Vulnerability, autonomy and justice. Vulnerable people require assistance and care. But what are our responsibilities in relation to the vulnerable? And how can we provide assistance and care while avoiding stereotyping or paternalism? This research will advance ethical theory and be useful in solving practical problems in health research and policy.
A narrative theory of ethics. The project aims to conduct a detailed investigation into a narrative approach to ethics. Narrative is an increasingly popular but relatively under-theorised concept. Taking as its basis work in narrative theory and ethics by Paul Ricoeur, the project aims to provide an innovative conceptual scheme which incorporates recent philosophical accounts of selfhood, emodiment, autonomy, action, and pluralistic conceptions of the good. The project will result in a major con ....A narrative theory of ethics. The project aims to conduct a detailed investigation into a narrative approach to ethics. Narrative is an increasingly popular but relatively under-theorised concept. Taking as its basis work in narrative theory and ethics by Paul Ricoeur, the project aims to provide an innovative conceptual scheme which incorporates recent philosophical accounts of selfhood, emodiment, autonomy, action, and pluralistic conceptions of the good. The project will result in a major contribution to scholarship in philosophy and ethics, as well as to the articulation of notions such as identity, subjectivity, trust, rights, obligation and accountability, across the social sciences.Read moreRead less
Ensuring The Utility And Sustainability Of Tissue Banks: Supporting Translational Research In Australia Through Informed Regulation And Community Engagement.
Funder
National Health and Medical Research Council
Funding Amount
$481,885.00
Summary
Tissue banks provide a critical resource for translational research into the causes and treatment of many diseases affecting children and adults, such as cancer.Their success and contribution to medical research depends on addressing the many unresolved and emerging challenges that impact their work. This is the first national empirical study engaging the Australian research community, legal experts tissue donors and the public about the challenges to tissue banks to inform ethico legal regulati ....Tissue banks provide a critical resource for translational research into the causes and treatment of many diseases affecting children and adults, such as cancer.Their success and contribution to medical research depends on addressing the many unresolved and emerging challenges that impact their work. This is the first national empirical study engaging the Australian research community, legal experts tissue donors and the public about the challenges to tissue banks to inform ethico legal regulation and deliver better health care systems.Read moreRead less
Discovery Early Career Researcher Award - Grant ID: DE150101390
Funder
Australian Research Council
Funding Amount
$363,536.00
Summary
Invasive Synthetic Biomedical Brain Device: Ethical and Policy Implications. The use of novel, invasive, synthetic, biomedical brain technologies such as predictable brain devices, 3D printed biomaterials, additive-bio-fabricated materials, and drug delivery systems have raised unprecedented ethical issues for research. Given the therapeutic potential and high risk of harm associated with synthetic biomedical applications, it is critical to identify the ethical issues before these novel applicat ....Invasive Synthetic Biomedical Brain Device: Ethical and Policy Implications. The use of novel, invasive, synthetic, biomedical brain technologies such as predictable brain devices, 3D printed biomaterials, additive-bio-fabricated materials, and drug delivery systems have raised unprecedented ethical issues for research. Given the therapeutic potential and high risk of harm associated with synthetic biomedical applications, it is critical to identify the ethical issues before these novel applications are widely used in human clinical trials. This project aims to explore how research trial guidelines can address the ethical issues raised by these new brain applications.Read moreRead less
Material Transfer Agreements and Open Science in the Genome Era. Research paradigms are changing rapidly in the Genome Era. Open access databases are increasingly popular and are required by public funding agencies. The role of material transfer agreements (MTAs) in this open access era is not clear. This project aims to assess the extent to which MTAs facilitate exchanges of biological materials between organisation in Australia and internationally. The project will assess whether MTAs are refl ....Material Transfer Agreements and Open Science in the Genome Era. Research paradigms are changing rapidly in the Genome Era. Open access databases are increasingly popular and are required by public funding agencies. The role of material transfer agreements (MTAs) in this open access era is not clear. This project aims to assess the extent to which MTAs facilitate exchanges of biological materials between organisation in Australia and internationally. The project will assess whether MTAs are reflecting the open data access movement or maintaining traditional closed proprietary practices. The project will make policy, ethical and legal recommendations for the development of MTAs to promote exchange of materials nationally and internationally and to facilitate the developing collaborative research culture. Read moreRead less
The age of personalised medicine: regulatory challenges for Australia. Australia is entering an age of personalised medicine where therapies and tests will be based on individual genetic profiles. This project aims to ensure that there is a best practice regulatory and governance environment for facilitating responsible research and clinical service delivery through a process of evidence-based regulatory reform.
