The Developmental Outcomes Of Children With Mothers With Intellectual Disabilities And The Associated Risk And Protective Factors: Using Population Databases
Funder
National Health and Medical Research Council
Funding Amount
$67,477.00
Summary
environments. Little is known about factors that influence developmental outcomes of children living in these environments. Using population databases this study examines the developmental outcomes of children with parents with intellectual disabilities and the associated risk and protective factors on these outcomes. This will enable the development of appropriate interventions to provide supportive healthy living environments for these families.
Service Pathways For Ageing Caregivers Of Adults With Intellectual Disability
Funder
National Health and Medical Research Council
Funding Amount
$143,613.00
Summary
Caregiving is demanding, but for most it is but a phase of life. This is not so for the 90,000 Australian parents caring for a lifetime for their adult son or daughter with intellectual disability. They are at significant risk from the physical and emotional consequences of long-term caring and the compounding effects of their own - and their son or daughter's - ageing. Despite this, these ageing parent caregivers typically do not use health and community services until a crisis occurs. Our goal ....Caregiving is demanding, but for most it is but a phase of life. This is not so for the 90,000 Australian parents caring for a lifetime for their adult son or daughter with intellectual disability. They are at significant risk from the physical and emotional consequences of long-term caring and the compounding effects of their own - and their son or daughter's - ageing. Despite this, these ageing parent caregivers typically do not use health and community services until a crisis occurs. Our goal is to ensure that ageing parent caregivers use health and community services appropriately and for these services to be appropriate to their needs. The proposed project therefore aims to identify the pathways that lead to or prevent ageing parent caregivers accessing services and to construct a model for ageing parent caregivers' involvement with services that could be tested with a randomised clinical trial. Narrative life history method will be used to determine how ageing parent caregivers arrived in their present circumstances and factors which influence the caring relationship, its stresses and rewards, and their experiences and views concerning services. Service providers will participate in focus groups to examine their perceptions and expectations of services for ageing parent caregivers. Characteristics of the study sample will be compared with state and national population benchmarks. The findings will inform our planned development of a multi-dimensional strategy to provide cost effective preventive health and community services for this largely neglected subgroup within the population of caregivers in Australia.Read moreRead less
Keeping my place in the community: achieving successful ageing-in-place for people with intellectual and developmental disabilities. This project, in partnership with aged care and disability agencies across two states, aims to examine ways the aged care, social and health needs of people with intellectual and developmental disabilities may be met in rural and urban settings. It will explore mechanisms that will lead to a better integration of the aged care and disability sectors.
The transition from secondary school to adulthood: Experiences and life outcomes for youth with an intellectual disability and their families. This project seeks to explore the challenges faced and outcomes achieved by students with an intellectual disability as they move from secondary school into adult life. The study will investigate the factors at an individual, educational, family, and societal level which positively and adversely affect outcomes for young people with an intellectual disab ....The transition from secondary school to adulthood: Experiences and life outcomes for youth with an intellectual disability and their families. This project seeks to explore the challenges faced and outcomes achieved by students with an intellectual disability as they move from secondary school into adult life. The study will investigate the factors at an individual, educational, family, and societal level which positively and adversely affect outcomes for young people with an intellectual disability and their families. Family impacts can include significant loss of income as parents may have to cease employment to care for their young adult who has limited employment or day placement options. Gaining the knowledge to minimise the disruption to family life, which often occurs at this time of transition, will lead to strengthening Australia's social and economic fabric.Read moreRead less
Moving beyond crisis management: Creating a future for people with disabilities living with ageing parents. The needs of thousands of people with disabilities being cared for by ageing parents are beyond the capacity of our existing formal mechanisms for providing care. In order to mitigate this national crisis in support, this research will establish effective, resource efficient support strategies where there are currently no plans in place for future care arrangements. By enhancing the capaci ....Moving beyond crisis management: Creating a future for people with disabilities living with ageing parents. The needs of thousands of people with disabilities being cared for by ageing parents are beyond the capacity of our existing formal mechanisms for providing care. In order to mitigate this national crisis in support, this research will establish effective, resource efficient support strategies where there are currently no plans in place for future care arrangements. By enhancing the capacity of the community to provide support the benefit of existing formal supports will be extended to address the needs of more families. This project will position Australian disability research and support at the forefront of international efforts to legitimize the claim of people with disabilities and their families on community resources.Read moreRead less
The transition of care from ageing parents: achieving flexible relationships between adults with cerebral palsy, their siblings and service providers. The Australian community faces a significant challenge in providing life-long care for people with severe disability. We will develop a model that will assist families and service providers to make a smooth, effective transition of care and/or responsibility of adults with cerebral palsy from parents to siblings. Achieving this will increase the ....The transition of care from ageing parents: achieving flexible relationships between adults with cerebral palsy, their siblings and service providers. The Australian community faces a significant challenge in providing life-long care for people with severe disability. We will develop a model that will assist families and service providers to make a smooth, effective transition of care and/or responsibility of adults with cerebral palsy from parents to siblings. Achieving this will increase the quality of life for disabled and nondisabled family members, and ensure a more efficient use of public funding. Our findings will serve as a model for managing the life-long care of people with cerebral palsy and other severe, chronic disabilities, throughout Australia and overseas.Read moreRead less