Does binocular vision training enhance literacy among primary school children with poor reading? One in ten Australian children can not read well despite adequate intelligence and opportunity. This project aims to find out the extent that these reading problems reflect poor binocular vision (the eyes not working well together) and evaluate new treatments.
Genetic, Family And Social Determinants Of The Burden And Outcome In Rett Syndrome: A Population-based Investigation
Funder
National Health and Medical Research Council
Funding Amount
$332,550.00
Summary
Rett syndrome is a severe disorder of the nervous system mainly affecting females. At birth children with Rett syndrome often seem normal but in their second year lose skills. With time it becomes clear that they are severely intellectually and physically handicapped. In 1999 the link between Rett syndrome and a mutation in the gene, known as MECP2, was found. In Australia since 1993, we have had a register of basic information on all girls and young women diagnosed with Rett syndrome. Over thre ....Rett syndrome is a severe disorder of the nervous system mainly affecting females. At birth children with Rett syndrome often seem normal but in their second year lose skills. With time it becomes clear that they are severely intellectually and physically handicapped. In 1999 the link between Rett syndrome and a mutation in the gene, known as MECP2, was found. In Australia since 1993, we have had a register of basic information on all girls and young women diagnosed with Rett syndrome. Over three quarters of the register s 248 cases have now been genetically tested. In 2000 and again in 2002, extra information on ability to do everyday tasks, behaviour, hand function, medical conditions, and use of health and education services was collected. In 2002 questions on family well being were also included. From 2004 to 2007, further information will be gathered on function, health and well being of the affected child and their family. This will be by telephone interview, questionnaire, video recording, existing medical records, clinical assessments and tests. This will include in 2004 completion of calendars which will provide information needed to estimate health and medical care costs for these children. Similar information by questionnaire and calendar will also be collected from the parents of children with Down syndrome in 2004. The information will be used to compare the social and financial burden of Rett syndrome with Down syndrome, a commoner cause of intellectual disability. The research will also show if it is possible to predict from early genetic test results how severely a child with Rett syndrome will later be affected. It will also determine whether some ways of management improve the long-term outlook for the girl and her family. Finally this study will investigate why some families cope better with this devastating disorder than others. This research is only possible in Australia because of the ongoing register we have set up here.Read moreRead less
The transition from secondary school to adulthood: Experiences and life outcomes for youth with an intellectual disability and their families. This project seeks to explore the challenges faced and outcomes achieved by students with an intellectual disability as they move from secondary school into adult life. The study will investigate the factors at an individual, educational, family, and societal level which positively and adversely affect outcomes for young people with an intellectual disab ....The transition from secondary school to adulthood: Experiences and life outcomes for youth with an intellectual disability and their families. This project seeks to explore the challenges faced and outcomes achieved by students with an intellectual disability as they move from secondary school into adult life. The study will investigate the factors at an individual, educational, family, and societal level which positively and adversely affect outcomes for young people with an intellectual disability and their families. Family impacts can include significant loss of income as parents may have to cease employment to care for their young adult who has limited employment or day placement options. Gaining the knowledge to minimise the disruption to family life, which often occurs at this time of transition, will lead to strengthening Australia's social and economic fabric.Read moreRead less
What will it take to decrease socio-economic inequalities in obesity? There is little understanding of how the increasing prevalence of obesity, and its prevention and management, may contribute to socio-economic inequalities in health. This project aims to identify policies that are most likely to both decrease the prevalence of obesity and decrease associated inequalities in health.
Travellers visiting friends and relatives: new approaches to understanding and reducing infectious disease risks. Travel is the single most important factor in the spread of infections globally and travellers who visit friends and relatives in their country of birth are at increased risk of infections. This project will provide necessary evidence to guide an effective response to reducing travel-associated infectious disease in this target at-risk group.
Reducing the social, economic and health burden associated with obesity-related chronic diseases among socio-economically disadvantaged populations. This project will develop new methods and approaches for reducing obesity-related chronic diseases (OCDs) among socially disadvantaged populations in Australia, using prevention models. These prevention models will improve the evidence base in this field as well as inform public health policy and practice in Australia (and other industrialised count ....Reducing the social, economic and health burden associated with obesity-related chronic diseases among socio-economically disadvantaged populations. This project will develop new methods and approaches for reducing obesity-related chronic diseases (OCDs) among socially disadvantaged populations in Australia, using prevention models. These prevention models will improve the evidence base in this field as well as inform public health policy and practice in Australia (and other industrialised countries).Read moreRead less
From science to policy: quantifying and managing the risk of mosquito borne disease in the context of climate change. It is important to assess and manage the health risks of climate change. This research will create fundamental knowledge and practical skills on the interdisciplinary assessment and management of health risks of climate change, and explore policy ramifications of research outcomes in this study.
Effects of feedback and incentive-based insurance on driving behaviours. This project aims to examine the extent to which direct-feedback and incentive-based insurance modify a drivers’ behaviour. The project plans to apply in-vehicle telematics and to link information obtained from the technology directly to personalised safety messaging. The project then plans to assess the impact of this by calculating individual personal injury and the potential reduction to property damage insurance premium ....Effects of feedback and incentive-based insurance on driving behaviours. This project aims to examine the extent to which direct-feedback and incentive-based insurance modify a drivers’ behaviour. The project plans to apply in-vehicle telematics and to link information obtained from the technology directly to personalised safety messaging. The project then plans to assess the impact of this by calculating individual personal injury and the potential reduction to property damage insurance premiums. The study has the potential to profoundly influence not only the insurance industry by reducing individual risk and insurance scheme liability, but also deliver reductions in road trauma among the target population namely, young drivers.Read moreRead less
Reducing the burden of alcohol and other drug use in Australia. The costs of alcohol and other drug use to the Australian community are significant. This research will aim to reduce this burden by developing the evidence for effective intervention and then working with policymakers and practitioners to improve responses to alcohol and other drugs in the community.
Estimating the population effect of maternal alcohol-use disorders on the educational achievement of children. It is unclear to what extent maternal alcohol-related problems contribute to the increased risk of poor health, academic failure, and times suspended from school in Australian children. This study aims to examine the effect of maternal alcohol-use disorder on infant and child health, development, and educational achievement using education and health data from the Western Australian dat ....Estimating the population effect of maternal alcohol-use disorders on the educational achievement of children. It is unclear to what extent maternal alcohol-related problems contribute to the increased risk of poor health, academic failure, and times suspended from school in Australian children. This study aims to examine the effect of maternal alcohol-use disorder on infant and child health, development, and educational achievement using education and health data from the Western Australian data linkage system. The results will provide new information on the impact of maternal alcohol-related problems on child health and educational achievement and have the potential to inform health and education policies and early identification and targeted intervention strategies. Read moreRead less