Understanding the implications of pandemic delays for the end of life. The untold toll of Covid-19 is emerging in ‘avoidable deaths’ linked to late(r) diagnosis or treatment due to pandemic-related delay. How delays are experienced and felt across families and communities requires urgent attention. This project aims to understand the implications of pandemic delay for dying and bereavement, including the sociocultural factors that shape experiences of illness and care amid delay. The significanc ....Understanding the implications of pandemic delays for the end of life. The untold toll of Covid-19 is emerging in ‘avoidable deaths’ linked to late(r) diagnosis or treatment due to pandemic-related delay. How delays are experienced and felt across families and communities requires urgent attention. This project aims to understand the implications of pandemic delay for dying and bereavement, including the sociocultural factors that shape experiences of illness and care amid delay. The significance of this project lies in its innovative sociological approach; expected outcomes include the generation of new knowledge on needs at the end of life that move across contexts and settings. Benefits include provision of findings that will inform social and health policy and practice improvements to enable good deaths.Read moreRead less
Discovery Early Career Researcher Award - Grant ID: DE150100285
Funder
Australian Research Council
Funding Amount
$372,000.00
Summary
Who cares? A sociological study of informal care at the end of life. It is often said that a society can be measured by how it cares for its most vulnerable people. Informal care for people nearing the end of life, often provided by family and friends, is a vital area of care for the vulnerable, and is coming under significant pressure in Australia. Our capacity to care is being challenged by economic, social and cultural shifts. This project aims to examine systematically the character of infor ....Who cares? A sociological study of informal care at the end of life. It is often said that a society can be measured by how it cares for its most vulnerable people. Informal care for people nearing the end of life, often provided by family and friends, is a vital area of care for the vulnerable, and is coming under significant pressure in Australia. Our capacity to care is being challenged by economic, social and cultural shifts. This project aims to examine systematically the character of informal care from multi-stakeholder perspectives, providing policy and practice-relevant evidence for better support and understanding of the role and significance of informal care for people approaching the end of life in Australian society.Read moreRead less
Pathways to and through palliative care: a sociological study of patient, carer and clinician experiences at the end-of-life. Palliative care services provide care and support for families, carers and individuals trying to cope with the challenges presented at the end of life. This project will provide critical policy and practice-relevant data in order to improve our understanding of, and support for, the dying process in Australia.
Caring at end of life: understanding the nature and effect of informal community care networks for people dying at home. This project will provide an understanding of the function and purpose of caring networks for people at the end of their life, specifically for people who are dying at home. This understanding will enable the development of communities capacity in addition to informing a national health promotion approach to palliative care.
An action research project to strengthen inter-professional learning and practice across the ACT health system. There are 14 beneficial reasons why this project is vital to the fabric of our nation. These include: the economic benefits of a more efficient health-care system; the social benefits of more responsive and resilient workplaces; the research benefits of better knowledge about how professionals can work together effectively; the consumer benefits of improved patient care; health sector ....An action research project to strengthen inter-professional learning and practice across the ACT health system. There are 14 beneficial reasons why this project is vital to the fabric of our nation. These include: the economic benefits of a more efficient health-care system; the social benefits of more responsive and resilient workplaces; the research benefits of better knowledge about how professionals can work together effectively; the consumer benefits of improved patient care; health sector benefits in assisting health reforms to be more effective; and education sector benefits in understanding how professionals from different disciplines can learn together more collaboratively. The benefits are transferable to other industries and professional groups, as well as to Australia's international partners.Read moreRead less
Development and evaluation of computer assisted survey technology as an adjunct to the professional consultation. The project aims to test the effectiveness of computer technology as an adjunct to the client-provider interaction in General Medical Practice. An innovative system for generating dietary assessment and advice will be developed, supporting both local software and multi media industries and providing data on population based interventions for prevalent lifestyle disease (obesity, diab ....Development and evaluation of computer assisted survey technology as an adjunct to the professional consultation. The project aims to test the effectiveness of computer technology as an adjunct to the client-provider interaction in General Medical Practice. An innovative system for generating dietary assessment and advice will be developed, supporting both local software and multi media industries and providing data on population based interventions for prevalent lifestyle disease (obesity, diabetes). The study involves developing the technology, evaluating its use in practice and researching the opinions of key stakeholders (consumers, GPs dietitians) on the position of this technology in the client-provider interaction.Read moreRead less