Identifying And Implementing Standardised Outcomes In Kidney Transplantation
Funder
National Health and Medical Research Council
Funding Amount
$274,076.00
Summary
The inconsistencies and lack of patient involvement in outcome selection for research can undermine shared decision-making and patient-centred care. Over three years, this global project will bring together patients,family members, healthcare providers, policy makers and industry to identify core outcomes in kidney transplantation. Implementation of the core outcome set will ensure that outcomes report in research are relevant, meaningful and important to patients with a kidney transplant.
Fundamental flaws in the design and reporting of research outcomes can undermine evidence-based medicine, impede patient-centred care, cause harm to patients, and result in a waste of research dollars. Our 3-year multinational project engages with patients, caregivers, clinicians, researchers and policy makers, to establish core outcomes in haemodialysis. This will ensure that patient-centred outcomes are consistently measured and reported in haemodialysis trials and other forms of research.
Women's Evaluation Of A Randomised Controlled Trial For Abuse And Violence In General Practice
Funder
National Health and Medical Research Council
Funding Amount
$679,718.00
Summary
Domestic violence or intimate partner abuse (physical, emotional or sexual) is a common hidden problem for women attending general practice. It has major emotional and physical consequences for abused women of child bearing age and as a result they use medical services more frequently than non abused women. Doctors are often the first professional person that abused women tell and women report that doctors who have good communication skills encourage disclosure. This study will evaluate a brief ....Domestic violence or intimate partner abuse (physical, emotional or sexual) is a common hidden problem for women attending general practice. It has major emotional and physical consequences for abused women of child bearing age and as a result they use medical services more frequently than non abused women. Doctors are often the first professional person that abused women tell and women report that doctors who have good communication skills encourage disclosure. This study will evaluate a brief counselling intervention for abused women in general practice using a randomised controlled trial. General practice staff (general practitioners and-or practice nurses) will be randomised either to be intensively trained to deliver the intervention and their practice systems improved for care of abused women or to be given information to ensure minimum safe practice and deliver 'usual care' to abused women. The primary aim of the intervention is to increase abused women's safety behaviours and planning and improve their mental health and quality of life. Secondary aims include increasing their readiness for change and action with regard to abuse, and their comfort to discuss abuse with general practitioners-practice nurses and general practitioners-practice nurses inquiry about safety. It is not expected that in a twelve month period that any intervention with women will be able to decrease the abuse women experience as women cannot control their partners' behaviour and to leave is not necessarily going to end the violence and abuse. Rather, the intervention and outcomes will look at women's pathway and decision making around seeking safety and non-violence. A cost effective analysis will also be undertaken using health service use by women and costs of the intervention.Read moreRead less
I am an Emergency Medicine specialist and my main research interests include trauma epidemiology, injury prevention and management, pre-hospital and emergency care and health services and systems research.
The aim of the Centre is to contribute to the improvement of outcomes for eye-care. This will be achieved by expanding the evidence base for clinical interventions, particularly patient-centred outcomes, informing professionals who deliver eye-care of the evidence base and increasing access to care. The Centre will increase the evidence base by expanding the Australian Corneal Graft Registry, establishing other national registries, and by conducting clinical trials. It will increase access to ca ....The aim of the Centre is to contribute to the improvement of outcomes for eye-care. This will be achieved by expanding the evidence base for clinical interventions, particularly patient-centred outcomes, informing professionals who deliver eye-care of the evidence base and increasing access to care. The Centre will increase the evidence base by expanding the Australian Corneal Graft Registry, establishing other national registries, and by conducting clinical trials. It will increase access to care by establishing new models of eye care delivery for common eye problems in urban and remote populations and by developing efficient and cost-effective pathways to care which utilise a wide range of eye-care professionals.Read moreRead less
Improving The Design Of Pragmatic Clinical Trials In Children
Funder
National Health and Medical Research Council
Funding Amount
$128,224.00
Summary
Whilst clinical research is designed to investigate interventions that improve patient health, to date, patients (including children) and their families have had no say in deciding what health outcomes matter most to them. The voices of patients and their families must be heard and used to inform how studies are designed if we are to achieve an improved model of health care and health service delivery. We propose to investigate and provide recommendations as to how this is best achieved.
Developing A Sustainable Community Based Response To Asbestos-related Diseases In Aboriginal Communities
Funder
National Health and Medical Research Council
Funding Amount
$623,155.00
Summary
Asbestos-related disease in remote Aboriginal communities where asbestos mining has occurred over many decades is an under-recognised problem. In contrast to many occupationally-exposed groups, little is known or published on the burden of disease affecting these communities and health program responses based on good science are underdeveloped. This project will support two Aboriginal community-controlled primary health care services to: estimate the number of people affected in local communitie ....Asbestos-related disease in remote Aboriginal communities where asbestos mining has occurred over many decades is an under-recognised problem. In contrast to many occupationally-exposed groups, little is known or published on the burden of disease affecting these communities and health program responses based on good science are underdeveloped. This project will support two Aboriginal community-controlled primary health care services to: estimate the number of people affected in local communities; find the best way to diagnose and manage lung and asbestos disease and prevent complications; advocate for affected individuals, families and communities. Rather than the usual 'in-out' health survey, this research project will build the capacity of local communities and health service to implement and sustain holistic responses.Read moreRead less