Accommodating the Needs of People with Lifelong Intellectual Disability in Residential Aged Care. Unique challenges face the residential aged care system because of the increased life expectancy of people with life-long intellectual disability and the likelihood of their premature ageing. Although this group is recognised by Federal and State governments as requiring specific and special service arrangements, little is known about adapting disability and aged care services to their needs, thus p ....Accommodating the Needs of People with Lifelong Intellectual Disability in Residential Aged Care. Unique challenges face the residential aged care system because of the increased life expectancy of people with life-long intellectual disability and the likelihood of their premature ageing. Although this group is recognised by Federal and State governments as requiring specific and special service arrangements, little is known about adapting disability and aged care services to their needs, thus program development is in its early stages. This research will inform the development of policy and programs in the Aged Care, Disability and Health sectors with the aim of improving the quality of life for people with intellectual disability as they age.Read moreRead less
Investigating and promoting resilience in children with intellectual disabilities. Disability is a significant risk factor that threatens health and well-being. For the estimated 4% of 0-14 year old children with diagnosed intellectual disabilities in Australia, early intervention is crucial for promoting resilience and preventing an accumulation of risk. By promoting resilience and thereby reducing the cost of lifelong support, evidence-based interventions produce huge social and economic benef ....Investigating and promoting resilience in children with intellectual disabilities. Disability is a significant risk factor that threatens health and well-being. For the estimated 4% of 0-14 year old children with diagnosed intellectual disabilities in Australia, early intervention is crucial for promoting resilience and preventing an accumulation of risk. By promoting resilience and thereby reducing the cost of lifelong support, evidence-based interventions produce huge social and economic benefits for the nation, as well as for individuals, families and communities.Read moreRead less
Increasing organisational capacity of community residential units to facilitate ageing in place for people with intellectual disability. Unique challenges face the disability, aged care and health sectors because of the increased life expectancy of people with life-long intellectual disability (ID) and the likelihood of their premature ageing. Although this group is recognised by Federal and State governments as requiring specific and special service arrangements, little is known about adapting ....Increasing organisational capacity of community residential units to facilitate ageing in place for people with intellectual disability. Unique challenges face the disability, aged care and health sectors because of the increased life expectancy of people with life-long intellectual disability (ID) and the likelihood of their premature ageing. Although this group is recognised by Federal and State governments as requiring specific and special service arrangements, little is known about adapting disability and aged care services to their needs. This research will inform the development of policy and programs in the disability, aged care, and health sectors. The research aims to improve the capacity of disability group homes to respond to the health and ageing issues of older people with ID,to improve their quality of life.Read moreRead less
Discovery Early Career Researcher Award - Grant ID: DE190101512
Funder
Australian Research Council
Funding Amount
$383,960.00
Summary
Inclusive community planning for people with disabilities in regional areas. This project aims to produce new knowledge to foster inclusion of people with disabilities in local community planning practice in regional areas. Exclusion of people with disabilities in local communities persists despite the national disability reform agenda. This project will place spatial justice thinking and critical disability theory within a community planning and development context to examine the concept as a s ....Inclusive community planning for people with disabilities in regional areas. This project aims to produce new knowledge to foster inclusion of people with disabilities in local community planning practice in regional areas. Exclusion of people with disabilities in local communities persists despite the national disability reform agenda. This project will place spatial justice thinking and critical disability theory within a community planning and development context to examine the concept as a scaled phenomenon. Using participatory research methods, the project will directly engage persons with disabilities and community planners in co-producing an adaptive model of practice. The project outcomes will help to create more inclusive, healthy, and resilient communities that enable people with disabilities to lead ordinary and fulfilling lives.Read moreRead less
Developing and testing a decision system for identifying housing options, mapping preferences and evaluating priorities in the disability market. Disability housing is problematic, largely because stakeholders find it difficult to agree on priorities whilst incorporating consumer needs and wants for housing. This project seeks to develop a systematic approach to improve multi-stakeholder decision making that can increase the reliability of decisions and improve consumer outcomes. Innovation lies ....Developing and testing a decision system for identifying housing options, mapping preferences and evaluating priorities in the disability market. Disability housing is problematic, largely because stakeholders find it difficult to agree on priorities whilst incorporating consumer needs and wants for housing. This project seeks to develop a systematic approach to improve multi-stakeholder decision making that can increase the reliability of decisions and improve consumer outcomes. Innovation lies in its customer oriented design and application of business models in the disability sector as well as its integrated disciplinary approach. The research design has not been applied in the Australian research context and aims to provide a much needed blueprint for market investment to develop viable, consumer directed, disability housing options.Read moreRead less
Keeping my place in the community: achieving successful ageing-in-place for people with intellectual and developmental disabilities. This project, in partnership with aged care and disability agencies across two states, aims to examine ways the aged care, social and health needs of people with intellectual and developmental disabilities may be met in rural and urban settings. It will explore mechanisms that will lead to a better integration of the aged care and disability sectors.
