Increasing organisational capacity of community residential units to facilitate ageing in place for people with intellectual disability. Unique challenges face the disability, aged care and health sectors because of the increased life expectancy of people with life-long intellectual disability (ID) and the likelihood of their premature ageing. Although this group is recognised by Federal and State governments as requiring specific and special service arrangements, little is known about adapting ....Increasing organisational capacity of community residential units to facilitate ageing in place for people with intellectual disability. Unique challenges face the disability, aged care and health sectors because of the increased life expectancy of people with life-long intellectual disability (ID) and the likelihood of their premature ageing. Although this group is recognised by Federal and State governments as requiring specific and special service arrangements, little is known about adapting disability and aged care services to their needs. This research will inform the development of policy and programs in the disability, aged care, and health sectors. The research aims to improve the capacity of disability group homes to respond to the health and ageing issues of older people with ID,to improve their quality of life.Read moreRead less
Realising an 'ordinary life' for people with intellectual disabilities: Developing a theoretical framework for group home outcomes. Explaining why group homes produce variable outcomes for people with intellectual disabilities will make it more likely they live healthy, productive and fulfilling lives. Such outcomes are central to policies of inclusion and fundamental to human rights. The Australian community will be enriched by the inclusion of all people with disabilities and become a more jus ....Realising an 'ordinary life' for people with intellectual disabilities: Developing a theoretical framework for group home outcomes. Explaining why group homes produce variable outcomes for people with intellectual disabilities will make it more likely they live healthy, productive and fulfilling lives. Such outcomes are central to policies of inclusion and fundamental to human rights. The Australian community will be enriched by the inclusion of all people with disabilities and become a more just society. The research will support the translation of social policy into practice and adoption of good management practices. It will enable more effective use of the $2 billion spent on disability accommodation, and will bolster the arguments for community rather than institutional living, demonstrating investment in community services is a sound use of public moneyRead moreRead less
Reaching Isolated Carers: Contacting Carers with Unmet Needs for Information and Support. The proposed study ?Reaching Isolated Carers? is an extensive collaboration between the Social Policy Research Centre, a consortium of the relevant New South Wales government departments and Carers NSW. The project aims to use an innovative method for identifying isolated carers (i.e. carers who do not self-identify) and their needs. Isolated carers may be unaware of support services and the way these servi ....Reaching Isolated Carers: Contacting Carers with Unmet Needs for Information and Support. The proposed study ?Reaching Isolated Carers? is an extensive collaboration between the Social Policy Research Centre, a consortium of the relevant New South Wales government departments and Carers NSW. The project aims to use an innovative method for identifying isolated carers (i.e. carers who do not self-identify) and their needs. Isolated carers may be unaware of support services and the way these services can satisfy their needs. The project proposes evidence-based strategies to develop an effective policy for reducing the isolation of these carers. Informing isolated carers about support services would lead to significant improvements in carers? lives.Read moreRead less
Transition to retirement by adults with chronic disabilities: increasing community capacity. This project will contribute to healthy, productive ageing by people with chronic disabilities. This group are living longer and will retire from their disability-specific supported employment and day program services. They then risk social exclusion, loneliness and associated poor health outcomes. This project will provide training and support to local community groups and voluntary work settings, to in ....Transition to retirement by adults with chronic disabilities: increasing community capacity. This project will contribute to healthy, productive ageing by people with chronic disabilities. This group are living longer and will retire from their disability-specific supported employment and day program services. They then risk social exclusion, loneliness and associated poor health outcomes. This project will provide training and support to local community groups and voluntary work settings, to increase community capacity to support this group to participate actively in and contribute to their community in retirement. This will result in increased participation by this group and improvements in their well-being. Training resources developed by the project will be available to disability service providers nationally.Read moreRead less
Modelling the lifetime social and economic impacts of fragile x syndrome and the benefits of early diagnosis and intervention. This project falls within the National Research Priority, promoting and maintaining good health, through a healthy start to life and strengthening of social and economic outcomes over the course of life. Fragile X is a group of associated genetic disorders affecting individuals across generations. It is the most common identifiable cause of inherited intellectual disabil ....Modelling the lifetime social and economic impacts of fragile x syndrome and the benefits of early diagnosis and intervention. This project falls within the National Research Priority, promoting and maintaining good health, through a healthy start to life and strengthening of social and economic outcomes over the course of life. Fragile X is a group of associated genetic disorders affecting individuals across generations. It is the most common identifiable cause of inherited intellectual disability. About 1 in 4000 males and 1 in 8000 females have Fragile X, but up to 1 in 250 females are carriers. For the first time in Australia, this study will reveal the social and economic impacts on the individual, on their family members who are often the lifelong carers, and on the Australian community, and show how these impacts may be minimised through early intervention.Read moreRead less