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Pathways to and through palliative care: a sociological study of patient, carer and clinician experiences at the end-of-life. Palliative care services provide care and support for families, carers and individuals trying to cope with the challenges presented at the end of life. This project will provide critical policy and practice-relevant data in order to improve our understanding of, and support for, the dying process in Australia.
Discovery Early Career Researcher Award - Grant ID: DE150100285
Funder
Australian Research Council
Funding Amount
$372,000.00
Summary
Who cares? A sociological study of informal care at the end of life. It is often said that a society can be measured by how it cares for its most vulnerable people. Informal care for people nearing the end of life, often provided by family and friends, is a vital area of care for the vulnerable, and is coming under significant pressure in Australia. Our capacity to care is being challenged by economic, social and cultural shifts. This project aims to examine systematically the character of infor ....Who cares? A sociological study of informal care at the end of life. It is often said that a society can be measured by how it cares for its most vulnerable people. Informal care for people nearing the end of life, often provided by family and friends, is a vital area of care for the vulnerable, and is coming under significant pressure in Australia. Our capacity to care is being challenged by economic, social and cultural shifts. This project aims to examine systematically the character of informal care from multi-stakeholder perspectives, providing policy and practice-relevant evidence for better support and understanding of the role and significance of informal care for people approaching the end of life in Australian society.Read moreRead less
Managing Risk in Primary Schools: Teachers' Professional Identity and Work Practices. This study seeks to investigate the ways that primary school teachers' identities and practices are being shaped in the context of differing State government mechanisms for risk management in relation to the care of children. The study will identify appropriate risk response conduct as it is understood by teachers from government and non-government schools in rural and urban locaions in Queensland and New South ....Managing Risk in Primary Schools: Teachers' Professional Identity and Work Practices. This study seeks to investigate the ways that primary school teachers' identities and practices are being shaped in the context of differing State government mechanisms for risk management in relation to the care of children. The study will identify appropriate risk response conduct as it is understood by teachers from government and non-government schools in rural and urban locaions in Queensland and New South Wales. It will then analyse these data to show how risk response practices are impacting on pedagogic work and professional identity,including any context-specific variations that may exist in such practices.Read moreRead less
Caring at end of life: understanding the nature and effect of informal community care networks for people dying at home. This project will provide an understanding of the function and purpose of caring networks for people at the end of their life, specifically for people who are dying at home. This understanding will enable the development of communities capacity in addition to informing a national health promotion approach to palliative care.
Schooling the nation in an age of globalization: National curriculum, accountabilities and their effects. The research will contribute to the development of Australia's human capital through the enhancement of knowledge concerning the policy settings necessary at national and state systemic levels for achieving higher quality and more equitable student outcomes. The research will advance understandings of how education federalism can best be utilized to achieve such outcomes. Analyses of NAPLAN ....Schooling the nation in an age of globalization: National curriculum, accountabilities and their effects. The research will contribute to the development of Australia's human capital through the enhancement of knowledge concerning the policy settings necessary at national and state systemic levels for achieving higher quality and more equitable student outcomes. The research will advance understandings of how education federalism can best be utilized to achieve such outcomes. Analyses of NAPLAN and PISA data will also provide policy and practice relevant knowledge for systems and for schools. The project will strengthen Australia's research capacity in education policy studies and its reputation in the academic field, and contribute to improved research-based policy making in education.
