A Longitudinal Study Of Psychopathology In People With Intellectual Disability
Funder
National Health and Medical Research Council
Funding Amount
$999,803.00
Summary
This project will further develop the research opportunities of an internationally unique 15 year follow up study of the mental health of young Australians with ID. We have shown that this group has 2-3 times the risk of suffering serious emotional and behavioural problems that are an added heavy burden on the individual, their family and carers and the community. These problems often are not recognised but are as common as schizophrenia in the community. The study will continue to use a combina ....This project will further develop the research opportunities of an internationally unique 15 year follow up study of the mental health of young Australians with ID. We have shown that this group has 2-3 times the risk of suffering serious emotional and behavioural problems that are an added heavy burden on the individual, their family and carers and the community. These problems often are not recognised but are as common as schizophrenia in the community. The study will continue to use a combination of questionnaire survey and in depth interviews of the young adults and their families or carers to track the course of their mental health. The study commenced in 1990 with nearly 1000 young people with ID aged 4-18 years and their progress has been reviewed every 2-3 years in over 75% of the original group. During the next 5 years we plan to follow their mental health during the critical stage of young adult life. During this time there is the greatest risk of mental illnesses such as depression and schizophrenia and the stresses of adjusting to new daily occupations, independent living or residential care and social contact away from the family. We will be able to study the specific emotional and behavioural problems faced by young adults with the main known causes of ID such as Down, Fragile X, Prader Willi and William Syndromes, as well as those who have autism. The great benefit of a long term follow up study is that it allows us to study the links between earlier family environmental, psychological and biological factors and subsequent mental health problems. We can also demonstrate the impact that mental illness in a young person with ID has on the family and parental mental health. The findings have implications for better diagnosis, improved care and management, early intervention and prevention of these common severe and under recognized mental health problems in this disadvantaged group of young Australians and their families and carers.Read moreRead less
Influences on farmer suicide in Queensland and New South Wales. Australian farmers have been identified as being at high-risk of suicide. This project will provide direction for targeted suicide prevention strategies by quantifying the individual and environmental factors that place farmers at higher risk of suicide, as well as the protective factors that may buffer against suicide and suicidal behaviours.
The NSW child development study. Research shows that a child's development predicts health and social outcomes later in life. This Australian project will be the first to identify risk and protective factors associated with these outcomes in 87,000 children from birth to 10 years. The results will help inform governments to improve our children's health and educational achievements.
Normative study of a checklist of emotional and behavioural disturbance in adults with intellectual disability. People with intellectual disability (ID) are three times more likely to suffer mental illness than the general community, making this a bigger problem than schizophrenia. They are a great burden to their carers and cost to the community but their mental health problems remain largely untreated. This study aims to conduct the largest and most comprehensive survey of the mental health ....Normative study of a checklist of emotional and behavioural disturbance in adults with intellectual disability. People with intellectual disability (ID) are three times more likely to suffer mental illness than the general community, making this a bigger problem than schizophrenia. They are a great burden to their carers and cost to the community but their mental health problems remain largely untreated. This study aims to conduct the largest and most comprehensive survey of the mental health of adults with ID that has been undertaken internationally to date. The population will cover the age span of late adolescence (16 years) through the transition to adult life then through to the elderly. The research will establish the prevalence and nature of mental illness and potential risk factors in a large representative population of adults with ID.Read moreRead less
The importance of gender and socio-economic disadvantage for the mental health of people living with disabilities. The twenty per cent of Australians reporting a disability are more likely to live in disadvantaged circumstances such as inadequate housing, unemployment, and lower levels of education all of which may contribute to poor mental health. Yet there has not been research on the mental health of people with disabilities. This means that disability services and advocacy groups, which deal ....The importance of gender and socio-economic disadvantage for the mental health of people living with disabilities. The twenty per cent of Australians reporting a disability are more likely to live in disadvantaged circumstances such as inadequate housing, unemployment, and lower levels of education all of which may contribute to poor mental health. Yet there has not been research on the mental health of people with disabilities. This means that disability services and advocacy groups, which deal daily with the lived experiences of disadvantage and poor mental health in people with disabilities, do not have evidence to support policy and service sector reform. This project will provide this critical evidence as well as build research capacity in disability-related research and lead to better monitoring of disability-related health inequities.Read moreRead less
New directions in health inequalities research: understanding the intersection between housing, employment and health in Australia. People employed on a casual basis in Australia are nearly three times more likely to live in a household that is in housing affordability stress than their permanently employed counterparts. Employment and housing are both determinants of health. While social inclusion, employment and housing affordability are critical components of the government's current social p ....New directions in health inequalities research: understanding the intersection between housing, employment and health in Australia. People employed on a casual basis in Australia are nearly three times more likely to live in a household that is in housing affordability stress than their permanently employed counterparts. Employment and housing are both determinants of health. While social inclusion, employment and housing affordability are critical components of the government's current social policy agenda, articulation between these policy domains is limited and little researched. This important study will provide robust evidence on the ways that housing and employment interact to both cause and prevent health inequities. This will directly benefit agencies delivering services to vulnerable people and contribute to an evidence base of benefit to policy makers.Read moreRead less
Time scarcity in Australian families: another inequity? The globalising economy, financial uncertainties and major democratic changes are all affecting family time. Parent's time is a resource on which children depend, but time scarcity has become a widespread problem for families. Our study helps focus policy attention on this problem. We deliver new methods to assess the experience of time scarcity in families, identifying those who are most likely to experience it, where they live, and how ti ....Time scarcity in Australian families: another inequity? The globalising economy, financial uncertainties and major democratic changes are all affecting family time. Parent's time is a resource on which children depend, but time scarcity has become a widespread problem for families. Our study helps focus policy attention on this problem. We deliver new methods to assess the experience of time scarcity in families, identifying those who are most likely to experience it, where they live, and how time scarcity affects them. This evidence can help support policy approaches to time, benefiting the twin economic and social policy goals of encouraging workforce participation while supporting the health and wellbeing of families.Read moreRead less