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Palliative Care Constituency, Utilisation & Impact On Health Care: A Western Australia Based Epidemiology & Sociological
Funder
National Health and Medical Research Council
Funding Amount
$150,000.00
Summary
Using the Western Australian linked database and in consultation with palliative care service providers, the study will: 1. Study patterns of palliative care delivery during the last 12 months of life, comparing utilisation between different socio-demographic groups and cause of death. 2. Study the relationships between the services provided and the terminally ill. 3. Develop a definition of those who utilise designated palliative care programs and apply it to ....Using the Western Australian linked database and in consultation with palliative care service providers, the study will: 1. Study patterns of palliative care delivery during the last 12 months of life, comparing utilisation between different socio-demographic groups and cause of death. 2. Study the relationships between the services provided and the terminally ill. 3. Develop a definition of those who utilise designated palliative care programs and apply it to the population of Western Australia in 1994-1999. 4. Develop a forecasting model to optimise the planning and delivery of palliative care service in Australia.Read moreRead less
Determining Critical Points In The Potential Palliative Care Pathway In The Last Year Of Life
Funder
National Health and Medical Research Council
Funding Amount
$356,461.00
Summary
People with serious illnesses who are approaching the end of their lives undergo a journey where, along the way, they experience several critical points. Although we know these critical points are crucial to how they might access the best kind of care, we are unsure exactly when these points may occur and how they may vary for different kinds of people. We need to know when is the best time to start withdrawing invasive and purely curative treatments, when are discussions about approaching death ....People with serious illnesses who are approaching the end of their lives undergo a journey where, along the way, they experience several critical points. Although we know these critical points are crucial to how they might access the best kind of care, we are unsure exactly when these points may occur and how they may vary for different kinds of people. We need to know when is the best time to start withdrawing invasive and purely curative treatments, when are discussions about approaching death best introduced and how we can care for people from a diverse range of backgrounds and beliefs within our current health care system. We also need to identify and promote the best possible ways of supporting patients at the end of life and their families as they negotiate the often complex path towards a good death. With this kind of information, health care practitioners, particularly those involved in palliative care, can design better services that put in place pathways where assessment of patient and family needs, referral to the most appropriate services and coordination of all the aspects of care are easy to understand and access for all people. This kind of care can be expensive so we need to use the money allocated to palliative care wisely. This can be achieved with thoughtful research that identifies those most in need, at the time of most need and investigates the best approaches to alleviating pain in suffering in the weeks and months before death. A fair and equitable health care system is not just about keeping people healthy, but also about dealing humanely with the inevitability of deathRead moreRead less
Development And Implementation Of An Educational Program To Guide Palliative Care For People With Motor Neurone Disease
Funder
National Health and Medical Research Council
Funding Amount
$258,525.00
Summary
The project aims to improve the quality of care for people with MND and their family carers through the development, testing and implementation of an educational program for health professionals and other service providers focused on the palliative care needs of this population. The project is taking place in three sites: Western Australia, Victoria and South Australia, in collaboration with the MND associations in the three states. The effectiveness of the flexible model of care provided to peo ....The project aims to improve the quality of care for people with MND and their family carers through the development, testing and implementation of an educational program for health professionals and other service providers focused on the palliative care needs of this population. The project is taking place in three sites: Western Australia, Victoria and South Australia, in collaboration with the MND associations in the three states. The effectiveness of the flexible model of care provided to people with MND and their carers as a result of the implementation of the MND Education Program will be assessed and a national implementation plan will be developed.Read moreRead less
Dementia Literacy In Greek, Italian And Chinese Australians
Funder
National Health and Medical Research Council
Funding Amount
$228,473.00
Summary
The dementia knowledge and beliefs of persons from Italian, Greek and Chinese backgrounds will be compared to third generation Australians. Five hundred persons from each group will be randomly selected from around Australia to be surveyed by telephone. Questions will assess whether dementia symptoms are recognised, what these persons think causes dementia, where they would go for help, how likely they are to use aged care services and stigma towards persons with dementia. Focus groups will be c ....The dementia knowledge and beliefs of persons from Italian, Greek and Chinese backgrounds will be compared to third generation Australians. Five hundred persons from each group will be randomly selected from around Australia to be surveyed by telephone. Questions will assess whether dementia symptoms are recognised, what these persons think causes dementia, where they would go for help, how likely they are to use aged care services and stigma towards persons with dementia. Focus groups will be conducted to identify barriers to service use and identify methods to improve dementia knowledge in Italian, Greek and Chinese groups. This information will be used to improve community education and service delivery for persons with dementia from culturally and linguistically diverse backgrounds. The Primary Dementia Collaborative Research Centre at the University of NSW, NSW Multicultural Health Communication Service and Alzheimer’s Australia are partners in this research.Read moreRead less
Sustainability & Transferability Of An Effective Community Based Management System For Diabetes In Remote Indigenous Com
Funder
National Health and Medical Research Council
Funding Amount
$414,600.00
Summary
This project aims to improve systems for secondary prevention of CVD among Indigenous adults in remote communities in NW Queensland and ultimately to improve patient outcomes in this high risk group. The intervention is aimed at the three domains of health systems: the community and client group, clinical services and health management systems. The intervention is centred around increasing the capacity of Indigenous health Workers (IHW's) to manage recall and reminder systems for CHD in communit ....This project aims to improve systems for secondary prevention of CVD among Indigenous adults in remote communities in NW Queensland and ultimately to improve patient outcomes in this high risk group. The intervention is aimed at the three domains of health systems: the community and client group, clinical services and health management systems. The intervention is centred around increasing the capacity of Indigenous health Workers (IHW's) to manage recall and reminder systems for CHD in communities, supported by appropriate training and systems changes. The project will liaise closely with the client and community groups and aim to improve capacity for effective self-management of cardiovascular disease among clients. The study will evaluate the effectiveness of this complex intervention in 3 sites over two years, with 2 control communitiesRead moreRead less
Development Of A Palliative Care Service For Rural And Remote Communities
Funder
National Health and Medical Research Council
Funding Amount
$150,000.00
Summary
This project will develop, implement and evaluate a new model of providing palliative care to individuals in rural and remote communities that will utilise existing health and community resources to provide palliative care. As the number of patients requiring palliation in rural and remote communities is small, the service may not function at all times but come together (pop-up) as required. Evaluation of the model in three different types of rural communities will be undertaken in three states ....This project will develop, implement and evaluate a new model of providing palliative care to individuals in rural and remote communities that will utilise existing health and community resources to provide palliative care. As the number of patients requiring palliation in rural and remote communities is small, the service may not function at all times but come together (pop-up) as required. Evaluation of the model in three different types of rural communities will be undertaken in three states (New South Wales, Queensland and West Australia). Phase I will develop a framework to assist rural communities undertake a critical palliative care service review. Phase II will implement and evaluate the model, leading to recommendations for provision of best practice palliative care more generally in rural communities.Read moreRead less