What Drives Abnormal Cerebral Activity In Secondary Generalised Epilepsy
Funder
National Health and Medical Research Council
Funding Amount
$565,809.00
Summary
Secondary Generalised epilepsy (2GE) is a severe, disabling epilepsy syndrome characterised by childhood onset frequent, treatment resistant seizures and developmental delay. Although one of the four major categories of epilepsy, it is poorly understood. This project uses combined EEG (brainwave testing) and MRI to reveal which brain areas are involved in the epileptic activity of 2GE. Advanced analysis techniques will explore which brain regions initiate 2GE epileptic activity.
Negotiating caring and employment - the impact on carers' wellbeing. Work and caring compete for carers? time. Little is known about the difficulties of combining work with the care of adults or children with disabilities. Between 40 and 60 percent of Australian carers combine employment with caring responsibilities. The project proposes to adopt a life-course perspective to study the effect of caring on income security, social participation and the health of employed carers. It makes innovative ....Negotiating caring and employment - the impact on carers' wellbeing. Work and caring compete for carers? time. Little is known about the difficulties of combining work with the care of adults or children with disabilities. Between 40 and 60 percent of Australian carers combine employment with caring responsibilities. The project proposes to adopt a life-course perspective to study the effect of caring on income security, social participation and the health of employed carers. It makes innovative use of existing data sources, including new longitudinal survey data, supported by a specially designed program of qualitative research to study key transitions, possible workplace solutions and the effective provision of human services.Read moreRead less
Quality and outcomes of individual supported living arrangements for adults with intellectual and developmental disabilities. This project identifies service quality aspects contributing to positive outcomes in individual supported living arrangements that enable adults with developmental disabilities to live in their own homes. 150 arrangements will be evaluated across Western Australia, New South Wales and Victoria, providing evidence of service quality in support of people with disability hav ....Quality and outcomes of individual supported living arrangements for adults with intellectual and developmental disabilities. This project identifies service quality aspects contributing to positive outcomes in individual supported living arrangements that enable adults with developmental disabilities to live in their own homes. 150 arrangements will be evaluated across Western Australia, New South Wales and Victoria, providing evidence of service quality in support of people with disability having choice and control in their living arrangements.Read moreRead less
Novel Early Warning System for Hypoglycaemia. An innovative technique will be developed for early detection of low blood glucose level (hypoglycaemia), a life-threatening complication affecting millions of people with Type 1 diabetes worldwide. Real-time analysis of the effectiveness of skin impedance, ECG (in particular heart rate and QT interval), and EEG (alpha wave) will be combined with robust adaptive neural networks to provide a novel theoretical and practical basis for developing a non-i ....Novel Early Warning System for Hypoglycaemia. An innovative technique will be developed for early detection of low blood glucose level (hypoglycaemia), a life-threatening complication affecting millions of people with Type 1 diabetes worldwide. Real-time analysis of the effectiveness of skin impedance, ECG (in particular heart rate and QT interval), and EEG (alpha wave) will be combined with robust adaptive neural networks to provide a novel theoretical and practical basis for developing a non-invasive hypoglycaemia monitor. This device has the potential to save lives, improve quality of life for people with diabetes and their carers, and put Australia at the forefront in this $US5 billion pa industry.Read moreRead less
Innovative hands-free technology to give the severely disabled greater mobility control. Half of the serious neurological injuries in Australia result in tetraplegia. Combined with other disabilities that involve severe mobility impairments the cost to the community economically, psychologically and socially is huge. This new Australian technology will facilitate effective sharing of control between a disabled person and a computer control system, taking advantage of their unique strengths and e ....Innovative hands-free technology to give the severely disabled greater mobility control. Half of the serious neurological injuries in Australia result in tetraplegia. Combined with other disabilities that involve severe mobility impairments the cost to the community economically, psychologically and socially is huge. This new Australian technology will facilitate effective sharing of control between a disabled person and a computer control system, taking advantage of their unique strengths and enabling each to aid the other in areas of weakness. The social and personal benefits are potentially very large. Scope also exists to significantly reduce healthcare costs and to develop a new industry in hands-free technology.Read moreRead less
Moving beyond crisis management: Creating a future for people with disabilities living with ageing parents. The needs of thousands of people with disabilities being cared for by ageing parents are beyond the capacity of our existing formal mechanisms for providing care. In order to mitigate this national crisis in support, this research will establish effective, resource efficient support strategies where there are currently no plans in place for future care arrangements. By enhancing the capaci ....Moving beyond crisis management: Creating a future for people with disabilities living with ageing parents. The needs of thousands of people with disabilities being cared for by ageing parents are beyond the capacity of our existing formal mechanisms for providing care. In order to mitigate this national crisis in support, this research will establish effective, resource efficient support strategies where there are currently no plans in place for future care arrangements. By enhancing the capacity of the community to provide support the benefit of existing formal supports will be extended to address the needs of more families. This project will position Australian disability research and support at the forefront of international efforts to legitimize the claim of people with disabilities and their families on community resources.Read moreRead less