Developing an Integrative Active Ageing Model for Policy Makers and Service Providers to Support Older People with Lifelong Intellectual Disability. 'Active ageing' is increasingly gaining international currency and it underpins Australia's national focus on healthy ageing. However, its meaning for older people with intellectual disability, who represent about 0.13% of Australia's older population, is unclear, as little is known about the impact of ageing upon this group. This exciting resear ....Developing an Integrative Active Ageing Model for Policy Makers and Service Providers to Support Older People with Lifelong Intellectual Disability. 'Active ageing' is increasingly gaining international currency and it underpins Australia's national focus on healthy ageing. However, its meaning for older people with intellectual disability, who represent about 0.13% of Australia's older population, is unclear, as little is known about the impact of ageing upon this group. This exciting research project aims to address these knowledge gaps through a series of case studies comprising key stakeholder groups in rural and urban Victoria and Queensland. An Integrative Model of Active Ageing for policy makers and service providers will be developed to facilitate the planning and appropriate distribution of resources for this population. Read moreRead less
Financing and management of lifetime care for adults with acquired disabilities and high care needs. Lifetime care for adults with acquired disabilities is of growing public concern. Substantial levels of unmet need, poorly coordinated services and inadequacy of care arrangements to guarantee lifetime care are pressing concerns. Coordinating multi-sector and service inputs is an ongoing problem for policy makers and providers in Australia. The proposed project will develop an empirical understan ....Financing and management of lifetime care for adults with acquired disabilities and high care needs. Lifetime care for adults with acquired disabilities is of growing public concern. Substantial levels of unmet need, poorly coordinated services and inadequacy of care arrangements to guarantee lifetime care are pressing concerns. Coordinating multi-sector and service inputs is an ongoing problem for policy makers and providers in Australia. The proposed project will develop an empirical understanding of how current systems of financing and management of lifetime care operate at policy and service delivery levels for adults with acquired disabilities. This provides a strategic foundation for policy development and enhanced lifetime care arrangements that will be of relevance to other populations. Read moreRead less
Withholding and withdrawing life-sustaining treatment from adults lacking capacity: Enhancing medical decision-making through doctors' compliance with the law. This project will enhance medical decision-making about the provision of life-sustaining treatment to adults without decision-making capacity through improved compliance with the law. This will advance patients' autonomy and dignity, protect vulnerable adults whose lives may be wrongly ended because of inappropriate treatment decisions a ....Withholding and withdrawing life-sustaining treatment from adults lacking capacity: Enhancing medical decision-making through doctors' compliance with the law. This project will enhance medical decision-making about the provision of life-sustaining treatment to adults without decision-making capacity through improved compliance with the law. This will advance patients' autonomy and dignity, protect vulnerable adults whose lives may be wrongly ended because of inappropriate treatment decisions and avoid litigation for doctors and hospitals. The project also aims to improve the quality of the law by resolving legal ambiguity and proposing reforms. This will further enhance the quality of decision-making, and will reduce defensive medicine and the cost of complying with the law, leading to savings in health expenditure.Read moreRead less
The individual, the family and the state: expectations, intergenerational obligations and constraints in providing for old age. Intergenerational equity is a principle underpinning policy debates around financing retirement and care in older age. Enhanced understanding of this cohort's expectations and obligations will assist in policy development around financing retirement and paying for care that takes account of this cohort's expectations and obligations. Further, exploring the expectations ....The individual, the family and the state: expectations, intergenerational obligations and constraints in providing for old age. Intergenerational equity is a principle underpinning policy debates around financing retirement and care in older age. Enhanced understanding of this cohort's expectations and obligations will assist in policy development around financing retirement and paying for care that takes account of this cohort's expectations and obligations. Further, exploring the expectations underpinning intergenerational exchanges from this cohort's perspective will assist in understanding the dynamics around these exchanges and lay the ground work for future research into factors that facilitate cross-generation family functioning.Read moreRead less