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Individual Differences In Coping With A Diagnosis Of ALS: Psychosocial Adjustment And Implications For Psychological Treatment Planning
Funder
National Health and Medical Research Council
Funding Amount
$101,523.00
Summary
A high proportion of patients with amyotrophic lateral sclerosis develop subtle personality and behavioural changes similar to those with behavioural variant frontotemporal dementia. Apathetic symptoms are the most commonly observed personality change. This project aims to establish the contribution of premorbid personality traits on the development and expression of apathy, and in turn, it’s implications for ALS patients’ psychological wellbeing and response to psychological intervention.
Prof Anderson a clinical neuropsychologist with two broad areas of research: 1) understanding the impact of early childhood brain injury across multiple domains – brain, cognition, social skills, behaviour; and 2) developing and evaluating interventions (child and family-based) to reduce burden following childhood brain injury.
A Study To Pilot A Clinical Trial To Test Dignity Psychotherapy For The Frail Aged
Funder
National Health and Medical Research Council
Funding Amount
$25,000.00
Summary
One of the greatest challenges today is to preserve the dignity of the frail elderly. Our study will test and perfect a strategy to trial a new approach for this population, Dignity Psychotherapy. The approach will document aspects of the senior's life that they regard as meaningful, want remembered, or of which they are proud. Among the terminally ill, the approach has had positive outcomes. Benefits for elders may include that the approach forms a foundation for holistic care.
Psychosocial Disability And Return To Work In Younger Stroke Survivors
Funder
National Health and Medical Research Council
Funding Amount
$511,216.00
Summary
Each year about 12,000 Australians of working age survive a stroke. These younger survivors have responsibility for generating an income or providing care for families and state that their main objective is to return to work for financial reasons and to help rebuild confidence and independence. This observational 3 year study will determine thefactors are associated with returning to work, improving the wellbeing of thousands of stroke survivors and their families using multivariate regression.
Management Of Families With A Genetic Cause Of Sudden Cardiac Death
Funder
National Health and Medical Research Council
Funding Amount
$307,946.00
Summary
Sudden cardiac death (SCD) is a tragic complication of a number of genetic heart diseases, where families have to cope with the grief of losing a family member and the risk to themselves. This research seeks to better understand the psychosocial impact to family members; to determine what access and services families are currently provided with; and to determine the cost-effectiveness of family management strategies. The ultimate goal is that every family will have access to high-quality and cos ....Sudden cardiac death (SCD) is a tragic complication of a number of genetic heart diseases, where families have to cope with the grief of losing a family member and the risk to themselves. This research seeks to better understand the psychosocial impact to family members; to determine what access and services families are currently provided with; and to determine the cost-effectiveness of family management strategies. The ultimate goal is that every family will have access to high-quality and cost-effective management practices.Read moreRead less
Randomised Controlled Trial Of Early Intervention To Improve Sexual And Couple Functioning After Prostate Cancer
Funder
National Health and Medical Research Council
Funding Amount
$405,000.00
Summary
Treatment for localised prostate cancer has a long term negative impact on the sexuality, quality of life, and relationship quality of Australian men and their intimate partners. This study will trial a remote access couples based sexuality intervention for this patient and carer group that has potential for broader translation into community and acute health care settings. This approach will also have broader application for chronic disease self management for other health conditions.
Certain Death In Uncertain Time: A Qualitative Study Of The Experience Of Advanced Ovarian Cancer.
Funder
National Health and Medical Research Council
Funding Amount
$221,755.00
Summary
Modern medicine aims to find effective treatments for life-threatening diseases. Cures are seldom found, however. More typically, rapidly fatal diseases gradually become less rapidly fatal. Consequently, there is a category of patients who are certain they will die from their disease or a related factor, but who are equally uncertain as to whether they have weeks or years left to live. It is difficult to discuss this predicament because we do not even have a name for it, let alone a useful termi ....Modern medicine aims to find effective treatments for life-threatening diseases. Cures are seldom found, however. More typically, rapidly fatal diseases gradually become less rapidly fatal. Consequently, there is a category of patients who are certain they will die from their disease or a related factor, but who are equally uncertain as to whether they have weeks or years left to live. It is difficult to discuss this predicament because we do not even have a name for it, let alone a useful terminology to describe it. The absence of discussion exacerbates patients' social isolation. Also, the quality of their remaining life, and the quality of the care they get, depends heavily on the quality of understanding and communication within the social systems that support them. A growing proportion of patients in developed countries fall into this category, including the 1200 Australian women who are diagnosed each year with advanced ovarian cancer. This study aims to increase our understanding of the experience of certain death in uncertain time by recruiting a group of 20 women with advanced ovarian cancer, and interviewing them every few months over three years. The study will explore all aspects of the experience of having advanced ovarian cancer, and generate a terminology for it - one that grows out of the women's own language. The study will inform the organisation and delivery of clinical care and services to women with ovarian cancer. It will also inform patient education programs, and help to tune medical education to the particular needs and perceptions of patients who are experiencing the certainty of death in uncertain time. Finally, the researchers will also explore the implications of the findings for medical ethics and health law, and for communication, information and decision-making in cancer medicine.Read moreRead less