Support needs assessment: a developmental model for use in support, training and funding for individuals with single and multiple disabilities. This research project aims to construct and trial a new model for the assessment of the support needs of persons with disabilities. It addresses a number of critical deficiencies which recent research has shown to undermine the reliability, validity and usefulness of existing support needs instruments. Specifically, it is proposed to collect data that ....Support needs assessment: a developmental model for use in support, training and funding for individuals with single and multiple disabilities. This research project aims to construct and trial a new model for the assessment of the support needs of persons with disabilities. It addresses a number of critical deficiencies which recent research has shown to undermine the reliability, validity and usefulness of existing support needs instruments. Specifically, it is proposed to collect data that will inform the determination of the support needs of people with different kinds and combinations of disabilities. Variations in maintenance and intervention supports over time and context will be considered. The assessment system planned will have the flexibility to meet a number of potential user objectives.Read moreRead less
What People With Aphasia Want: Towards Person-centred Goal-setting In Aphasia Rehabilitation
Funder
National Health and Medical Research Council
Funding Amount
$427,702.00
Summary
Consumers of health services expect their concerns and priorities to form part of their health care. People with aphasia have difficulty communicating their needs and speech pathologists are challenged to plan therapy to meet aphasic clients' needs. Family members of people with aphasia also have unrecognised concerns. The first aim of this study is to determine the goals of people with aphasia and their families and to gain their perspective of whether these goals were addressed in speech thera ....Consumers of health services expect their concerns and priorities to form part of their health care. People with aphasia have difficulty communicating their needs and speech pathologists are challenged to plan therapy to meet aphasic clients' needs. Family members of people with aphasia also have unrecognised concerns. The first aim of this study is to determine the goals of people with aphasia and their families and to gain their perspective of whether these goals were addressed in speech therapy. The study will then seek the perspective of their treating speech pathologists about the goals of therapy and the challenges that speech pathologists face in practising person-centered goal setting. This study will not only provide a framework for aphasia services in Australia but also provide data that will inform professional educational programs about person-centered practice for speech pathologists and other health professionals. It will also contribute to current theories on collaborative goal setting in a rehabilitation context.Read moreRead less
Accommodating the Needs of People with Lifelong Intellectual Disability in Residential Aged Care. Unique challenges face the residential aged care system because of the increased life expectancy of people with life-long intellectual disability and the likelihood of their premature ageing. Although this group is recognised by Federal and State governments as requiring specific and special service arrangements, little is known about adapting disability and aged care services to their needs, thus p ....Accommodating the Needs of People with Lifelong Intellectual Disability in Residential Aged Care. Unique challenges face the residential aged care system because of the increased life expectancy of people with life-long intellectual disability and the likelihood of their premature ageing. Although this group is recognised by Federal and State governments as requiring specific and special service arrangements, little is known about adapting disability and aged care services to their needs, thus program development is in its early stages. This research will inform the development of policy and programs in the Aged Care, Disability and Health sectors with the aim of improving the quality of life for people with intellectual disability as they age.Read moreRead less
The 1-in-4 Poll: Inclusion of people with a disability and carers in social and political deliberative processes. This proposed project will benefit Australia by developing a method that includes ongoing quarterly topical surveys through which people with a disability and their carers, approximately one in four Australians, can effectively participate in social and political processes. It will also test the efficacy of 'influencing activities' that derive from those surveys. Additionally, the pr ....The 1-in-4 Poll: Inclusion of people with a disability and carers in social and political deliberative processes. This proposed project will benefit Australia by developing a method that includes ongoing quarterly topical surveys through which people with a disability and their carers, approximately one in four Australians, can effectively participate in social and political processes. It will also test the efficacy of 'influencing activities' that derive from those surveys. Additionally, the project will establish a data set that will provide regular and reliable information from and about people with a disability in Australia. This is a unique and much needed contribution to social justice within Australia. Read moreRead less