The Australian Research Data Commons (ARDC) invites you to participate in a short survey about your
interaction with the ARDC and use of our national research infrastructure and services. The survey will take
approximately 5 minutes and is anonymous. It’s open to anyone who uses our digital research infrastructure
services including Reasearch Link Australia.
We will use the information you provide to improve the national research infrastructure and services we
deliver and to report on user satisfaction to the Australian Government’s National Collaborative Research
Infrastructure Strategy (NCRIS) program.
Please take a few minutes to provide your input. The survey closes COB Friday 29 May 2026.
Complete the 5 min survey now by clicking on the link below.
Strengthening Community Based Paliative Care Services: Towards A Better Understanding Of Medical Aspects Of Caring For C
Funder
National Health and Medical Research Council
Funding Amount
$68,892.00
Summary
Caring for children [and their families] in the palliative phase of an illness offers unique challenges. Community based palliative care programs provide a predominantly adult focused service, their experience with children being limited by smaller numbers. This study aims to better characterize the medical aspects of caring for terminally ill children in Australia, thru the use of a parental survey in a large representative cohort at the Royal Children's Hospital, Melbourne (RCH). The focus wil ....Caring for children [and their families] in the palliative phase of an illness offers unique challenges. Community based palliative care programs provide a predominantly adult focused service, their experience with children being limited by smaller numbers. This study aims to better characterize the medical aspects of caring for terminally ill children in Australia, thru the use of a parental survey in a large representative cohort at the Royal Children's Hospital, Melbourne (RCH). The focus will be to identify issues relating to symptom assessment and management, family and caregiver support and psychosocial-bereavement support. The knowledge gained will be used to redesign-strengthen links between paediatric hospitals and community based palliative care programs.Read moreRead less
Improving Communication Processes And End Of Life Care In The Neonatal Period: Drawing On The Experiences Of Parents And Health Care Professionals
Funder
National Health and Medical Research Council
Summary
The parents of infants who have died in newborn intensive care, as well the professionals who care for these infants, will be invited to share their experiences of the conversations that took place around the time of the infant's death and how these contributed to the care provided. It is intended that the care of future infants who die under the care of the neonatal team will be improved through dissemination of this knowledge and associated improvements in training of professionals involved in ....The parents of infants who have died in newborn intensive care, as well the professionals who care for these infants, will be invited to share their experiences of the conversations that took place around the time of the infant's death and how these contributed to the care provided. It is intended that the care of future infants who die under the care of the neonatal team will be improved through dissemination of this knowledge and associated improvements in training of professionals involved in this field.Read moreRead less
Discovery Early Career Researcher Award - Grant ID: DE150101921
Funder
Australian Research Council
Funding Amount
$357,000.00
Summary
Effects of reducing sitting on toddlers’ executive functions: Cluster RCT. The levels of sedentary behaviour are now alarmingly high in toddlers, yet little is known about the effect of this behaviour on cognitive development and executive functions during early childhood. This 15 month cluster randomised controlled trial will examine the effects of reduced sitting time on cognitive development and executive functions in Australian toddlers from low socio-economic families. This project aims to ....Effects of reducing sitting on toddlers’ executive functions: Cluster RCT. The levels of sedentary behaviour are now alarmingly high in toddlers, yet little is known about the effect of this behaviour on cognitive development and executive functions during early childhood. This 15 month cluster randomised controlled trial will examine the effects of reduced sitting time on cognitive development and executive functions in Australian toddlers from low socio-economic families. This project aims to develop and implement evidence-based strategies and policies designed to optimise developmental and health outcomes in young children, specifically in those from a low socio-economic status, thus giving young children the best start in life.Read moreRead less
Discovery Early Career Researcher Award - Grant ID: DE140101588
Funder
Australian Research Council
Funding Amount
$392,459.00
Summary
Do physical activity and electronic screen behaviours influence cognitive and psychosocial development in preschool children? Levels of physical inactivity and screen-based entertainment are alarmingly high among preschool children, yet little is known about the independent effects of these behaviours on cognitive and psychosocial development during early childhood. This project will investigate the associations between physical activity and screen-based entertainment and cognitive and psychosoc ....Do physical activity and electronic screen behaviours influence cognitive and psychosocial development in preschool children? Levels of physical inactivity and screen-based entertainment are alarmingly high among preschool children, yet little is known about the independent effects of these behaviours on cognitive and psychosocial development during early childhood. This project will investigate the associations between physical activity and screen-based entertainment and cognitive and psychosocial development in preschool children. The findings will identify how much and which types of these behaviours influence developmental outcomes in young children. This knowledge will benefit parents, educators, health professionals and governments to develop and implement evidence-based strategies and policies to give young children the best start in life.Read moreRead less
Psychosocial and economic impacts of rare diseases on Australian children, families and health professionals. Rare childhood diseases have enormous impacts on children and families; health services, and health professionals. This project will enable Australia to lead the international research effort by using a coordinated approach to study the impacts of rare diseases in order to improve psychosocial, health and economic outcomes for children and families.
Tracking blood and blood products for a healthy start to life. This project will aim to coalesce multiple data sources to track blood and blood products from supply to recipient and improve safe and appropriate blood product transfusions for mothers and newborns. Tracking blood will assist in early identification of adverse outcomes. Identification of at-risk women and babies will allow early prevention and treatment.
Optimising Evidence-based, Equitable And Efficient Care For Common Child Health Conditions.
Funder
National Health and Medical Research Council
Funding Amount
$481,156.00
Summary
Care for common conditions such as sleep problems, mental health disorders, and food allergy is often plagued by mismanagement, long wait times, inequitable access, and waste. These factors can worsen child health and quality of life, increase financial and social pressures on families, and deplete the limited health budget. I will develop, implement and evaluate innovative and sustainable solutions to improve care, access to care, and reduce waste in these conditions.
Improving the participation of young people with chronic illness in triadic medical discussions about their health. This research will identify key strategies for empowering young people and improving their participation in medical communication about chronic illness. Project outcomes will include the development of guidelines and educational resources to support young people, parents and doctors to achieve open, inclusive communication in medical settings.
The prevalence of food allergy (FA) has risen dramatically in the last 20 years. Strong evidence suggests that undetermined lifestyle factors are central to this modern phenomenon. We will develop a CRE in Paediatric FA and Food-related Immune Disorders, providing international leadership in public health initiatives to stem the tide of FA and related disorders. We are uniquely placed to provide evidence-based guidelines that will inform public health policy and clinical care of patients.