Enhancing Communication Between Medical Oncologists And Patients With Advanced Malignancy Considering Clinical Trial Participation, With A Focus On CALD Populations
Funder
National Health and Medical Research Council
Funding Amount
$92,335.00
Summary
In the advanced stages of cancer, some patients will need to choose between multiple options - they might wish to pay for an expensive but unfunded drug, they may consider taking part in a clinical trial or opt to stay at home and focus on the time they have. This project will aim to help patients make these difficult decisions with their clinicians, and will have a focus on those from culturally and linguistically diverse backgrounds as they face additional barriers to trial entry.
INTroducing A Care Bundle To Prevent Pressure Injury (the INTACT Trial)
Funder
National Health and Medical Research Council
Funding Amount
$1,093,250.00
Summary
In Australia, hospital acquired pressure injuries (i.e. bedsores) range from 7.4% – 17.4%. A care bundle is a structured group of interventions associated with improved patient outcomes. The aim of this 3-year cluster randomised controlled trial is to provide rigorous evidence regarding the effect of a patient centred pressure injury prevention care bundle on the development of pressure injuries in patients at risk of developing a hospital acquired pressure injury.
Consumer Information Materials And A Communication Aid For Diagnostic Tests For Breast Disease
Funder
National Health and Medical Research Council
Funding Amount
$105,863.00
Summary
Many studies have now shown that the majority of patients want to participate in clinical decisions about medical treatments they might receive. As a result, information materials are being developed to help consumers and doctors work together to reach satisfying treatment decisions which are based on the best available evidence and also reflect the individual patient's needs and preferences about the treatment options. Very little is known, however, about whether consumers also want to particip ....Many studies have now shown that the majority of patients want to participate in clinical decisions about medical treatments they might receive. As a result, information materials are being developed to help consumers and doctors work together to reach satisfying treatment decisions which are based on the best available evidence and also reflect the individual patient's needs and preferences about the treatment options. Very little is known, however, about whether consumers also want to participate in decisions about whether to have a medical test. Tests can be trivial, such as a blood or urine test, or quite major and invasive, such as a biopsy or a colonoscopy. People considering a medical test might want to know the answers to the following questions: What is my chance of having the disease being tested for? If the test result is positive what is the chance I have the disease? If the test result is negative what is the chance I have the disease anyway? How will the test result influence treatment of my condition? What are possible side-effects of the test? Generally information materials about medical tests only describe the test itself, and do not contain the information people need to answer these questions. Even doctors may not have to hand the data needed to answer these questions. Yet without this information, consumers cannot make truly informed and rational choices about whether to have the test. This project aims to find out whether consumers want to participate in decisions about medical tests, what information they would want to do this, and to develop and trial information materials and a communication aid for a small number of breast cancer tests. We will use tests for diagnosing breast cancer as our model but we anticipate the work will be applicable across a wide range of medical tests.Read moreRead less
Maximum Acceptable Risk Of Complication In Total Knee Arthroplasty (MARKA) Study: Using Discreet Choice Experiments To Elicit Patient And Surgeon Perception Of Acceptable Risk In Total Knee Arthroplasty
Funder
National Health and Medical Research Council
Funding Amount
$465,199.00
Summary
Patient expectation is the strongest predictor of satisfaction following total knee replacement. Dissatisfaction with surgery is reported in approximately 1 in 5 patients undergoing knee replacement. Unrealistic patient expectations and uninformed perceptions of potential benefits, risks and limitations of surgery lead to dissatisfaction in many cases. This study will examine the “risk-benefit” preferences in patients and surgeons considering total knee replacement as a treatment option for end- ....Patient expectation is the strongest predictor of satisfaction following total knee replacement. Dissatisfaction with surgery is reported in approximately 1 in 5 patients undergoing knee replacement. Unrealistic patient expectations and uninformed perceptions of potential benefits, risks and limitations of surgery lead to dissatisfaction in many cases. This study will examine the “risk-benefit” preferences in patients and surgeons considering total knee replacement as a treatment option for end-stage osteoarthritis.Read moreRead less
Consumer Perspectives And Preferences Across The Trajectory Of Chronic Kidney Disease (CKD
Funder
National Health and Medical Research Council
Funding Amount
$307,946.00
Summary
Chronic kidney disease (CKD) is a growing health problem. An understanding of patient perspectives is important to alleviate the societal burden of CKD and improve patient survival, quality of life and health. This research will identify: information needs of patients with early-stage CKD, issues relevant to dialysis patients and kidney transplant recipients, and patient preferences for organ allocation. I intend to achieve this by conducting interviews, focus groups and surveys with patients ac ....Chronic kidney disease (CKD) is a growing health problem. An understanding of patient perspectives is important to alleviate the societal burden of CKD and improve patient survival, quality of life and health. This research will identify: information needs of patients with early-stage CKD, issues relevant to dialysis patients and kidney transplant recipients, and patient preferences for organ allocation. I intend to achieve this by conducting interviews, focus groups and surveys with patients across Australia.Read moreRead less
Improving Rehabilitation Outcomes Through Self-Management: My Therapy
Funder
National Health and Medical Research Council
Funding Amount
$743,438.00
Summary
We must ensure patients have enough therapy practice for the best inpatient rehabilitation outcomes. During rehabilitation, we know patients don't often receive enough therapy and actually spend most of the day sitting and lying down. My Therapy was designed to increase independent practice of therapy exercises during rehabilitation, in addition to usual care, without additional staff. Through My Therapy, patients achieved 100 extra minutes of weekly therapy participation and better function.
Patient-centred EHealth Approach To Improving Outcomes For Gout Sufferers
Funder
National Health and Medical Research Council
Funding Amount
$688,354.00
Summary
Gout, caused by excessive urate, can be controlled by prescribing medication and patients adhering to them. We will conduct a 2-year controlled trial in primary care to test an eHealth tool to significantly improve gout patient outcomes. This tool tracks patients plasma urate, medication adherence, gout attacks and provides education, interaction with gout experts and reminders of medical visits. Nationwide rollout of this gout management tool will occur after improved outcomes are proven.
Partnering With Patients To Transform Practice And Policy For Improved Patient-centred Outcomes In Chronic Kidney Disease
Funder
National Health and Medical Research Council
Funding Amount
$3,292,932.00
Summary
Chronic kidney disease (CKD) is a major cause of death and imposes a substantial burden on individuals and the healthcare system worldwide. In partnership with patients, this project will establish and implement core outcomes and measures. Patient-centred trials will address the research priorities of patients across all stages of CKD including: preventing the progression of CKD, improving fatigue in patients on dialysis, and optimising life participation in kidney transplant recipients.