The Australian Research Data Commons (ARDC) invites you to participate in a short survey about your
interaction with the ARDC and use of our national research infrastructure and services. The survey will take
approximately 5 minutes and is anonymous. It’s open to anyone who uses our digital research infrastructure
services including Reasearch Link Australia.
We will use the information you provide to improve the national research infrastructure and services we
deliver and to report on user satisfaction to the Australian Government’s National Collaborative Research
Infrastructure Strategy (NCRIS) program.
Please take a few minutes to provide your input. The survey closes COB Friday 29 May 2026.
Complete the 5 min survey now by clicking on the link below.
Investigating Stakeholder Experiences In Implementing And Adopting Genome Sequencing In Paediatric Clinical Practice
Funder
National Health and Medical Research Council
Funding Amount
$91,538.00
Summary
Medicare funding became available for genome sequencing in 2020. Paediatricians can now order this test to help diagnose childhood syndromes. Expanding testing beyond genetics services is vital for patients to benefit broadly, but paediatricians and other medical specialists are known to feel ill-prepared to assume a greater role. My PhD project will investigate what we can learn from paediatric stakeholder experiences in delivering genome sequencing to aid future adoption in other settings.
Palliative Care Outcomes Among Indigenous Australians: Analysis Of A Nationwide Dataset
Funder
National Health and Medical Research Council
Funding Amount
$43,309.00
Summary
Little is known about the quality of palliative care services provided to Indigenous (Aboriginal and Torres Strait Islander) Australians. This study will use a high quality dataset collected from palliative care services nationwide to compare the quality of end-of-life care provided to Indigenous and non-Indigenous Australians. The measures of care being compared will include the time taken to enter care, time taken to have clinical condition stabilised, and satisfactory control of symptoms.
Towards An Improved Understanding Of The Effect Of A Speaking Valve On Lung Volumes And Communication In The Critically Ill Tracheostomised Patient
Funder
National Health and Medical Research Council
Funding Amount
$45,795.00
Summary
Patients that require life support in intensive care often have breathing tubes in their neck. This means they are generally left without a voice for days, weeks, even months. Speaking valves meant for talking are not used much due to fears of harm to the lungs. Our study is looking at how much air is in the lungs when using this valve. Data so far suggest that the valve is in fact helping the lungs. The outcomes of this study may lead to most of these critically ill patients having a voice.
The Impact Of The Life Trajectory Of Extremely Low Gestational Age Neonates On Moral Distress Of Healthcare Professionals Within Neonatal Intensive Care Units
Funder
National Health and Medical Research Council
Funding Amount
$46,622.00
Summary
The provision of care to the smallest and least mature babies (known as Extremely Low Gestational Age Neonates) within neonatal intensive care units (NICUs) is recognised as a frequent source of distress to family and healthcare professionals alike. This study aims to explore how illness severity of preterm babies and predictions of the babies’ long-term outcomes impacts moral distress of doctors and nurses within NICUs. The results of this study will guide interventions to reduce its presence.
Patterns Of Care In Patients With Pancreatic Cancer.
Funder
National Health and Medical Research Council
Funding Amount
$94,494.00
Summary
This project will describe the treatment patterns of patients with pancreatic cancer throughout NSW and QLD. A quality of care score will be developed, and the care of patients in this cohort benchmarked against the score. The impact of patient characteristics on the quality of care provided will be assessed, as will the impact of quality of care on survival. The ultimate aim is to provide information that can be used to ensure that all patients in Australia receive optimal care.
A Co-Designed Patient-Centred Model-of-Care For Gestational Diabetes
Funder
National Health and Medical Research Council
Funding Amount
$128,224.00
Summary
Gestational diabetes affects more than 1 in 10 women and is becoming more common. It increases the risk of complications to the pregnancy and may also adversely affect the future health of the mother and her children. There has been little prior research into the best system of education and pregnancy care for women with gestational diabetes. We will work with these women to develop an innovative model for pregnancy care that provides individualised guidance to impact health positively.
Improving The Quality Of Care To Aboriginal And Torres Strait Islander Patients Who Attend General Practice In Urban Sydney, By Applying A Framework That Has Been Validated For Acceptability By Aboriginal And Torres Strait Islander Peoples
Funder
National Health and Medical Research Council
Funding Amount
$92,314.00
Summary
This research aims to develop strategies to improve the quality of care to Aboriginal and Torres Strait Islander patients who attend mainstream general practice by determining the barriers and enablers of Indigenous identification in general practice and developing a framework with Aboriginal and Torres Strait Islander patients to improve the cultural appropriateness of the health care they receive. The findings have the potential to contribute directly to the National Closing the Gap initiative ....This research aims to develop strategies to improve the quality of care to Aboriginal and Torres Strait Islander patients who attend mainstream general practice by determining the barriers and enablers of Indigenous identification in general practice and developing a framework with Aboriginal and Torres Strait Islander patients to improve the cultural appropriateness of the health care they receive. The findings have the potential to contribute directly to the National Closing the Gap initiative and the National Primary Health Care Strategy.Read moreRead less
Individual Patient Data Meta-analysis Of Randomised Control Trials In Fluid Resuscitation
Funder
National Health and Medical Research Council
Funding Amount
$85,027.00
Summary
I am a registered nurse focused in critical care research. I have an interest in the area of fluid resuscitation. My aim is to carry out an individual patient data meta-analysis (IPDMA) on randomised controlled trials (RCTs) in fluid resuscitation. The IPDMA will consist of two of the largest critical care trials; Saline Vs Albumin fluid Evaluation (SAFE) study and the Crystalloid Vs Starch (CHEST) study, to add further evidence to the currently limited fluid resuscitation literature.
Improving Palliative Care For People After Acute Stroke
Funder
National Health and Medical Research Council
Funding Amount
$96,653.00
Summary
Stroke is a leading cause of death, disability and is a symptom burden worldwide. It impacts patients and their families in various ways, including physical, emotional, social, and spiritual aspects. Stroke outcome is uncertain and decision making complex. To date, there is no integrated concept for palliative care in stroke that addresses the appropriate moment to start palliative care for stroke patients.
Improving Clinical Care In Patients With Cirrhosis
Funder
National Health and Medical Research Council
Funding Amount
$132,743.00
Summary
This PhD will evaluate the current state of cirrhosis care in Australia. Part one aims to determine the community prevalence of cirrhosis in a general practice cohort and assess the proportion of patients that have been already diagnosed. Part two will evaluate if patients with established compensated cirrhosis are receiving appropriate care and if not assess barriers to care. Part three will evaluate biomarkers to predict the risk of decompensation in patients with established cirrhosis.