stakeholder perspectives, providing policy and practice-relevant evidence for better support and understanding of the role and significance of informal care for people approaching the end of life in Australian society.Read moreRead less
Navigating an uncertain antimicrobial future: a sociological study. This project aims to develop a unique understanding of what governs antibiotic use in the health sector and how it can be governed more effectively. The project will critically assess the implementation of governance, and how regulatory and legislative environments may resonate or contrast with the demands of practice. This will support the development of strategies to improve antibiotic use and reduce resistance.