Development And Psychometric Evaluation Of 2 Measures Of Perceived Needs: 1 For Young Persons With Cancer; 1 For Parents
Funder
National Health and Medical Research Council
Funding Amount
$253,500.00
Summary
It is increasingly acknowledged that there is a need to develop measures which allow patients to reflect their needs, so that the health-care system can respond effectively. Cancer patients represent some of the more poignant and in need groups. Of this patient cohort, young persons with cancer represent a group with potentially, and understandably, a wide range of high unmet needs. The stress and demands imposed upon parents who have children with cancer is acknowledged as being considerable. D ....It is increasingly acknowledged that there is a need to develop measures which allow patients to reflect their needs, so that the health-care system can respond effectively. Cancer patients represent some of the more poignant and in need groups. Of this patient cohort, young persons with cancer represent a group with potentially, and understandably, a wide range of high unmet needs. The stress and demands imposed upon parents who have children with cancer is acknowledged as being considerable. Despite the development of measures to identify unmet needs of various cancer patients including advanced, incurable cancer, breast cancer and cervical cancer, there has been no work to date on developing an accurate measure of unmet needs among parents of young persons who have cancer, as well as the unmet needs of young persons themselves who have cancer. This study will develop such a measure, as a first step in identifying the most cost-effective ways to address the unmet needs of children with cancer and their families. These measures will have a clinical application, in enabling accurate estimates of the prevalence of unmet needs, and a research application, in providing reliable and valid outcome measures for evaluating the effectiveness of interventions.Read moreRead less
A RCT Of An Innocative Supportive Care Program Designed To Reduce Perceived Needs & Psychological Distress & Enhance
Funder
National Health and Medical Research Council
Funding Amount
$111,043.00
Summary
The diagnosis of incurable lung cancer is a very distressing event, and patients have a high level of psychological and informational needs. An innovative evidence-based program has been designed to address these unmet needs in an emotionally supportive environment at this critical time. This study tests whether the program meets the needs of these people, reduces their psychological distress and enhances their quality of life. If successful, it will be integrated into the standard care to impro ....The diagnosis of incurable lung cancer is a very distressing event, and patients have a high level of psychological and informational needs. An innovative evidence-based program has been designed to address these unmet needs in an emotionally supportive environment at this critical time. This study tests whether the program meets the needs of these people, reduces their psychological distress and enhances their quality of life. If successful, it will be integrated into the standard care to improve the experience of this large and under-supported group.Read moreRead less
Antiretroviral drugs reduce morbidity and mortality for people living with HIV however there is currently no cure for HIV. I will undertake a series of studies that will contribute to HIV cure research in Australia. This includes describing novel strategies to identify and measure residual dormant HIV in individuals on suppressive antiretroviral therapy, determining the effect of cancer drugs on dormant HIV, and exploring the attitudes of people living with HIV towards cure research.
Needs Based Access To Specialist Palliative Care Services: Development And Evaluation Of A Consumer Toolkit
Funder
National Health and Medical Research Council
Funding Amount
$286,572.00
Summary
The study will test the cost-effectiveness of two models of supportive care coordination for advanced cancer against _usual care�: a Telephone Caseworker model and an Oncologist-GP model. Both models are aimed at improving patients� and their informal caregivers� health and psychosocial status; are patient-centred, evidence based and readily transferable across health care settings. The Telephone Caseworker model has the additional advantage of reaching people isolated through geography, physica ....The study will test the cost-effectiveness of two models of supportive care coordination for advanced cancer against _usual care�: a Telephone Caseworker model and an Oncologist-GP model. Both models are aimed at improving patients� and their informal caregivers� health and psychosocial status; are patient-centred, evidence based and readily transferable across health care settings. The Telephone Caseworker model has the additional advantage of reaching people isolated through geography, physical disability or age.Read moreRead less
Closing The Divide: Aboriginal And Torres Straight Islander People And Cancer Survivorship
Funder
National Health and Medical Research Council
Funding Amount
$701,662.00
Summary
This project will significantly contribute to Indigenous health research through addressing the current knowledge gap about the unmet support needs of Indigenous cancer patients in Queensland. This study will also investigate if the existing cancer supportive care is adequate for Indigenous patients and how an indigenious patient navigator will adress the barriers to accessing existing care. Indigenous research capacity building is a strong element of this project.
Assessment Of The Effectiveness Of Australian Models Of Palliative Care Delivery In Four Neurodegenerative Disorders
Funder
National Health and Medical Research Council
Funding Amount
$150,000.00
Summary
This study will be conducted in three Australian states (Queensland, Victoria and West Australia), to assess the effectiveness of existing palliative care service delivery to people with motor neurone disease, multiple sclerosis, Huntington’s disease or Parkinson’s disease, and to their families. In phase I, interviews will be conducted with people who have these diseases, their families, and health professionals to discover the needs for palliative care services. In phase II, a survey will dete ....This study will be conducted in three Australian states (Queensland, Victoria and West Australia), to assess the effectiveness of existing palliative care service delivery to people with motor neurone disease, multiple sclerosis, Huntington’s disease or Parkinson’s disease, and to their families. In phase I, interviews will be conducted with people who have these diseases, their families, and health professionals to discover the needs for palliative care services. In phase II, a survey will determine the extent to which these needs are met. The findings will be used to recommend improved palliative care delivery models.Read moreRead less