Modelling the lifetime social and economic impacts of fragile x syndrome and the benefits of early diagnosis and intervention. This project falls within the National Research Priority, promoting and maintaining good health, through a healthy start to life and strengthening of social and economic outcomes over the course of life. Fragile X is a group of associated genetic disorders affecting individuals across generations. It is the most common identifiable cause of inherited intellectual disabil ....Modelling the lifetime social and economic impacts of fragile x syndrome and the benefits of early diagnosis and intervention. This project falls within the National Research Priority, promoting and maintaining good health, through a healthy start to life and strengthening of social and economic outcomes over the course of life. Fragile X is a group of associated genetic disorders affecting individuals across generations. It is the most common identifiable cause of inherited intellectual disability. About 1 in 4000 males and 1 in 8000 females have Fragile X, but up to 1 in 250 females are carriers. For the first time in Australia, this study will reveal the social and economic impacts on the individual, on their family members who are often the lifelong carers, and on the Australian community, and show how these impacts may be minimised through early intervention.Read moreRead less
Discovery Early Career Researcher Award - Grant ID: DE170100726
Funder
Australian Research Council
Funding Amount
$381,000.00
Summary
Socioeconomic effects of fault attribution after a motor vehicle crash. This project aims to identify claimant and crash risk characteristics that predict elevated socio-economic burden on injured persons, compensation systems and the public health system. 19% of Australians injured in road trauma annually report long-term reductions in social participation and work capacity, and have costly health service needs. Attributions of fault lead to perceived injustice and affect the capacity to cope w ....Socioeconomic effects of fault attribution after a motor vehicle crash. This project aims to identify claimant and crash risk characteristics that predict elevated socio-economic burden on injured persons, compensation systems and the public health system. 19% of Australians injured in road trauma annually report long-term reductions in social participation and work capacity, and have costly health service needs. Attributions of fault lead to perceived injustice and affect the capacity to cope with trauma. This project will evaluate the effect of fault attributions on socioeconomic outcomes. Expected results include approaches for identifying those at greatest risk of poor outcomes who need additional support after a crash.Read moreRead less
Development of an evaluation model for assessing the effectiveness of ICT to integrate services and improve service performance and client experience. This research will deliver a new evaluation model for assessing how best to use information technology in service organisations to improve service co-ordination, performance and clients’ experiences. It focuses on information technology use in the aged and community care sector which is critically in need of these benefits.
Evaluation in health promotion: gathering evidence to improve effectiveness. Effective disease prevention and health promotion to address the public health challenges facing Australia requires a strong evidence base for policy and practice. Evaluation of programs in natural contexts is a vital source of this evidence, valuable for improving strategy design and delivery, building sustainability and guiding funding. The aim of this project is to determine the strengths and limitations of evaluatio ....Evaluation in health promotion: gathering evidence to improve effectiveness. Effective disease prevention and health promotion to address the public health challenges facing Australia requires a strong evidence base for policy and practice. Evaluation of programs in natural contexts is a vital source of this evidence, valuable for improving strategy design and delivery, building sustainability and guiding funding. The aim of this project is to determine the strengths and limitations of evaluation by health promotion agencies, and to identify the roles of individual, organisational and system-level factors in relation to evaluation practice and use. This knowledge is expected to guide efforts to build capacity for evaluation, improve systems for organisational learning, and enable evidence gathering to improve effectiveness.Read moreRead less
Nanny state or good public policy: Do the benefits of mandatory health programs justify the loss of consumer choice? Governments are increasingly turning to mandatory programs to improve health. Such programs are appealing because there are high health benefits from universal participation and low costs for promotion and monitoring the program. However, this apparent benefit relies on restriction of personal choice, which may impose welfare losses on consumers. Evaluations generally ignore loss ....Nanny state or good public policy: Do the benefits of mandatory health programs justify the loss of consumer choice? Governments are increasingly turning to mandatory programs to improve health. Such programs are appealing because there are high health benefits from universal participation and low costs for promotion and monitoring the program. However, this apparent benefit relies on restriction of personal choice, which may impose welfare losses on consumers. Evaluations generally ignore loss of choice, despite evidence suggesting consumers value the ability to choose. This study will estimate the impact and value this loss of consumer choice, explore program specific factors and consumer characteristics influencing the valuation, and determine whether and how restricted choice should be explicitly considered when evaluating public health programs.Read moreRead less
Improving cancer treatment systems: a randomised controlled trial of a consumer action model for cancer patients receiving chemotherapy. The project aims to assess the effectiveness of a model for improving cancer treatment systems, which emphasises meaningful engagement of cancer consumers in identifying, implementing and evaluating strategies of change. System changes are expected to reduce patients' unmet supportive care needs and improve overall quality of life.
