Towards An Evidence-Based Model Of Paediatric Palliative Care
Funder
National Health and Medical Research Council
Funding Amount
$73,722.00
Summary
The aim of this study is to improve the evidence base in paediatric palliative care by determining: How families come to realise the need for palliative care; How health professionals (paediatricians, general practitioners, palliative care workers) come to realise the need for palliative care; What aspects of palliative care are of greatest value to dying children and their families; How families experience the service system as it is currently configured including community-based palliative car ....The aim of this study is to improve the evidence base in paediatric palliative care by determining: How families come to realise the need for palliative care; How health professionals (paediatricians, general practitioners, palliative care workers) come to realise the need for palliative care; What aspects of palliative care are of greatest value to dying children and their families; How families experience the service system as it is currently configured including community-based palliative care providers; The degree to which the views of health professionals accord with those of parents, and the extent to which this influences perceived quality of service delivery; and If, and to what extent the needs of children with malignant conditions differ from those with non-malignant conditions.Read moreRead less
An Ethnographic Study Of The Meaning Of Cancer To Aboriginal Women
Funder
National Health and Medical Research Council
Funding Amount
$26,477.00
Summary
The impetus for development of the palliative care movement was the plight of cancer patients, which is why my study aims to explore and interpret what cancer means to Aboriginal women and how experiences and perception of the disease impacts on their attitudes toward treatment options. In my thesis I hope to build a critique of Aboriginal women�s perceptions of cancer that will inform health care services of socio-cultural issues that should be considered in developing and providing culturally ....The impetus for development of the palliative care movement was the plight of cancer patients, which is why my study aims to explore and interpret what cancer means to Aboriginal women and how experiences and perception of the disease impacts on their attitudes toward treatment options. In my thesis I hope to build a critique of Aboriginal women�s perceptions of cancer that will inform health care services of socio-cultural issues that should be considered in developing and providing culturally supportive care.Read moreRead less
Develop Of A Service Improve Framework Based On Health Promotion Principles For Community-based Specialist Palliative Ca
Funder
National Health and Medical Research Council
Funding Amount
$84,430.00
Summary
The aims of this study are to: examine ways in which health promotion principles may be applied in specialist palliative care service delivery models; examine factors which may influence the implementation of a health promoting model of palliative care; develop a service improvement framework based on health promotion principles for community-based specialist palliative care services; and, implement and evaluate the service improvement framework in a selected community based palliative care serv ....The aims of this study are to: examine ways in which health promotion principles may be applied in specialist palliative care service delivery models; examine factors which may influence the implementation of a health promoting model of palliative care; develop a service improvement framework based on health promotion principles for community-based specialist palliative care services; and, implement and evaluate the service improvement framework in a selected community based palliative care service.Read moreRead less
Client Centred Palliative Rehabilitation: An Evaluation Of Its Efficacy
Funder
National Health and Medical Research Council
Funding Amount
$90,570.00
Summary
�I don�t want to sit here waiting to die�. Many people towards end of life want their palliative care to continue to be rehabilitative as well as supportive, yet no study to formally evaluate the effectiveness of a patient-centred palliative rehabilitation program has been conducted in Australia. This study aims to identify patient and carer-centred rehabilitation goals such as independence in self care, and develop, trial and evaluate a rehabilitation program to address these goals. The program ....�I don�t want to sit here waiting to die�. Many people towards end of life want their palliative care to continue to be rehabilitative as well as supportive, yet no study to formally evaluate the effectiveness of a patient-centred palliative rehabilitation program has been conducted in Australia. This study aims to identify patient and carer-centred rehabilitation goals such as independence in self care, and develop, trial and evaluate a rehabilitation program to address these goals. The program would be transfer stage conditions such as cancer, cardiac or renal failure.Read moreRead less
Development Of A Palliative Care In Residential Care Outcome Scale (PARCOS)
Funder
National Health and Medical Research Council
Funding Amount
$137,000.00
Summary
The project seeks to develop and undertake psychometric testing of a scale suitable to measure outcomes for residents in residential aged care facilities for whom a palliative approach is appropriate. The project will include a Joanna Briggs Institute systematic review of existing outcome measures in palliative care with emphasis on their use in residential aged care facilities.
Needs Based Palliative Care: Evaluation Of The Palliative Care Needs Assessment Guidelines And Palliative Care Needs Ass
Funder
National Health and Medical Research Council
Funding Amount
$32,799.00
Summary
People with cancer and their caregivers may have a range of unmet physical, emotional, social and spiritual needs. Unfortunately, not everybody receives the type of help they need with these issues, or at the time they most need it. In this study, we will assess the extent to which recently developed Palliative Care Needs Assessment Guidelines and a Needs Assessment Tool help to a) identify those advanced cancer patients and caregivers who have unmet needs and b) ensure they are offered the care ....People with cancer and their caregivers may have a range of unmet physical, emotional, social and spiritual needs. Unfortunately, not everybody receives the type of help they need with these issues, or at the time they most need it. In this study, we will assess the extent to which recently developed Palliative Care Needs Assessment Guidelines and a Needs Assessment Tool help to a) identify those advanced cancer patients and caregivers who have unmet needs and b) ensure they are offered the care that best matches their levels and types of need at the time they most need it.Read moreRead less