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Discovery Early Career Researcher Award - Grant ID: DE150101262
Funder
Australian Research Council
Funding Amount
$359,753.00
Summary
Decision making in older people approaching the end of life. End of life care provides an ideal framework in which to explore the principle of individual autonomy and consumer decision making. Older people at a high risk of dying in 6 months will be recruited from acute care wards, and asked about preferences for involvement in end of life decision making in a standardised interview survey. Surrogate decision makers and physicians will be asked to answer the same questions from the patient's per ....Decision making in older people approaching the end of life. End of life care provides an ideal framework in which to explore the principle of individual autonomy and consumer decision making. Older people at a high risk of dying in 6 months will be recruited from acute care wards, and asked about preferences for involvement in end of life decision making in a standardised interview survey. Surrogate decision makers and physicians will be asked to answer the same questions from the patient's perspective (namely what they think the patient wants). Findings will suggest ways end of life care can be better tailored so that patients can participate in decisions and receive care that is consistent with their wishes.Read moreRead less
Global dementias: Examining structural vulnerability and dementia outcomes. This project aims to examine the social and cultural dimensions of dementia by using a comparative ethnographic approach to examine the experiences of people living with dementia in Australia, Malaysia and India. The project expects to generate new anthropological knowledge about structural inequalities by examining how dementia is responded to in diverse geographic, cultural and social settings. Expected outcomes of thi ....Global dementias: Examining structural vulnerability and dementia outcomes. This project aims to examine the social and cultural dimensions of dementia by using a comparative ethnographic approach to examine the experiences of people living with dementia in Australia, Malaysia and India. The project expects to generate new anthropological knowledge about structural inequalities by examining how dementia is responded to in diverse geographic, cultural and social settings. Expected outcomes of this project include the creation of a new evidence-base on dementia and the production of briefing documents to guide global health frameworks. The project should provide significant benefits for people living with dementia by providing locally-relevant strategies to respond to dementia and resultant disability.Read moreRead less
Engaging residents and families in aged care facilities. This project aims to investigate resident and family engagement in communicating about medicines that affect the mind, emotions and behaviour, by developing and testing creative strategies in aged care facilities. This project expects to generate new knowledge about resident and family communication within a dynamic context of sociocultural, environmental and interpersonal challenges and opportunities. Expected outcomes of this project inc ....Engaging residents and families in aged care facilities. This project aims to investigate resident and family engagement in communicating about medicines that affect the mind, emotions and behaviour, by developing and testing creative strategies in aged care facilities. This project expects to generate new knowledge about resident and family communication within a dynamic context of sociocultural, environmental and interpersonal challenges and opportunities. Expected outcomes of this project include enhanced capacity to enable resident and family participation in bridging communication gaps. This should provide significant benefits, in terms of increased understandings about how and under what circumstances, medicines decision making can occur with residents and families in diverse situations.Read moreRead less
The importance of gender and socio-economic disadvantage for the mental health of people living with disabilities. The twenty per cent of Australians reporting a disability are more likely to live in disadvantaged circumstances such as inadequate housing, unemployment, and lower levels of education all of which may contribute to poor mental health. Yet there has not been research on the mental health of people with disabilities. This means that disability services and advocacy groups, which deal ....The importance of gender and socio-economic disadvantage for the mental health of people living with disabilities. The twenty per cent of Australians reporting a disability are more likely to live in disadvantaged circumstances such as inadequate housing, unemployment, and lower levels of education all of which may contribute to poor mental health. Yet there has not been research on the mental health of people with disabilities. This means that disability services and advocacy groups, which deal daily with the lived experiences of disadvantage and poor mental health in people with disabilities, do not have evidence to support policy and service sector reform. This project will provide this critical evidence as well as build research capacity in disability-related research and lead to better monitoring of disability-related health inequities.Read moreRead less
Discovery Early Career Researcher Award - Grant ID: DE220100663
Funder
Australian Research Council
Funding Amount
$440,850.00
Summary
