Understanding the implications of pandemic delays for the end of life. The untold toll of Covid-19 is emerging in ‘avoidable deaths’ linked to late(r) diagnosis or treatment due to pandemic-related delay. How delays are experienced and felt across families and communities requires urgent attention. This project aims to understand the implications of pandemic delay for dying and bereavement, including the sociocultural factors that shape experiences of illness and care amid delay. The significanc ....Understanding the implications of pandemic delays for the end of life. The untold toll of Covid-19 is emerging in ‘avoidable deaths’ linked to late(r) diagnosis or treatment due to pandemic-related delay. How delays are experienced and felt across families and communities requires urgent attention. This project aims to understand the implications of pandemic delay for dying and bereavement, including the sociocultural factors that shape experiences of illness and care amid delay. The significance of this project lies in its innovative sociological approach; expected outcomes include the generation of new knowledge on needs at the end of life that move across contexts and settings. Benefits include provision of findings that will inform social and health policy and practice improvements to enable good deaths.Read moreRead less
Patient and nurse outcomes and the cost of nurses' turnover in Australian hospitals. An adequate supply of nurses is fundamental to all of the National Health Priority disease areas where quality care cannot be delivered without an adequate number of motivated nurses. Designing cost-effective methods of retaining nurses requires understanding reasons why they leave the workforce and the impact this has on patient care and system costs. The findings will assist policy makers and workforce planner ....Patient and nurse outcomes and the cost of nurses' turnover in Australian hospitals. An adequate supply of nurses is fundamental to all of the National Health Priority disease areas where quality care cannot be delivered without an adequate number of motivated nurses. Designing cost-effective methods of retaining nurses requires understanding reasons why they leave the workforce and the impact this has on patient care and system costs. The findings will assist policy makers and workforce planners at both local and national levels, to design strategies to effectively recruit and retain nurses as demands for health care and market competition for staff both increase.Read moreRead less
A toolkit to build the capacity of disability staff to assist adults with intellectual disability to understand and plan for their end of life. Adults with intellectual disability lack information about death and opportunities to discuss their concerns and wishes. This project will develop and trial a toolkit about end of life to train disability staff. Trained staff will use the toolkit with adults with intellectual disability to help them to understand and plan for end of life and death.
Discovery Early Career Researcher Award - Grant ID: DE150100285
Funder
Australian Research Council
Funding Amount
$372,000.00
Summary
Who cares? A sociological study of informal care at the end of life. It is often said that a society can be measured by how it cares for its most vulnerable people. Informal care for people nearing the end of life, often provided by family and friends, is a vital area of care for the vulnerable, and is coming under significant pressure in Australia. Our capacity to care is being challenged by economic, social and cultural shifts. This project aims to examine systematically the character of infor ....Who cares? A sociological study of informal care at the end of life. It is often said that a society can be measured by how it cares for its most vulnerable people. Informal care for people nearing the end of life, often provided by family and friends, is a vital area of care for the vulnerable, and is coming under significant pressure in Australia. Our capacity to care is being challenged by economic, social and cultural shifts. This project aims to examine systematically the character of informal care from multi-stakeholder perspectives, providing policy and practice-relevant evidence for better support and understanding of the role and significance of informal care for people approaching the end of life in Australian society.Read moreRead less
Keeping my place in the community: achieving successful ageing-in-place for people with intellectual and developmental disabilities. This project, in partnership with aged care and disability agencies across two states, aims to examine ways the aged care, social and health needs of people with intellectual and developmental disabilities may be met in rural and urban settings. It will explore mechanisms that will lead to a better integration of the aged care and disability sectors.
Optimising the residential and community aged care workforce: the evidence-based development of clinical leadership in middle managers in aged care. 1.4% of the Australian workforce is employed in the aged care sector, making a significant contribution to the economy. This study provides evidence-based tools to build management capacity and leadership in aged care, which in turn will improve the quality and effectiveness of the care that has a crucial bearing on the lives of vulnerable older peo ....Optimising the residential and community aged care workforce: the evidence-based development of clinical leadership in middle managers in aged care. 1.4% of the Australian workforce is employed in the aged care sector, making a significant contribution to the economy. This study provides evidence-based tools to build management capacity and leadership in aged care, which in turn will improve the quality and effectiveness of the care that has a crucial bearing on the lives of vulnerable older people in community and residential care. The findings will identify ways to improve aged care workforce retention; and enhance key factors leading to quality care and improved well being of care staff and recipients. This knowledge will contribute to improving the status of aged care related employment; and yield future policy directions that promote effective clinical leadership in aged care. Read moreRead less
My place for life: comparison of models of care and housing for older people. This project addresses the national goal: ageing well, ageing productively. Existing Australian housing and community services will be inadequate for the future, but the evidence base for policy development is absent. This project will conduct the first comparative Australian study on outcomes for older people over time in a range of existing housing models.
The impact and cost of short-term health staffing in remote communities. This project aims to examine the impact of the increasing levels of short-term health staffing in remote communities upon service acceptability to patients, workload and attitudes of long-term resident primary health care staff, and the effectiveness and cost of health services. There is a dearth of information about this 'fly in/fly out' (FIFO) workforce in remote communities, which have the worst health outcomes in the co ....The impact and cost of short-term health staffing in remote communities. This project aims to examine the impact of the increasing levels of short-term health staffing in remote communities upon service acceptability to patients, workload and attitudes of long-term resident primary health care staff, and the effectiveness and cost of health services. There is a dearth of information about this 'fly in/fly out' (FIFO) workforce in remote communities, which have the worst health outcomes in the country. The project aims to inform consumers, health practitioners, health service planners and policy-makers about the impact of FIFO, as well as to contribute to the development of strategies designed to stabilise the remote health workforce.Read moreRead less
Staffing practices in Aboriginal primary health care services. This project aims to generate new knowledge about the impact of short-term staffing in remote Aboriginal Community Controlled Health Services on service acceptability to patients, workload and attitudes of long-term staff and the effectiveness and cost of services. The project intends to compare these results to recent findings about the impact of short-term staffing in government-run clinics, in order to quantify and describe the po ....Staffing practices in Aboriginal primary health care services. This project aims to generate new knowledge about the impact of short-term staffing in remote Aboriginal Community Controlled Health Services on service acceptability to patients, workload and attitudes of long-term staff and the effectiveness and cost of services. The project intends to compare these results to recent findings about the impact of short-term staffing in government-run clinics, in order to quantify and describe the potential positive effect of community control. Expected outcomes include rigorous evidence about the 'fly in/fly out' workforce and the impact of community control which can inform new policy that will stabilise the remote health workforce, save money and contribute to 'closing the gap' in health outcomes.Read moreRead less
Inclusion of young children with disabilities in mainstream early childhood services. The aim of this APAI doctoral project is to investigage the barriers to, and factors which facilitate effective inclusion of young children with disabilities in mainstream early childhood services in the Australian funding, policy and practice context. The proposed project combines quantitative and qualitative methods to examine the process and outcomes of inclusion in long day care, preschool and family day ca ....Inclusion of young children with disabilities in mainstream early childhood services. The aim of this APAI doctoral project is to investigage the barriers to, and factors which facilitate effective inclusion of young children with disabilities in mainstream early childhood services in the Australian funding, policy and practice context. The proposed project combines quantitative and qualitative methods to examine the process and outcomes of inclusion in long day care, preschool and family day care. The findings will inform policy and practice by enabling early childhood agencies to be more responsive and to better tailor their services to individual child and family needs.Read moreRead less