Modelling the lifetime social and economic impacts of fragile x syndrome and the benefits of early diagnosis and intervention. This project falls within the National Research Priority, promoting and maintaining good health, through a healthy start to life and strengthening of social and economic outcomes over the course of life. Fragile X is a group of associated genetic disorders affecting individuals across generations. It is the most common identifiable cause of inherited intellectual disabil ....Modelling the lifetime social and economic impacts of fragile x syndrome and the benefits of early diagnosis and intervention. This project falls within the National Research Priority, promoting and maintaining good health, through a healthy start to life and strengthening of social and economic outcomes over the course of life. Fragile X is a group of associated genetic disorders affecting individuals across generations. It is the most common identifiable cause of inherited intellectual disability. About 1 in 4000 males and 1 in 8000 females have Fragile X, but up to 1 in 250 females are carriers. For the first time in Australia, this study will reveal the social and economic impacts on the individual, on their family members who are often the lifelong carers, and on the Australian community, and show how these impacts may be minimised through early intervention.Read moreRead less
Who Am I? The archive as central to quality practice for current and past care leavers (Forgotten Australians). The project responds to the recommendations of the Forgotten Australians and its predecessor Reports about the need to improve record-keeping and archiving practice in the health and welfare sector. In partnership with past and present care-leavers and a consortium of 13 community service organisations, the peak body, and government, it will develop a digital archive utilising innovati ....Who Am I? The archive as central to quality practice for current and past care leavers (Forgotten Australians). The project responds to the recommendations of the Forgotten Australians and its predecessor Reports about the need to improve record-keeping and archiving practice in the health and welfare sector. In partnership with past and present care-leavers and a consortium of 13 community service organisations, the peak body, and government, it will develop a digital archive utilising innovative technologies which will both enable access to contextual material from the past and provide a model for constructing records in the future, in order to help overcome the ongoing impact which out-of-home care has had on the health of careleavers. Read moreRead less
Creating pathways to child wellbeing in disadvantaged communities. This project aims to test, in nine disadvantaged communities, a model for action that blends new human and digital resources to support respectful, data-driven collaborations between schools, families and community agencies.
The project expects to generate new knowledge in the area of translational prevention science about how to influence risk and protective factors for child wellbeing in a cost-efficient manner and at a scale ....Creating pathways to child wellbeing in disadvantaged communities. This project aims to test, in nine disadvantaged communities, a model for action that blends new human and digital resources to support respectful, data-driven collaborations between schools, families and community agencies.
The project expects to generate new knowledge in the area of translational prevention science about how to influence risk and protective factors for child wellbeing in a cost-efficient manner and at a scale within existing service systems. Project benefits should include a methodology for achieving lasting improvements in child wellbeing, behaviour and school success.
Read moreRead less
Creating the conditions for collective impact: transforming the child serving system in disadvantaged communities. No one institution can close the gap in child wellbeing and school achievement between poor and affluent areas. This project will draw schools, child serving agencies and community members into coalitions in disadvantaged areas to build, test and evaluate an integrated 'backbone support system' designed to foster healthy development of the whole child.