The Australian Research Data Commons (ARDC) invites you to participate in a short survey about your
interaction with the ARDC and use of our national research infrastructure and services. The survey will take
approximately 5 minutes and is anonymous. It’s open to anyone who uses our digital research infrastructure
services including Reasearch Link Australia.
We will use the information you provide to improve the national research infrastructure and services we
deliver and to report on user satisfaction to the Australian Government’s National Collaborative Research
Infrastructure Strategy (NCRIS) program.
Please take a few minutes to provide your input. The survey closes COB Friday 29 May 2026.
Complete the 5 min survey now by clicking on the link below.
State Dependent Drug Binding To The Human Ether-à-go-go Related Gene Channel
Funder
National Health and Medical Research Council
Funding Amount
$33,193.00
Summary
Heart rhythm disturbance is a common cause of death in our community. In a subset of patients the heart rhythm disturbance is caused by mutations in genes that encode for special proteins called ion channels. However, even in patients without a mutation certain drugs can cause the same problem. Such drugs need to be identified early in their development but current methods to do this are inaccurate. An understanding of how these drugs disturb the heart rhythm will allow more accurate testing.
A Study Of Advance Care Planning In The Primary Care Context
Funder
National Health and Medical Research Council
Funding Amount
$104,664.00
Summary
Advance care planning (ACP) is the process through which a patient can have an input into the direction of their own medical care in case they lose their ability to make medical decisions at a later time. This research will initially explore the patient, their carers, their family and their General Practitioner's conceptualise and view as the aim of ACP . These findings will then be used to guide the development and testing of a more patient-centered approach to ACP.
End-of-Life Care And Dying-at-Home: Choices And Needs Of People With Intellectual Disability And Their Carers
Funder
National Health and Medical Research Council
Funding Amount
$104,343.00
Summary
With the continued push towards community living for people with intellectual disability, how best to provide support at the end-of-life remains a neglected research area. This occurs against a backdrop of an increasingly ageing population, in an arena where end-of-life care and dying at home is the preferred option for most people. This research breaks new ground, aiming to establish supports such that people with intellectual disability may remain at home until the end of their life.
Improving Communication Processes And End Of Life Care In The Neonatal Period: Drawing On The Experiences Of Parents And Health Care Professionals
Funder
National Health and Medical Research Council
Summary
The parents of infants who have died in newborn intensive care, as well the professionals who care for these infants, will be invited to share their experiences of the conversations that took place around the time of the infant's death and how these contributed to the care provided. It is intended that the care of future infants who die under the care of the neonatal team will be improved through dissemination of this knowledge and associated improvements in training of professionals involved in ....The parents of infants who have died in newborn intensive care, as well the professionals who care for these infants, will be invited to share their experiences of the conversations that took place around the time of the infant's death and how these contributed to the care provided. It is intended that the care of future infants who die under the care of the neonatal team will be improved through dissemination of this knowledge and associated improvements in training of professionals involved in this field.Read moreRead less
Role Of Sphingosine Kinase-1 In Beta Cell Survival And Function.
Funder
National Health and Medical Research Council
Funding Amount
$85,716.00
Summary
Both type 1 and type 2 diabetes remain major health problems in Australia. Although the pancreatic beta-cell death and dysfunction involved in the etiology has been addressed, the mechanisms are still not fully understood. Thus, we seek to establish the role of sphingosine kinase, a strong protector against cell death, in the regulation of beta cell survival and insulin secretion and try to create new therapeutic strategy for the management of diabetes.