Cohort discovery and activity mining for policy impact prediction. Cohort discovery and activity mining for policy impact prediction. This project aims to develop an intelligent systematic framework to predict policy impacts on Australian patients, by discovering inherent patient cohorts and assessing the impact of the policies on these cohorts. The proposed methods lay the theoretical foundations for building intelligent automated tools for policy assessment. Expected outcomes are data-driven p ....Cohort discovery and activity mining for policy impact prediction. Cohort discovery and activity mining for policy impact prediction. This project aims to develop an intelligent systematic framework to predict policy impacts on Australian patients, by discovering inherent patient cohorts and assessing the impact of the policies on these cohorts. The proposed methods lay the theoretical foundations for building intelligent automated tools for policy assessment. Expected outcomes are data-driven patient group discovery, which could more precisely identify the patient cohorts most likely to benefit from a specific policy; and a model to predict the efficacy of policy options, which could increase the sustainability of the national health system by enabling smarter, more efficient policy decision-making.Read moreRead less
Min/Max Autocorrelation Factors in Time Series Studies of the Adverse Health Effects of Ozone. The annual health costs associated with exposure to air pollution in Australia have been estimated at between $3 and 5.3 billion. Given these costs, it is vital to conduct research that ensures public health officials and policy makers stay fully informed of Australia’s air pollution problem. The project proposes to address this need by developing methodology to detect trends in air pollution concentra ....Min/Max Autocorrelation Factors in Time Series Studies of the Adverse Health Effects of Ozone. The annual health costs associated with exposure to air pollution in Australia have been estimated at between $3 and 5.3 billion. Given these costs, it is vital to conduct research that ensures public health officials and policy makers stay fully informed of Australia’s air pollution problem. The project proposes to address this need by developing methodology to detect trends in air pollution concentrations and reduce measurement error in recorded air pollution concentrations. This will enable relevant authorities to produce more accurate estimates of air pollution health costs and implement more appropriate pollution regulations and health warnings.Read moreRead less
Modelling health: Reporting behaviour and misclassification using survey data. Empirical models based on large scale survey data sets are used by health economists to inform policymakers. However, in the case of sensitive topics, a potential for survey misreporting may lead to inaccurate estimates of aberrant behaviours. To date, little work has been done analysing the extent and consequences of inaccurate reporting, especially within health economics. By addressing areas where potential for mis ....Modelling health: Reporting behaviour and misclassification using survey data. Empirical models based on large scale survey data sets are used by health economists to inform policymakers. However, in the case of sensitive topics, a potential for survey misreporting may lead to inaccurate estimates of aberrant behaviours. To date, little work has been done analysing the extent and consequences of inaccurate reporting, especially within health economics. By addressing areas where potential for misinformation is high, the overall quality of results will be enhanced. This research will be submitted to highly ranked health economics and econometrics journals to be made available to relevant policymakers intent on ensuring a healthy society.Read moreRead less
Strengthening organisational performance through accreditation research: the ACCREDIT project. This project will address multiple national benefits, including the National Research Priority, promoting and maintaining good health. Our knowledge of how accreditation, standards-setting and surveying contributes to organisational performance and quality of care will be considerably improved. Better health policy, improved services to patients, enhanced consumer involvement in their own care and rese ....Strengthening organisational performance through accreditation research: the ACCREDIT project. This project will address multiple national benefits, including the National Research Priority, promoting and maintaining good health. Our knowledge of how accreditation, standards-setting and surveying contributes to organisational performance and quality of care will be considerably improved. Better health policy, improved services to patients, enhanced consumer involvement in their own care and research results for use by national bodies, other industries and international partners are some of the key benefits this project aims research achieve. The community is vitally interested in the costs of health services, the value for money they produce and the standards of care provided.Read moreRead less