The Salmon Ponds and the Development of an Acclimatisation Culture and Landscape in the Derwent Valley, Tasmania. The Derwent Valley, Tasmania, is both an economically depressed rural area and one of the most special and richly endowed colonial landscapes. This project will assist in developing and restoring its status as a touring and angling landscape for tourists by researching and reconstructing its making through the acclimatisation network centred on its cultural and technical hub at Salm ....The Salmon Ponds and the Development of an Acclimatisation Culture and Landscape in the Derwent Valley, Tasmania. The Derwent Valley, Tasmania, is both an economically depressed rural area and one of the most special and richly endowed colonial landscapes. This project will assist in developing and restoring its status as a touring and angling landscape for tourists by researching and reconstructing its making through the acclimatisation network centred on its cultural and technical hub at Salmon Ponds, New Norfolk. The research will trace the social and technical networks that linked newly formed angling associations,landowners, technical and scientific expertise with commercial and political patronage. It will elaborate how these in turn produced both a unique landscape and a culturally embedded association with it.Read moreRead less
Museum of New and Old Art (MONA) and the social and cultural coordinates of urban regeneration through arts tourism. This project will analyse the extraordinary success of MONA (Museum of New and Old Art) as an art gallery and use this information to identify, stimulate and sustain innovative collaborations between MONA, the cities of Hobart and Glenorchy, and the state of Tasmania, aimed at maximising visitor numbers to the state from art related tourism.
The Silent Buildings of Willow Court: testing a new and innovative model for cultural heritage assessment. This pilot project is fuelled by an urgent need to assess the resources of the historic Willow Court Precinct, Australia's longest serving mental health facility (1827-2000). The 18-hectare Precinct, with its now abandoned buildings, is located in one of Australia's most economically deprived regions, Tasmania's Derwent River Valley. In June 2002 the Precinct was acquired by the local Counc ....The Silent Buildings of Willow Court: testing a new and innovative model for cultural heritage assessment. This pilot project is fuelled by an urgent need to assess the resources of the historic Willow Court Precinct, Australia's longest serving mental health facility (1827-2000). The 18-hectare Precinct, with its now abandoned buildings, is located in one of Australia's most economically deprived regions, Tasmania's Derwent River Valley. In June 2002 the Precinct was acquired by the local Council. At the same time, a theoretical model for measuring the condition and pressures on historic sites was being developed by the state government's Cultural Heritage Advisory Group. This project will use the Willow Court Precinct to test the model.Read moreRead less
Managing Tasmanian devil populations affected by the Devil Facial Tumour Disease. This project aims to put the science behind management options for wild Tasmanian devil populations affected by the Devil Facial Tumour Disease (DFTD), a new emerging wildlife disease that is decimating devil populations across large parts of Tasmania. DFTD behaves atypically compared with well-studied wildlife disease models; this project may result in important breakthroughs in our understanding of wildlife disea ....Managing Tasmanian devil populations affected by the Devil Facial Tumour Disease. This project aims to put the science behind management options for wild Tasmanian devil populations affected by the Devil Facial Tumour Disease (DFTD), a new emerging wildlife disease that is decimating devil populations across large parts of Tasmania. DFTD behaves atypically compared with well-studied wildlife disease models; this project may result in important breakthroughs in our understanding of wildlife diseases. Conservation outcomes of the project may slow the spread of the disease and in aiding population recovery. Devils are an iconic species with economic benefits for ecotourism and livestock farms, industries which are based in economically depressed rural regions.Read moreRead less