The Developmental Outcomes Of Children With Mothers With Intellectual Disabilities And The Associated Risk And Protective Factors: Using Population Databases
Funder
National Health and Medical Research Council
Funding Amount
$67,477.00
Summary
environments. Little is known about factors that influence developmental outcomes of children living in these environments. Using population databases this study examines the developmental outcomes of children with parents with intellectual disabilities and the associated risk and protective factors on these outcomes. This will enable the development of appropriate interventions to provide supportive healthy living environments for these families.
Service Pathways For Ageing Caregivers Of Adults With Intellectual Disability
Funder
National Health and Medical Research Council
Funding Amount
$143,613.00
Summary
Caregiving is demanding, but for most it is but a phase of life. This is not so for the 90,000 Australian parents caring for a lifetime for their adult son or daughter with intellectual disability. They are at significant risk from the physical and emotional consequences of long-term caring and the compounding effects of their own - and their son or daughter's - ageing. Despite this, these ageing parent caregivers typically do not use health and community services until a crisis occurs. Our goal ....Caregiving is demanding, but for most it is but a phase of life. This is not so for the 90,000 Australian parents caring for a lifetime for their adult son or daughter with intellectual disability. They are at significant risk from the physical and emotional consequences of long-term caring and the compounding effects of their own - and their son or daughter's - ageing. Despite this, these ageing parent caregivers typically do not use health and community services until a crisis occurs. Our goal is to ensure that ageing parent caregivers use health and community services appropriately and for these services to be appropriate to their needs. The proposed project therefore aims to identify the pathways that lead to or prevent ageing parent caregivers accessing services and to construct a model for ageing parent caregivers' involvement with services that could be tested with a randomised clinical trial. Narrative life history method will be used to determine how ageing parent caregivers arrived in their present circumstances and factors which influence the caring relationship, its stresses and rewards, and their experiences and views concerning services. Service providers will participate in focus groups to examine their perceptions and expectations of services for ageing parent caregivers. Characteristics of the study sample will be compared with state and national population benchmarks. The findings will inform our planned development of a multi-dimensional strategy to provide cost effective preventive health and community services for this largely neglected subgroup within the population of caregivers in Australia.Read moreRead less