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The sociology of health data for sexuality and gender diverse people. This project aims to investigate the sociological dimensions of digital health data for sexuality and gender diverse people with complex health needs. It employs qualitative and co-design methods to engage with sexuality and gender diverse people, advocates, clinicians, decision-makers, and health data designers. The project expects to generate much-needed knowledge about the participation of sexuality and gender diverse peopl ....The sociology of health data for sexuality and gender diverse people. This project aims to investigate the sociological dimensions of digital health data for sexuality and gender diverse people with complex health needs. It employs qualitative and co-design methods to engage with sexuality and gender diverse people, advocates, clinicians, decision-makers, and health data designers. The project expects to generate much-needed knowledge about the participation of sexuality and gender diverse people in health data systems, with respect to trust, disclosure, stigma and prejudice. Expected outcomes include insight for enhancing health data systems for sexuality and gender diverse people. This project should provide significant benefits for the promotion of inclusive, safe and useful health data systems.Read moreRead less
Cultural biographies, medical knowledges: A sociological study. Cultural biographies, medical knowledges: A sociological study. This project aims to push the cancer care sector toward person-centred care rather than simply ‘accommodating cultural diversity’. Cancer is much more than just the leading burden of disease in Australia; it is a social and cultural entity, experienced in hugely varied ways within and across communities, subtly reflecting individual histories and cultural biographies. T ....Cultural biographies, medical knowledges: A sociological study. Cultural biographies, medical knowledges: A sociological study. This project aims to push the cancer care sector toward person-centred care rather than simply ‘accommodating cultural diversity’. Cancer is much more than just the leading burden of disease in Australia; it is a social and cultural entity, experienced in hugely varied ways within and across communities, subtly reflecting individual histories and cultural biographies. This project will use oral life history and visual methods to understand the interplay of migrants' cultural biographies, their experiences of cancer, and the care they receive. Anticipated outcomes are improved care for migrants living with cancer, person-centred care, and inclusive policy strategies and guides for practice.Read moreRead less
The role of the internet in building social capital amongst homosexually active men: virtual communities in HIV prevention. Social capital comprises features of social organisation such as civic participation, norms of reciprocity and trust in others that facilitate cooperation for mutual benefit, including health and wellbeing. The proposed research focuses on the role of the internet in producing the networks that engender social inclusion and community connectedness. There is scepticism about ....The role of the internet in building social capital amongst homosexually active men: virtual communities in HIV prevention. Social capital comprises features of social organisation such as civic participation, norms of reciprocity and trust in others that facilitate cooperation for mutual benefit, including health and wellbeing. The proposed research focuses on the role of the internet in producing the networks that engender social inclusion and community connectedness. There is scepticism about whether the 'virtual community' of the Internet can build social capital. The study will explore the potential benefits as well as harms to those homosexually active men who use the internet to access health information, meet sexual partners and build friendships that affirm gay identity and community inclusion.Read moreRead less
Rethinking women's depression through narratives of recovery and wellbeing. This research project explores the growing problem of depression for women in Australia from a new angle. It investigates how rural and urban women at different life stages talk about their own experiences of recovery from depression and what helped to improve their emotional wellbeing. By considering the social and gendered context of women's depression this project will contribute to a broader evidence base for preven ....Rethinking women's depression through narratives of recovery and wellbeing. This research project explores the growing problem of depression for women in Australia from a new angle. It investigates how rural and urban women at different life stages talk about their own experiences of recovery from depression and what helped to improve their emotional wellbeing. By considering the social and gendered context of women's depression this project will contribute to a broader evidence base for prevention policies and treatment practices. It will also enable different ways of approaching women's depression amongst health professionals, families and communities.Read moreRead less
Youth services in remote communities. This project aims to improve outcomes for high-risk youth in remote communities in Australia and Canada. It will establish a transdisciplinary research network comprising researchers and services experienced in delivering programmes to high-risk youth; develop a universal intervention definition, and a useful, scientifically rigorous evaluation framework; and integrate the intervention and evaluation framework into participating services’ routine service del ....Youth services in remote communities. This project aims to improve outcomes for high-risk youth in remote communities in Australia and Canada. It will establish a transdisciplinary research network comprising researchers and services experienced in delivering programmes to high-risk youth; develop a universal intervention definition, and a useful, scientifically rigorous evaluation framework; and integrate the intervention and evaluation framework into participating services’ routine service delivery. This project expects to increase the number and quality of services available for high-risk youth, improve their social, health and economic outcomes, and generate positive economic benefit for their communities.Read moreRead less