What Do Australians Think About Privacy And Participation In Epidemiological Research?
Funder
National Health and Medical Research Council
Funding Amount
$443,015.00
Summary
There is very little research available, in Australia or internationally, about what the general public considers privacy to be; or how important privacy protection is in the context of high and low risk epidemiological studies. We also know little about what affects willingness to participate in epidemiological research. Our research will provide an evidence base, and develop resources for the legislature, the NHMRC, ethics committees and researchers.
An Investigation Of The Relationship Between The Pharmaceutical Industry, Medical Profession And Medical Practitioners
Funder
National Health and Medical Research Council
Funding Amount
$186,449.00
Summary
In recent years there has been a rapid expansion in the number and range of interactions between the pharmaceutical industry and the medical profession. While this has the potential to advance research, education and health care, there are risks that such interactions may inappropriately serve commercial objectives and ultimately compromise the best interests of patients and society in general. Most major medical and pharmaceutical organisations have released guidelines of policy statements on t ....In recent years there has been a rapid expansion in the number and range of interactions between the pharmaceutical industry and the medical profession. While this has the potential to advance research, education and health care, there are risks that such interactions may inappropriately serve commercial objectives and ultimately compromise the best interests of patients and society in general. Most major medical and pharmaceutical organisations have released guidelines of policy statements on the relationship between the medical profession and the pharmaceutical industry. To date most debate has taken the form of personal observations or professional opinion , and there has been little objective research into medical industry interactions. This project aims to examine the relationship between the pharmaceutical industry, the medical profession and the medical practitioners. Specifically, the aim of this project is to establish whether this relationship as it currently exists, and as stated in guidelines from professional bodies, is appropriate in terms of justifiable ethical standards, empirical research and social perspectives. The results of this research will enable assessment of current guidelines and the development of further guidelines and regular process where appropriate.Read moreRead less
Discovery Early Career Researcher Award - Grant ID: DE120100488
Funder
Australian Research Council
Funding Amount
$375,000.00
Summary
When should health professionals override parents' decisions about a child's medical treatment? Doctors and nurses sometimes disagree with parents' decisions about the best treatment for a sick child. This project will establish the ethical responsibilities of both parents and health professionals in relation to medical decision-making for children.
How do we know what works: ethics and evidence in surgical research. This project will make surgery safer for patients by improving our understanding of evidence in surgery. We will look at the question "what works" in surgery. The resources we develop will help practitioners and regulators to better navigate and manage the complex ethical and practical challenges in this field.
Caring for Asylum Seekers in Australia: Bioethics and Human Rights. Australia's policy of mandatory detention has been criticised at home and abroad. This research will bring together both empirical and reflective material about that policy by those who have seen its effects first hand, which will make an important contribution to national self-definition. The research process itself will bring together practitioners who have worked in the field, many of whom have expressed the need for recordin ....Caring for Asylum Seekers in Australia: Bioethics and Human Rights. Australia's policy of mandatory detention has been criticised at home and abroad. This research will bring together both empirical and reflective material about that policy by those who have seen its effects first hand, which will make an important contribution to national self-definition. The research process itself will bring together practitioners who have worked in the field, many of whom have expressed the need for recording their experiences, and guidelines as to how to practice in the future when human rights issues form a part of clinical practice. As such, the project will contribute to other areas of healthcare where such issues are present, such as indigenous health, mental health, and the care of other vulnerable populations. Read moreRead less
On the cutting edge: promoting best practice in surgical innovation. Surgical innovation leads to beneficial healthcare outcomes, but frequently at an ethical, legal and regulatory cost. This project aims to address these challenges by developing conceptual tools and regulatory mechanisms which promote patient safety and support those who practice, manage and govern surgery.
Defining disease: Addressing the problem of overdiagnosis. This project will investigate and define the limits of physical disease, to answer questions about when a presentation is a disease, and when it is simply a risk factor or mild condition. The ensuing account of disease will make a practical contribution to growing international concern about asymptomatic people being diagnosed and treated for conditions that will not cause any health problems ("overdiagnosis"). The research will provide ....Defining disease: Addressing the problem of overdiagnosis. This project will investigate and define the limits of physical disease, to answer questions about when a presentation is a disease, and when it is simply a risk factor or mild condition. The ensuing account of disease will make a practical contribution to growing international concern about asymptomatic people being diagnosed and treated for conditions that will not cause any health problems ("overdiagnosis"). The research will provide normative grounds for evaluating disease claims. Results will reduce the harm caused by people receiving treatment that they do not require, make a practical contribution to debates about the scope of health care, and yield findings that can help to reduce the cost-burdens associated with overdiagnosis.Read moreRead less