The Real Price of Health: Experiences of Out-of-Pocket Costs in Australia. This project aims to investigate the experiences and preferences of Australian families and individuals on low, middle, and high incomes in managing the out-of-pocket costs of chronic disease. This project aspires to ensure outcomes that are relevant to the public and patients through involving people living with chronic disease in the research team. The project expects to generate a discrete choice model that describes p ....The Real Price of Health: Experiences of Out-of-Pocket Costs in Australia. This project aims to investigate the experiences and preferences of Australian families and individuals on low, middle, and high incomes in managing the out-of-pocket costs of chronic disease. This project aspires to ensure outcomes that are relevant to the public and patients through involving people living with chronic disease in the research team. The project expects to generate a discrete choice model that describes people with chronic diseases’ preferences, and the trade-offs that they are faced with when deciding how to manage out-of-pocket health costs. The evidence arising from this innovative study will be used to directly inform Australian health policy, leading to wide-ranging health and economic benefits for the whole community.Read moreRead less
Discriminatory acts and young adults with disabilities in public places. Young Australians with disabilities face pervasive disadvantages and institutional discrimination in many areas of life excluding them from social and economic participation. This project builds on this knowledge to investigate the inter-personal discrimination young people with disabilities experience in public and the impact of this discrimination on their social, economic, cultural and emotional lives. The potential outc ....Discriminatory acts and young adults with disabilities in public places. Young Australians with disabilities face pervasive disadvantages and institutional discrimination in many areas of life excluding them from social and economic participation. This project builds on this knowledge to investigate the inter-personal discrimination young people with disabilities experience in public and the impact of this discrimination on their social, economic, cultural and emotional lives. The potential outcome of this project will be a better understanding of the range and impact of actions and behaviours that young people with disabilities experience as discriminatory, violent or unsafe in public in Australia today.Read moreRead less
Manufacturing consensus: Independence in consensus statements in health. The project plans to conduct the first international systematic inquiry into the value, use and protection of public interest in consensus statements in health. Consensus statements based on scientific evidence are a useful platform to progress policy and practice in an environment of uncertainty. Consensus statements acknowledge both the importance of evidence but also the imperatives for action. However, there is concern ....Manufacturing consensus: Independence in consensus statements in health. The project plans to conduct the first international systematic inquiry into the value, use and protection of public interest in consensus statements in health. Consensus statements based on scientific evidence are a useful platform to progress policy and practice in an environment of uncertainty. Consensus statements acknowledge both the importance of evidence but also the imperatives for action. However, there is concern that they are inefficient, easily co-opted by interest groups and have changed the way the enterprise of science is perceived. The project aims to help inform future processes for improving the incorporation of evidence in policy and practice in a way that balances pragmatic, scientific and public concerns.Read moreRead less
Communicating to promote engagement in using electronic medical records. This reflexive ethnographic and co-design project aims to examine how patient and family participation occurs with health professionals in using the electronic medical record within hospitals, especially for patients with complex needs. Its significance involves working with patients and families to consider how they could take part in decision making activities across transitions of care and influence health care activitie ....Communicating to promote engagement in using electronic medical records. This reflexive ethnographic and co-design project aims to examine how patient and family participation occurs with health professionals in using the electronic medical record within hospitals, especially for patients with complex needs. Its significance involves working with patients and families to consider how they could take part in decision making activities across transitions of care and influence health care activities. Outcomes are new knowledge and practices about how communication occurs with the electronic medical record and strategies adopted for effective engagement. Benefits are increased understanding of how and under what circumstances, engagement can take place in using the electronic medical record.Read moreRead less
Communicating with older people across transition points of care. This project aims to examine how health professionals, older people and their family members communicate in managing medications as older people move through transition points of care. Communication problems often occur as older people move between and within settings, often leading to harmful medication incidents. The project expects to facilitate medication safety as older people move across different settings and to facilitate ....Communicating with older people across transition points of care. This project aims to examine how health professionals, older people and their family members communicate in managing medications as older people move through transition points of care. Communication problems often occur as older people move between and within settings, often leading to harmful medication incidents. The project expects to facilitate medication safety as older people move across different settings and to facilitate cultural shifts in health care communication and opportunities for consumer involvement.Read moreRead less
The unfolding story of the 2009 Adelaide heatwave: risk factors for mortality and morbidity. This project will conduct a case control study in Adelaide to explore the risk factors of extra health burden related to the 2009 heatwave. Given the prediction of more extreme heat events, this study will provide important information for policy makers and service providers to assist in the development of more resilient communities to climate change.